Thanks to your advocacy efforts, we are pleased to announce that the House Appropriations Committee has included $25 million for the Neurofibromatosis Research Program (NFRP) in their Fiscal Year 2023 Defense spending bill! This monumental achievement is one of many for the NF community and takes us one step closer to funding critical NF research. With your unwavering support, we are able to continue educating congressional offices on the importance of these federal research dollars for NF research and help accelerate the search for treatments and a cure to end neurofibromatosis.
Miller School Selected for National NF2 Tumor Clinical Trial
A University of Miami Miller School of Medicine researcher is hoping an innovative multicenter clinical trial will lead to new therapies for NF2. Their goal is to accelerate the process of identifying effective drugs that will address the unique needs of this patient population.
Epilepsy drug stops nervous system tumor growth in mice
In a recent study, researchers at Washington University School of Medicine in St. Louis have discovered that neurons carrying a mutation in the NF1 gene are hyperexcitable and suppressing this hyperactivity with lamotrigine stops tumor growth in mice. Hear from senior author, Dr. David Gutmann.
"Entertaining and Enchanted:" Chicago's Return to Live Music
In late June, the NF Hope Concert returned to the Chicagoland area for its third annual event. With a talented local lineup of performers with special appearances by prominent members of our NF community, it was a magical evening celebrating how far we've come in the NF community and banding together to help continue the progress we've made together.
It is our pleasure to introduce the NF Network's newest team member, Ashley Sola! As our Marketing and Event Coordinator, Ashley brings her passion for design and love for people to the role and is excited to plan a fun calendar of events for our NF community across the country. Please join us in giving her a warm welcome!
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
