Send us your personal NF story to continue NF research
On February 12 and 13, NF advocates will be storming the halls of Congress to educate its 535 members about neurofibromatosis and ask for their support to fund vital NF research. Read more

Concert raised NF awareness, funds

Rock Out to Knock Out NF 2.0, NF North Central's second annual concert fundraiser, brought in more than $55,000 this past November.

Advocating for NF research — 30 years and counting

Karen Peluso became involved with the NF community when her daughter Mia underwent surgery to remove a very large and destructive plexiform tumor in her abdomen caused by NF1.

Study finds key risk factor for severe NF1 symptoms

Research led by Ludwine Messiaen, professor of genetics at the University of Alabama at Birmingham, found a key risk factor for severe symptoms of NF1.

Family, videography key for teen battling rare disease

Alex Leisenring, a high school senior with NF1, dreams of one day becoming a videographer.

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The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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