House Appropriations Committee passes $15 million
for NF Research
Thank you to all those helping us advocate for federal funding for NF research by contacting your congressmen. As a result of your efforts the House Appropriations Committee passed their FY19 Defense bill that includes $15 million for the Peer-reviewed Neurofibromatosis Research Program (NFRP).

Gov. Charlie Baker declares May NF Awareness Month

On May 1 Massachusetts Governor Charlie Baker and Lieutenant Governor Karyn Polito signed a proclamation officially declaring May Neurofibromatosis Awareness Month.  

Confronting the Challenge of Neurofibromatosis

Neurofibromatosis as a name encompasses at least three diseases in fact. They are called neurofibromatosis type one, neurofibromatosis type two, and Schwannomatosis.

Stone Lotus plays at Inaugural Docs Rock for NF concert

On a warm Saturday evening in early June at the Orlando Shakespeare Theater, more than 125 people gathered for the inaugural Docs Rock for NF concert.

Living with NF1: Jeff Colatruglio

My name is Jeff Colatruglio, I am 32 years old and this is my life. Please read my story because you can have a happy ending while living with NF1.

Upcoming Events
The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?