The Word is Neurofibromatosis May is Neurofibromatosis Awareness Month! The Neurofibromatosis Network is calling on the more than 100,000 Americans with NF to share their stories and spread NF awareness. Read more 

NF Central Plains: iNForms The event drew people from Oklahoma, Missouri and Kansas who wanted to learn more, ask questions, and build community. The Day of iNFormation was hosted by NF Central Plains and was held in Kansas City on April 21, 2018.   Read more Cole Rutter: What I Can Do The Inaugural Chicago NF Hope Concert presented the Paul Bodner Memorial Award to Cole Rutter. Read his acceptance speech. Read more

New guidelines for the clinical care of adults with NF1 American College of Medical Genetics and Genomics convened experts to write new guidelines. Read more Kids Day: Team medical approach helps teen keep smiling When Barbara Langdon's son, Finnian, was 4 months old, she found a pea-sized lump on his back. Read more

Upcoming Events

The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF." Will you join with us?

‌ ‌ ‌