A Consumer’s Perspective:
“Headed in the Right Direction…”  
Listen to Kim Bischoff, Executive Director of the Neurofibromatosis Network, but most importantly the mother of Jennifer, who is 34 years old, who has neurofibromatosis type one, share her perspective of the CDMRP NF Research Program and the progress made in NF research. Click on photo above to listen.

Selumetinib Continues to Show Promise in Children with NF1

An investigational drug called selumetinib can shrink tumors in children and young adults with a genetic syndrome NF1.

25th Annual NF Center Research Symposium

Washington University marked 25 years of NF research by hosting the NF Center Research Symposium.

10/21/2018 - Las Vegas' NF Hope Concert lit up the Las Vegas strip

The success of the afternoon could not have been possible without the support of an army of people. 

Take a deep breath & have faith that everything will be ok

A mother steps out of her comfort zone with the need to let go and share her emotions on Facebook of her daughter's journey of living with NF.

Upcoming Events
The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?