News from the NODCC
Q&A with The Southern Mess

We were introduced to Beth Davis of The Southern Mess this summer when Beth participated in our #themiddlepart campaign for DCC Awareness Day with her daughter, Austen. On The Southern Mess, Beth shares about life as a southern mama, the challenges of parenting a special needs daughter and shows us her favorite things. We are excited for you to meet Beth through this honest and heartfelt interview.

Q: Tell us a little bit about you and your family.
Beth: My husband, Brad & I both grew up in the same small town. Our childhood homes were about 8 miles from each other. Although our families knew of one another, we didn’t cross paths until high school. We started dating and are now coming up on our 13th wedding anniversary. We still live in the same small town and both our families are here as well. In 2011 our baby girl, Austen, was born and on the day she arrived, we also received her diagnosis of ACC. Austen, turned 9 years old this year and surprises us every single day.

Q: Tell us about Austen. What’s her personality and interests?
Beth: Ohh, she’s an intricate little thing! Ha-ha! Austen has always been very content. She is (mostly) non-verbal and didn’t walk until just shy of 4 years old. Even in those early years she would sit and happily take in her surroundings. As she’s gotten older, we’ve really seen her progress cognitively. Although her processing is delayed, I am constantly in awe of her understanding and comprehension. She takes information in seamlessly. It’s the output that she struggles with.

Q: In July, you wrote a candid blog Dear Special Needs Mama, This is What I Know. How has being a special needs mama impacted and encouraged you to advocate for special needs parents and kids.
Beth: The day I wrote that blog post was a rough one. I felt like everything I referenced in that post had happened within a 24-hour time frame. There are people in my life that assure me that our life situations are “normal”. They say “Oh, every kid does that” or “Yep, we’ve all been there.” There have been times where I felt relief upon hearing that because it normalizes us for a moment. But the fact of the matter is, there has never been a more untrue statement. Until you have had your 9-year-old daughter in a public restroom trying to change a dirty pull-up while she's standing up and screaming every time a toilet flushes or a hand dryer comes on...you have, in fact, not “been there”.

To read the full interview with Beth and learn how she’s using The Southern Mess to spread joy and help shine a light on special need parenting, click here to visit the NODCC blog.


A Message from NODCC President, Lynn Snyder

Hello NODCC friends,

During this year, the Board of Director’s focus has been on providing programs to improve the quality of life of our Disorders of the Corpus Callosum (DCC) population. The result has been NODCC-led Zoom calls focused on a variety of different cross sections of the DCC spectrum, a continually improved website with new content, and planning and fundraising for a NODCC sponsored registry that will enable more effective and focused DCC research in the future. The NODCC office has directly served over 500 families so far this year. Through Olam’s Piggybank, we awarded 6 grants to NODCC families during 2020. The financial support we have received during the year has been so welcomed and needed. We encourage you to visit our website (www.nodcc.org) and consider a tax-deductible donation to help us continue to help families.

We are excited for 2021 as we prepare for increased virtual events to support our DCC community. While we were disappointed to postpone the NODCC Conference originally scheduled for this past June, the 2022 event promises to be the best ever. The conference will be in a large conference center in Frisco, Texas on July 1-3, 2022, and we hope you will make plans early to join us.
 
We look forward to seeing you and hearing from you in 2021 on Zoom, Facebook, Twitter, Instagram, email, email newsletter, or by phone. Merry Christmas and Happy New Year.
 
Lynn Snyder
Board President
The NODCC Resource Center is Open!

With our new website, we now have fully functioning Resource Center -- a place for YOU to share resources and stories. Once you are logged into the site, you can add trusted physicians, therapists, services and more in the Resource Directory that can help other individuals and families. In the Stories section, you can share details on diagnosis, therapies, successes, failures, etc. that may be similar to what others are facing. The Resource Center relies on this community to share resources so please consider entering information and stories as we head into a new year. https://nodcc.org/resources/resource-center/
Get More and Give More in 2020 with The CARES Act

Congress has encouraged charitable giving in 2020 through specific provisions in the CARES Act. By taking advantage of these unique opportunities, you can make an impact on the NODCC and benefit financially.

  • The CARES Act allows taxpayers to take a charitable deduction of up to $300, even if you do not itemize. That means, if you’d like to donate up to $300 to a qualified organization, your adjusted gross income (AGI) will be reduced by up to $300 – and you can still claim the standard deduction.
  •  For those who do itemize their deductions, the new law allows cash contributions to qualified charities to be deducted up to 100% of AGI (up from 60%).
  • The CARES Act waives the required minimum distribution (RMD) for individual retirement accounts (IRAs), but only for 2020. Nonetheless, IRA owners over age 70½ can still give up to $100,000 directly from their IRA and pay no tax on the distribution.

For more information, refer to the IRS update: https://www.irs.gov/newsroom/how-the-cares-act-changes-deducting-charitable-contributions. If you’d like to make a year-end gift, you can donate directly through our website at nodcc.org/donate or you can mail a check to: NODCC, PMB 363, 18032-­C Lemon Dr., Yorba Linda, California 92886.

Notice: The National Organization for Disorders of the Corpus Callosum does not provide legal, tax or financial advice. Consequently, we urge you to seek the advice of your own legal, tax or financial professionals in connection with gift and planning matters. This information is not intended to be used and cannot be used for the purpose of avoiding tax-related penalties.


The NODCC wishes you and your family a peaceful holiday & a wonderful New Year!
Here are the latest opportunities to get involved with the NODCC community.

Regional and Community Gatherings

The NODCC will continue hosting regular virtual gatherings via Zoom. Details, dates, and Zoom links will be shared on our website with reminders on social media (Facebook and Twitter). Please contact community@nodcc.org or info@nodcc.org if you have any questions or suggestions.

Upcoming Zoom calls:
Special Virtual Presentation: Preparing Your Teen for Transition Success

Date: January 14, 2021
Time: 5 pm PST, 6 pm MST, 7 pm CST, 8 pm EST
 
Educator Kim Oren will share 5 important considerations for supporting your student with a disorder of the corpus callosum (DCC) during the teen years. The presentation will include information on transition supplements, accommodations, one-on-one supports, graduation pathways and more, and will help parents better advocate for students. There will also be time for Q&A at the end of the session.
 
Kim has 15 years of public school teaching experience with 11 years in special education. She has master’s degree in special education from Texas Tech University. Kim and her husband, Kip, are the parents of two sons with neurological disorders, one who was diagnosed with complete ACC at age 12.
 
Click HERE for the link to register.

**After registering, you will receive a confirmation email containing information about joining the meeting.
Fundraisers & Donations

Amazon Smile
Did you know that your regular Amazon purchases can help raise money for the NODCC? It's a donation opportunity provided through AmazonSmile. Help the NODCC and encourage your friends and family to list the NODCC as the preferred charity on your Amazon accounts. Start contributing today and add the NODCC to your AmazonSmile. Your quick click here makes a big difference!

Looking for other ways to support? The NODCC is searching for sponsors and partners who want to support our organization. We encourage all readers of the newsletter to send company names or potential company contact information to info@nodcc.org


Donate to keep our community thriving!



Contact Us
(714) 747-0063  info@nodcc.org nodcc.org