Introducing a New Story Series on Adults with DCC
We are excited to begin sharing stories of adults living with callosal disorders on our blog and new Instagram. Last fall, college students in a public relations course at The University of Texas at Arlington interviewed and wrote stories on 25 adults who were willing to be included in this series (under the supervision of our communication consultant, Jennifer Little). We will be adding participants to the series in the coming months as we want to show the broad range of abilities that come with the disorders.
The first story: Meet Matt: A Photographer Pursuing His Dreams
Matt has never let his diagnosis of Agenesis of the Corpus Callosum (ACC) keep him from pursuing his dreams. After developmental delays in early years, he was officially diagnosed with ACC at age nine when a CAT scan showed he was missing the part of the brain that connects the cerebral hemispheres.
Matt’s parents, Gary and Kathy, created the ACC Network to help connect families that had a member with ACC. They created this group with help from the University of Maine in the late 1980s, around Matt’s freshman year of high school.
To read more of Matt’s story, click here to visit our blog.