News from the NODCC
Introducing a New Story Series on Adults with DCC

We are excited to begin sharing stories of adults living with callosal disorders on our blog and new Instagram. Last fall, college students in a public relations course at The University of Texas at Arlington interviewed and wrote stories on 25 adults who were willing to be included in this series (under the supervision of our communication consultant, Jennifer Little). We will be adding participants to the series in the coming months as we want to show the broad range of abilities that come with the disorders.

The first story: Meet Matt: A Photographer Pursuing His Dreams

Matt has never let his diagnosis of Agenesis of the Corpus Callosum (ACC) keep him from pursuing his dreams. After developmental delays in early years, he was officially diagnosed with ACC at age nine when a CAT scan showed he was missing the part of the brain that connects the cerebral hemispheres.
Matt’s parents, Gary and Kathy, created the ACC Network to help connect families that had a member with ACC. They created this group with help from the University of Maine in the late 1980s, around Matt’s freshman year of high school.

To read more of Matt’s story, click here to visit our blog. 

New Instagram: @livingwithdcc

We have a new Instagram channel: @livingwithdcc  

Our Instagram will be dedicated to telling the real stories of people living with the disorders of the corpus callosum. Follow us to read and share the stories!
Share Resources and Stories via our Resource Center

The Resource Center is a place for YOU to input resources and stories on the NODCC website.

Once you are logged into the site, you can add trusted physicians, therapists, services and more in the Resource Directory that can help other individuals and families. In the Stories section, you can share details on diagnosis, therapies, successes, failures, etc. that may be similar to what others are facing. 

The Resource Center relies on this community to share resources so please consider entering information and stories as we head into a new year.
We are so grateful for the donations and support of the NODCC last year. From Facebook fundraisers to our Fall Fundraiser to Giving Tuesday to the Holiday Drive, our community showed up to help us meet our fundraising goals for 2020. Thank you for continuing to give to the organization and enhance the lives of those living with disorders of the corpus callosum!
Here are the latest opportunities to get involved with the NODCC community.

Regional and Community Gatherings

The NODCC will continue hosting regular virtual gatherings via Zoom. Details, dates, and Zoom links will be shared on our website with reminders on social media (Facebook, Instagram & Twitter).

Please contact or if you have any questions or suggestions.

Fundraisers & Donations

Matching Gifts:
​Don’t forget to check for matching funds from your employer. Many companies have matching gift programs that will equal or exceed employees’ charitable donation amounts.

A great example is from Tom Gee:
The Corning Foundation is a great way for eligible Corning Incorporated employees and directors to make donations to non-profit organizations, and their donations are matched by the Foundation 1:1.

If you or a family member work for Corning you can have your donation to the NODCC matched!

Amazon Smile
Did you know that your regular Amazon purchases can help raise money for the NODCC? It's a donation opportunity provided through AmazonSmile. Help the NODCC and encourage your friends and family to list the NODCC as the preferred charity on your Amazon accounts. Start contributing today and add the NODCC to your AmazonSmile. Your quick click here makes a big difference!

Looking for other ways to support? The NODCC is searching for sponsors and partners who want to support our organization. We encourage all readers of the newsletter to send company names or potential company contact information to

Donate to keep our community thriving!

Contact Us
(714) 747-0063