July 2 is our awareness day because it marks the midway point of the year – the point when the two parts of the year are connected — just like the corpus callosum bridges the two halves of the brain. It’s at this special moment in the year (July 2) that we celebrate World Disorders of the Corpus Callosum (DCC) Awareness Day.
We have 3 ways to get involved in DCC Awareness Day during the month of July:
Join in the #themiddlepart challenge and spark conversation on disorders of the corpus callosum. Read more about this below.
Think about how you can educate others in YOUR community. Share your personal stories and educational content from any of the NODCC channels. You could educate coworkers, neighbors, schools, church groups or friends. See how far your message can travel by using social media or email in lieu of in-person events. Use #dccawareness and #livingwithDCC in your posts.
Create a fundraiser on Facebook, through your business or in another way to ask others to join you in helping make sure families have access to information on these disorders and can find support in other families and professionals.
Feel free to use videos and information on our social channels and website:
The Middle Part
This year, we have created a fun way to spark conversation on disorders of the corpus callosum on your social media channels. Join us in showing off a middle part in your hair to recognize the halfway point in the year and the challenges of living without the main connection in the brain. Share your photos using #themiddlepart on all your social media channels. Below are sample language and posts you can use to spread the word.
Feel free to get creative with representations of the middle brain structure that presents a challenge for many living with the disorders. You can use spray color, hats, headbands, wigs, edited photos, graphics, etc. to highlight the middle line or talk about the corpus callosum.
Sample Post Text:
The way we part our hair is sometimes just the way our hair falls, the latest style or how we woke up. The middle part may be the natural part in our hair, but it’s not always the one we go with. A part down the middle is great for some but challenging for others. That’s the same for people living with a disorder of the corpus callosum (DCC).
The corpus callosum is a band of nerve fibers that connects the two halves of the brain. Children and adults that are born without this connection (or the structure is not fully formed) must find other ways to communicate and get information from one side of the brain to the other. Individuals living with a disorder of the corpus callosum face communication, social, developmental, and behavioral challenges.
Today I part my hair down the middle in honor of all the people like me who live with a diagnosis that doesn’t define me.
Today I part my hair down the middle in honor of all the people who live every day working twice as hard to do things that come naturally to others.
Today I color my hair two different colors to represent the two
sides of the brain. I am missing the main pathway, the corpus callosum, which helps get information between the two sides. Sometimes communicating is hard for me, but I just need a little extra time and patience.
If you have questions or need additional information, please email Barb at
. We look forward to seeing the photos, posts, and engagement next month!