Family Highlight: Meet the Collins Family
Meet the Collins family. Gina, Robbie, and 4-year-old Micah live in Southern California.
Gina believes that having an early diagnosis has helped them tremendously.
How and when did you receive the diagnosis?
We found out during my 2nd trimester. Routine ultrasound. We got referred to a Specialist and
with an MRI they confirmed the findings. He has isolated complete ACC.
What are some challenges you are currently experiencing?
Finding suitable therapy for his needs. Finding more medical research or information on what to expect for his future. Meeting other families that can understand the true struggles of caring and loving someone that requires lots of attention and medical care.
What are some of Micah’s recent successes and celebrations?
Micah is becoming better at communicating. He is nonverbal but very expressive with facial expressions and various body movements. He is utilizing his signs a little more to the best of his abilities. Having this type of communication has limited the meltdowns and frustration. It's a small improvement but it has a big impact.
The Collins family has not attended an NODCC conference in the past but hopes to attend one in the future. Please help welcome them to our wonderful NODCC family!
We celebrate our moms this month and thank them for all they do!
Her love is like
an island in life's ocean,
vast and wide
A peaceful, quiet shelter
From the wind, the rain, the tide.
Tis bound on the north by Hope,
By Patience on the West,
By tender Counsel on the South
And on the East by Rest.
Above it like a beacon light
Shine Faith, and Truth, and Prayer;
And thro' the changing scenes of life
I find a haven there.