News from the NODCC
Happy Mother's Day

In honor of Mother’s Day we wanted to hear from the moms in our community. We asked a few questions & gathered your feedback. The response was so much more than we'd hoped for. As you read through this heartfelt collection our hope is that you are encouraged. Our wish is that you allow yourself to be proud of what you wake up and do every day. Our dream is that you are able to find a moment of joy in the daily tasks that feel monotonous. Each of these quotes are so relatable. You will feel a connection with these mamas and it's important for you to know that you are not alone.

Happy Mother's Day to each and every one of you.

What are you most proud of when it comes to motherhood?

 “Every milestone that’s met, every achievement celebrated no matter how small.”  - Jacqui

 “That I chose life without hesitation for my oldest son after I was told to “consider all my options” when they discovered his P-ACC.  As young as I was, I was exactly the mom he needed, too.” - Krissy

“That two living miracles are walking before me. Sometimes I just look at them and I'm so amazed. It was a 8 year journey to have our first and my dream has become reality” - Kewanna

“Getting through the day to day challenges.” - Jessica

“My kids. How wonderful they are with each other. And, my ability to be a strong advocate for our son.” - Kristy

What have you learned from your child(ren)?

“Patience, compassion, love, flexibility” - Heather

“That their spirit and determination is so incredibly strong. They take on insurmountable challenges and keep on trying and smiling.” - Kristen M.

“I’ve learned to be more patient and understanding and to see things more through her eyes.” - Lori

“Creative Thinking” - Julie

“Keep going! Don't let some diagnoses stop you!” - Kelly

In your day-to-day motherhood journey, what brings you the most joy?

“Watching my kids show love to others and themselves” - Emma

“The sitting together with no agenda, relaxed and being together doing nothing.” -Jaclyn

“Seeing them grow in their abilities” - Anne Marie

“Cuddling my girls, even if we've had a tough day.” - Tracy

What's the best piece of motherhood advice you've received?

“Pick your battles and let it ride” - Amber

“Take it each day,  hour,  moment at a time and just do the next thing. Also, you don't have to make a decision right away... it's OK to take the time to think things through.” - Erin

“Days are long but the years go fast, be present in the little moments.” - Tara

“Progress is progress no matter how slow” - Faith

“Never compare your kids to other kids. All kids develop at their own pace and that is the best pace for them.” - Barbie

Mamas, we celebrate you! You are loved, you are strong, and you are doing an amazing job. Thank you for everything you contribute to this community. We are truly inspired.
Applications for Olam’s Piggybank Assistive Grants 
Opened May 1

The summer cycle for Olam’s Piggybank grants is May 1-31. Thanks to a generous grant from The Swan Foundation, the NODCC provides twice-yearly grants to families and individuals that need assistive devices and technologies. Grant applicants must be impacted by a disorder of the corpus callosum.
Click here to review eligible and non-eligible items and complete the application beginning May 1.
NODCC Conference 2022

Still thinking about attending? We know many families are still making decisions about summer travel. We are so excited about the speakers, experts and sessions planned for this event on June 29-July 3 in Frisco, Texas.

Click HERE to view conference schedule, sessions and speaker lineup.

Click HERE for conference information, registration details, hotel rate

This year we are excited to present a special event hosted by the International Consortium for the Corpus Callosum and Cerebral Connectivity (IRC5) in collaboration with the National Organization for Disorders of the Corpus Callosum (NODCC) on Thursday June 29, 2022 in connection with the 2022 NODCC Conference.

Additional information will be emailed out mid-May.

If you are already registered for the 2022 NODCC Conference this extra event is included with your registration.
Unable to attend? The NODCC has been diligently working on providing a virtual option for those that cannot attend. Virtual registration is $50. This includes access to all live-streamed presentations and additional recorded sessions.

Registration for the virtual program will be available mid-May and will include a list of planned live & recorded sessions.

If you have questions please email
NODCC Golf Tournament is May 21

NODCC President Kevin Hight is hosting a golf tournament fundraiser on May 21 in Summertown, Tennessee. The event will feature a 4-person scramble and will serve as a fundraiser for the 2022 NODCC Conference. Visit our events page HERE for the tournament brochure that can be shared with friends and family in the area.

If you are local we would love to see you out there!
Here are the latest opportunities to get involved with the NODCC community.
Connecting our DCC Community through Virtual Sessions
May Schedule

Connecting people affected by disorders of the corpus callosum is at the heart of what we do at the NODCC. We are excited to increase and improve our community sessions this year and offer presentations and discussions with experts.

Full session descriptions and registration links for each call are included below. Register for the upcoming calls and watch for details on more sessions coming soon!

Expectant Parents and Parents of Newborns with a DCC
May 12, 2022
6:00 pm PST / 7:00 pm MST /8:00 pm CST / 9:00 pm EST
This is a meet and greet session for parents who have newborns or are currently pregnant with a baby with a disorder of the corpus callosum.

Grandparents of the NODCC
May 14, 2022
9:00 am PST / 10:00 am MST /11:00 am CST / 12:00 pm EST
This is a meet and greet session for Grandparents who have a grandchild with a disorder of the corpus callosum.

Parents of Teens with DCC
May 14, 2022
11:00 am PST / 12:00 pm MST /1:00 pm CST / 2:00 pm EST
This is a meet and greet session for parents who have an adult with a disorder of the corpus callosum.

If you would like to suggest a topic for a virtual session, please contact our Community Committee at
Fundraisers & Donations
Matching Gifts:
​Don’t forget to check for matching funds from your employer. Many companies have matching gift programs that will equal or exceed employees’ charitable donation amounts.

Amazon Smile
Did you know that your regular Amazon purchases can help raise money for the NODCC? It's a donation opportunity provided through AmazonSmile. Help the NODCC and encourage your friends and family to list the NODCC as the preferred charity on your Amazon accounts. Start contributing today and add the NODCC to your AmazonSmile. Your quick click here makes a big difference!

Looking for other ways to support? The NODCC is searching for sponsors and partners who want to support our organization. We encourage all readers of the newsletter to send company names or potential company contact information to

Donate to keep our community thriving!

Contact Us
(714) 747-0063