News from the NODCC

Help the NODCC Support 

Medical and Research Programs

Our 2022 Fall Fundraiser is underway, and we need your help to reach our goals! 

The Fall Fundraiser is the National Organization for the Disorders of the Corpus Callosum (NODCC) largest fundraising drive of the year thanks to amazing support from families we’ve received over the years. In the last 9 years, individuals and families have helped raise more than $136,600 through online and offline donations during our Fall Fundraiser! We raised more than $20,000 each year during our top 3 years!

Read our recent blog post on how the Fall Fundraiser directly impacts our work with medical professionals and how we are now focused on impacting research through a global patient registry.

Since 2011, donations to the Fall Fundraiser have helped support the operations of the organization and have funded programs offering the latest information on disorders of the corpus callosum (DCC) including conferences, website, educational videos, translation of ACC and Me books, Medical Outreach Program, and personal response and outreach to families through phone calls and emails. We need your generous contributions to fund these programs.

From October 28 through November 20 there are 3 ways to get involved in our Fall Fundraiser:


1.     Set up a Facebook Fundraiser to benefit the NODCC

It’s easier than ever to raise money online thanks to platforms like Facebook that incorporate fundraising and donations directly the site. Click on “Fundraisers” from your personal Facebook page menu, click “Select Nonprofit” and search for National Organization for Disorders of the Corpus Callosum. This fundraiser can be shared by you and others directly on Facebook.

2.     Join our team and create a personal page on Mighty Cause

Create your own personal fundraising story and page as part of our 2022 Fall Fundraiser Team. We use Mighty Cause (formerly Razoo) because organizations keep 98.6% of donations – the lowest processng fees of online platforms. Connect to our team page here and select Join this Team to get started:

3.     Donate directly through

Make donations directly through our website and share the link to others through email or social media to encourage your network to support the organization. All online donations through our site from Oct. 28-Nov. 5 will be counted toward the Fall Fundraiser.

And did we mention PRIZES and INCENTIVES???

·       The first 5 people who join our team on Mighty Cause (see #2 above) and raise $50 will receive a special gift from the NODCC. 

·       If you raise more than $1,000 between now and November 20 (in any of the three ways above or through an offline donation), you are eligible to receive one free DCC Conference registration to 2024 NODCC Conference!

We hope you will consider joining this important fundraising time for our organization! For questions or more information, reach out to the NODCC Office at

Applications for Olam’s Piggybank Assistive Grants 

Opened Until November 5

The winter cycle for Olam’s Piggybank grants is open until November 5. Thanks to a generous grant from The Swan Foundation, the NODCC provides twice-yearly grants to families and individuals that need assistive devices and technologies. Grant applicants must be impacted by a disorder of the corpus callosum.


Click here to review eligible and non-eligible items and complete the application no later than November 5.

Attention parents, grandparents, adults with DCC & siblings--we need your input for an upcoming Holiday story. Click the link below to answer a few questions and share your traditions. We'll close the link when we've received enough input. Thank YOU!

Here are the latest opportunities to get involved with the NODCC community.

Connecting our DCC Community through Virtual Sessions

November Schedule

Connecting people affected by disorders of the corpus callosum is at the heart of what we do at the NODCC. We are excited to increase and improve our community sessions this year and offer presentations and discussions with experts.

Full session descriptions and registration links for each call are included below. Register for the upcoming calls and watch for details on more sessions coming soon!

Young Kids with a DCC

Ages 6-10

November 26, 2022

11:30 am PST / 12:30 pm MST/

1:30 pm CST / 2:30 pm EST

This is a meet and greet session for children with a DCC ages 6-10.

Register Here

Grandparents of the NODCC

November 26, 2022

8:30 am PST / 9:30 am MST/

10:30 am CST / 11:30 pm EST

This is a meet and greet session for Grandparents who have a grandchild with a disorder of the corpus callosum.

Register Here

Dads of the NODCC

January 3, 2022

4:30 pm PST / 5:30 pm MST/ 6:30 pm CST / 7:30 pm EST

This is a meet and greet session for dads who have a child with a disorder of the corpus callosum. 

Register Here

If you would like to suggest a topic for a virtual session, please contact our Community Committee at

Fundraisers & Donations

Show Your Support for the NODCC Through Annual Membership


The NODCC was founded to help those who are caring for someone with a disorder of the corpus callosum (DCC) or an individual living with a DCC by providing information and resources, as well as facilitating connections and resource sharing between members. Much of our work in connecting people and reassuring recently diagnosed families requires time and a personal touch. We know that speaking to someone or receiving an email response to your questions is important. 


Your NODCC membership helps fund resources as well as our part-time director who can connect individuals and families with the information they need as well as other families within our community. More importantly, your membership represents your commitment to helping the NODCC continue to grow as the leading organization supporting DCC.


The online membership form can be accessed at:


We hope that you will show your support for the NODCC by becoming a member of the or renewing your membership today.

Matching Gifts:

​Don’t forget to check for matching funds from your employer. Many companies have matching gift programs that will equal or exceed employees’ charitable donation amounts.

Amazon Smile

Did you know that your regular Amazon purchases can help raise money for the NODCC? It's a donation opportunity provided through AmazonSmile. Help the NODCC and encourage your friends and family to list the NODCC as the preferred charity on your Amazon accounts. Start contributing today and add the NODCC to your AmazonSmile. Your quick clickheremakes a big difference!

Facebook Fundraisers

Fundraising for charities on Facebook is an easy way to help raise money for the NODCC. Simply click on the “Support Nonprofit” option when creating a new Facebook post and select the NODCC as the recipient. Birthdays, memorials, remembrances, and celebrations are great events to encourage giving from your family and friends.

Looking for other ways to support? The NODCC is searching for sponsors and partners who want to support our organization. We encourage all readers of the newsletter to send company names or potential company contact information

Donate to keep our community thriving!


Contact Us
(714) 747-0063
Click on the icons to follow us!
Facebook  Twitter  Youtube