NODCC Conference 2022 Wrap Up
The 2022 NODCC Conference in Frisco, Texas was an amazing experience. We had 454 registered attendees, 50% of those were first-time attendees. For the first time ever we hosted our conference with a virtual option. We had over 70 people join us from all over the world online.
This year we started off with a special event on Thursday, The Cortical Connections 2022 Research Updates Seminar. Presented by the International Research Consortium for the Corpus Callosum and Cerebral Connectivity (IRC5). This full day seminar included research lectures by the most prominent scientists in the study of corpus callosum disorders. Over 70 lecture & discussion groups were presented throughout the weekend. We had a great time Saturday night kicking off the NODCC 20 year anniversary celebration with dinner, DJ and dancing.
We had 62 Adults with DCC attend sessions especially designed with them in mind. A huge "THANKS" goes out to Mitchell Spezzafeeri, Ashley Vaillancourt & the team from Fuller for coordinating the Adults with DCC program. Emma Charles led our 32 Teens & Adult Siblings sessions again this year. They had a great time going to the baseball game & go carting and cannot wait to see each other in 2024!
Here are some reactions to attending this years conference:
I sat in a chair beside Chris in quiet anticipation of the first session, glancing meekly at the other parents sitting near me. There was a nervous energy in the air of the divided ballroom. This was the first session of my very first NODCC Conference in Frisco, TX this past July.
These were the parents who understood what it was like to be given terrifying news about their child– they knew what it was to leave appointments with more questions than answers.
These were the parents who understand the ins and outs of MRIs, EEGs, seizures, IEPs, therapies, and devices.
These are the parents who understand what it is to second guess your decisions and hope that you’re making the best choices for your child.
These are the parents who understand the purest form of joy that a child with a disability can bring to the family.
Read her complete blog post at https://www.raisingbklyn.com/post/a-new-extended-family-nodcc
~Stephanie Gaur, First time attend parent & mother to Brooklynn
The 2022 conference was a great time of reconnecting with faces I hadn’t seen in 4 years or more, and connecting with the first time attendees that I felt like I’ve known my whole life. That’s what made this years conference special-was the connection. I’ve always said it’s like one big family reunion, a place I feel at home. A space I can be myself, around others who are themselves. There was lots of laughter, meaningful conversations, and fun activities to participate in.
~Sarah Mellnik, Adult with DCC
As I reflect on our conference from this past year I am constantly reminded of all the wonderful and amazing people that I had the pleasure of connecting with over those 3 days. As someone who was attending my 5th conference, my experiences have changed over the years. When I first started coming it was all about gaining knowledge and information. How could I best serve and care for Josiah? This is still a theme for me but my focus has shifted more towards meeting people and sharing life with them. I’ve also started to see myself a little as someone who can offer some advice, not because I have all the answers but because I have years of experience with Josiah. It doesn’t mean that my advice can apply to everyone but I have found myself meeting people and just shooting the breeze with them. Those moments are what I remember most about Frisco. It was so great to be back together after 4 years apart and I can’t wait for our next conference in 2 years.
~Mike Molettiere, Father to Jonah
If you weren't able to make it to Texas we missed you. Start planning now on attending in two years in the Washington DC area. More information as we firm up location and date.
A very special "thanks" to Barbara for coordinating the conference, her fabulous team of Texas families, all the Fonseca family members who helped out and the numerous friends and volunteers! Without you the conference would not run as smoothly as it did. Great Job!!
** Podcast from the conference will be available on our YouTube channel later in the year. https://www.youtube.com/c/NodccOrg