In this edition, Compliance Corner Federal Reports, remembering Graham Mulholland, DICLC from New York, Coalition Building, and more...

Questions/comments or to submit content for consideration, contact
Angela Castillo-Epps or call 202-506-5813, ext. 100.
Federal Reports
The FFY 2020 Program Performance Report (PPR) is due January 1, 2021. OIDD Program staff will let you know if there is a change to the due date and will provide updates on a new reporting system soon. The Guidance for Completing the Program Performance Report has been updated and is available on the website.
The FFY 2021 State Plan update is due January 1, 2021. The updated guidance document for completing the State Plan update is available on the website. We are not planning a webinar to review the report requirements; instead, we will provide a resource you can use to develop your update. The ITACC Rapid Response service is also available for one-on-one assistance.
Frequently asked question:
Question. Will the report content change?
Answer. No. There are no changes to any reporting items and the performance measures remain the same. 
SF-425 Federal Financial Reports are due by December 31, 2020. Councils should submit a final report for the FY 2018 grant, a second annual report for the FY 2019 grant, and the first annual report for the FY 2020 grant. Please review your Notice of Award for instructions on where to submit the reports.

FY 2021 Notice of Award
The first Notice of Award for FFY 2021 was sent on October 27, 2020. If you did not receive a copy of this notice, please contact your assigned OIDD Program Specialist.

Remembering Graham Mulholland
Graham holding plaque
Lessons Learned, from a Brilliant thinker and Colleague

The PA Developmental Disabilities Council remembers former Executive Director, Graham Mulholland. Graham served as Executive Director from 1997 through his retirement in 2019. Graham was revered for his intellectual approach to differences in all people.

He was a brilliant thinker and visionary. Graham believed that people with disabilities do not need to change; rather, it is the broad community and society that needs to change to include all people who are marginalized. Here are his own words from an interview for Visionary Voices in 2011:
"It really seems to me from my experience, that we need to start accepting that some people look different, some people behave different, and our task in the disability advocacy community is to help all those so—called "normal people" to come to terms, and so the target of change for me throughout my career and increasingly recently has been to say, "How do you change the dominant culture to accept a diversity?" That is, disability diversity, just like it's finally become acceptable to accept diversity on racial, ethnic, sexual, or religious grounds."

It would take pages to cite the many lessons that people in PA and across the country have learned from Graham's words and actions. Please see a few modified excerpts from the Route to Success Matrix. This matrix can support DD Councils in developing and tracking a project's process for successful systems change. A cornerstone of DD Council work.

Key factors of the matrix include but are not limited to:

Create knowledge base - Identify specific problems, collect data and unmet needs, examine solutions, best practices, or barriers, and share information widely.

Select social strategies - Identify limits to the action needed. Establish clear goals, engage people that can support the Council's efforts. Organize support from institutions, recognize and celebrate successes of the efforts. Establish and gather data to address the barriers. Engage a range of stakeholders to become involved and use coalition building to address identified problems and issues.

Create stakeholder will - To create momentum, identify who cares about the project/problem or situation, connect the problem to other groups of people, build on successful efforts, involve like-minded stakeholders to develop an action plan, foster collaboration and develop content that all stakeholders can use and share.

Support Policy entrepreneurs - Policy entrepreneurs are champions of a cause. They are willing to take a public stand about the importance of an issue or a possible solution to a problem. While projects don’t necessarily have to have a policy entrepreneur, those that have them use them and celebrate them.

Use unexpected events - Be prepared and ready to seize opportunities from unexpected events. Sometimes the event celebrates a wonderful new step toward a goal; sometimes the event highlights a crisis or a terrible problem for the services system. In either case, take advantage of these opportunities for the additional momentum they may give.

For even more insight and reflections from Graham Mulholland, click on the Visionary Voices interview linked below. His colleagues, advocates and their families will carry forward his lessons for many years to come.
Copyright © 2004-2020, Institute on Disabilities Website Updates
Program Performance Reports Page
Additional PPR Resources
This updated document written by ITACC summarizes the Annual PPR report requirements for a Council on Developmental Disabilities. Included in the document are character limitations, descriptions of elements to include in each section, instructions, guidance and examples.

Home Page

State Plan Amendment/Update Page
State Plan Development
Five Year State Plan Development
The plan is due on August 15, 2021.

SAVE-the-DATE: ITACC will have a CRA Zoom meeting on November 23, 2020 at 4:00pm Eastern.
This meeting is for everyone, especially Executive Directors and staff that are new to the Five Year State Plan development process. The CRA content will include an overview of the purpose and intent, required elements, resources for data and more. Participants will receive strategies for CRA development from experienced DD Council staff and engage in a question and answer session. Zoom meeting link and materials will be sent by email. This meeting will be recorded and posted.

The Comprehensive Review and Analysis (CRA) section of the Five Year State Plan is more than a needs assessment of a state or territory. The CRA is a collection of data and analysis that provides an understanding of the services, supports, and other assistance available to individuals with developmental disabilities and their families. The CRA includes information about the unmet needs for services, supports, and other assistance available as well.

Additional links to support CRA development:

CRA Webinar PowerPoint from 2/27/2020

Data resources:
State of the States website - State of the States in Intellectual and Developmental Disabilities Project, administered by the University of Colorado. The Project is funded by the Administration on Disabilities, U.S. Department of Health and Human Services, and by the University of Colorado School of Medicine, Department of Psychiatry.

RISP website - Residential Information Systems Project (RISP) is a longitudinal study of long-term supports and services (LTSS) that people with intellectual and developmental disabilities (IDD) receive.

Census data - United States Census – Statistical Atlas/Overview of the United States (This data is from the US Census)

If you are looking for a resource and cannot find it on the page, contact Angela at or call 202-506-5813, ext. 100.
Ramirez June Developmental Disabilities Navigator ~ New York DDPC

The New York State Developmental Disabilities Planning Council (DDPC) is piloting a 3-year initiative with the New York State Office for New Americans (ONA). ONA currently has 24 Opportunity Centers across New York that are in community-based organizations and provide vital services such as, assistance with preparing for naturalization and citizenship, free legal consultations, and community workshops. In addition, ONA has eight Immigrant Community Navigators who conduct targeted outreach and share important information and updates with immigrant communities across the state. 

By partnering with ONA, the DDPC was able to connect to a trusted statewide network with strong and long-standing ties to new American communities in New York. Similarly, the DDPC was able to provide guidance on people with intellectual and developmental disabilities to help build the capacity of ONA staff, their community-based partners and their New Americans Hotline (1-800-566-7636).The hotline provides confidential referrals to all of ONA’s programs, to serve people with intellectual and developmental disabilities (IDD).

The initiative created the Ramirez June Developmental Disabilities Navigator within ONA. The Navigator is working to increase ONA’s capacity to serve people with IDD, engaging new Americans in workshops about IDD resources in our state, and identifying barriers that new Americans with IDD and their families face.

The Ramirez June Developmental Disabilities Navigator has achieved the following so far:
  • Trained 23 staff from the Office for New Americans (ONA) state office and ONA’s partner agencies on New York State services for individuals with intellectual and developmental disabilities.
  • Delivered over 10 workshops across New York to immigrant communities and other key partners.
  • Provided hands-on support to new American families facing significant barriers accessing services.
  • Drafted a Developmental Disabilities Resource Guide for New Americans that will be translated into top languages spoken in New York. 
  • Currently creating a resource book for new American families to increase knowledge of developmental milestones and promote the early identification of developmental delays or disabilities.
  • Strategies:
  • Collaborate with agencies or other community-based organizations that have existing strong ties to immigrant communities.
  • Translate outreach materials about programs and workshops into top languages spoken by the IDD immigrant community.
  • Ensure interpretation services are provided during events or workshops.
  • Consider partnering with organizations like Consulates, resettlement organizations, libraries, legal aid offices, community-based immigrant organizations. 
  • Incorporate other key issues that are important to the community in event or workshop planning.
  • Identify systemic barriers, like language access, for potential future work.

For more information, see the resources linked below.

If you have state/territory specific questions related to DICLC, contact Angela Castillo-Epps at
Digital Divide Report
DATA from Common Sense
Shrinking the digital divide

Connect All Students: How States and School Districts Can Close the Digital Divide

This report was developed with the Education Superhighway (A nonprofit organization founded with the mission of upgrading the internet access in every public school classroom in America) and the Boston Consulting Group.

The report includes data from the millions of students using online learning and shows three steps that states and school districts can take to close the K–12 digital divide. Solutions in this report are based on evidence from states and school districts across the country that have successfully addressed the divide during the pandemic.

Councils may be able to use this information as a source of general education for Council members, potential grantees and communities to develop possible strategies to decrease the divide in its states and territories. Click on the button below to download the full report.
DD Act Education
Developmental Disabilities Assistance and Bill of Rights Act of 2000

COALITION DEVELOPMENT AND CITIZEN PARTICIPATION.—The Council may support and conduct activities to educate the public about the capabilities, preferences, and needs of individuals with developmental disabilities and their families and to develop and support coalitions that support the policy agenda of the Council, including training in self-advocacy, education of policymakers, and citizen leadership skills. (Section 125 (c)(5)(I))
For years, DD Councils have identified with the role of convener or one that calls people together to address a cause. Through its unique and diverse membership, Councils have access to a variety of critical organizations and agencies. Coalition development is just one way to support the coming together of key stakeholders to address the needs of people with DD and their families, and the issues and barriers that affect their lives.

The MD DD Council is just one example of how Coalition development can be linked to public policy priorities. The Maryland Developmental Disabilities Coalition works together to support systems change that is responsive to the needs of people with DD and their families. The Coalition is ready to act and advocate on a variety of issues.

The Coalition also supports Developmental Disabilities Day at the Legislature, an annual event that brings together advocates and other stakeholders to educate and inform policymakers on topics related to rights and quality of life. (The Maryland DD Coalition consists of The Arc of Maryland, Maryland Association of Community Services, Maryland Developmental Disabilities Council, Disability Rights Maryland -MD’s P&A, and People on the Go of Maryland - MD’s statewide self-advocacy organization) 

Think about how this DD Act strategy could support the representation of agencies, people with developmental disabilities and their families to educate, advocate and advance important policies for your State or Territorial Council.
To reach NACDD/ITACC staff, please feel free to contact:

Sheryl Matney Director of Technical Assistance
202-506-5813 ext. 148,

Angela Castillo-Epps Technical Assistance Specialist 
202-506-5813 ext. 100,