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NYAIL News 2024

Advocacy Updates, Webinar Series and Center Spotlights and Sharing Successes

Thank you for taking the time to read the monthly newsletter from the New York Association on Independent Living (NYAIL). Do you have job postings, events, or suggestions to improve our newsletter? Send any information to NYAIL’s Communications Specialist Blaise Bryant.

Advocacy Updates

Group of 100 advocates in front of I Love NY sign. The photo shows people holding signs reading Fund Access to Home , CDPA is Essential, and Support Independent Living Funding while some chanted with fists in the air!

Click image above to watch short video of our day in action!

April brings us showers, May flowers, and a late budget not fully prioritizing the needs of New Yorkers with disabilities. Throughout March we have been focusing on three key priorities: increased funding for both Independent Living Centers (ILCs)/inclusion in the human services Cost of Living Adjustment (COLA), the Access to Home Program, and preventing significant, discriminatory cuts to the Consumer Directed Personal Assistance Program (CDPAP). Below is a brief summary of where things stand in terms of our top priorities. This is all subject to change once the Assembly, Senate, and Governor all agree on the state budget.


Increased funding for ILCs

  • Governor Hochul: no increase for ILCs, leaving the network level-funded at $16 million.
  • Senate: included our $2 million ask in their one-house budget, and included language to include ILCs in Cost of Living Adjustment increases like other human service agencies.
  • Assembly: level funds ILCs at $16 million.


Access to Home:

  • Governor Hochul: cut $2 million from the program bringing total funding to $1 million.
  • Senate: restored $2 million cuts and added an additional $1 million of funding to equal $4 million.
  • Assembly: restored $2 million cut.


CDPAP:

  • Governor: eliminates Designated Representatives who assist people with disabilities unable to self-direct their homecare due to disability, language barrier, children under 18, or other reasons. This would be a roughly 40% cut in program users statewide. Also eliminates wage parity for downstate homecare workers, and makes changes to how Fiscal Intermediaries (FI)s are authorized to continue operating which could jeopardize the role of Independent Living Centers in the program.
  • Senate: rejects Governor Hochul’s cuts to program eligibility and wage parity cuts. However, in recent budget negotiations they are rumored to be discussing carving CDPA out of future minimum wage increases.
  • Assembly: also rejected the Governor’s cuts to eligibility and wage parity. However, in budget negotiations they have discussed a shift to one statewide FI to administer the program. This would eliminate consumer choice by not giving people with disabilities or their Designated Representatives options for which agency they want to use to pay their aide. Additionally, they want to have a minimum of 20-40 hours to qualify for CDPA.


How can you help? Signing up for our action alerts is the best way to share your story with the Assemblymember and Senator who represent your area. Whether you, or someone you know works for an ILC, uses CDPA, or would benefit from home modifications human impact stories are the most effective way to make change. If you would like help sharing your story reach out to our Communications Specialist Blaise Bryant.

Sharing Successes

photo of Tanisha Wiggins from ARISE ILC

One of the most important aspects of Independent Living is transitioning people out of institutional settings (i.e. nursing homes) back to the community. Meet Tanisha Wiggins, a Housing Specialist at ARISE in Syracuse. Read this story on our website, Peer (ilny.us), of how this young mother of two balances being a parent with disabilities, pursuing her degree, and helping people who want to return to the community.



Webinar Series

Screenshot of slide from presentation - NY Able Program Progression- text on screen says The ABLE Act became federal law in 2014 and authorized the creation of qualified ABLE Programs by individual states. • The federal ABLE Act allowed individuals with disabilities to save more than the $2,000 asset cap which had been previously applied to their SSI, Medicaid, and other Benefit eligibility. • New York’s ABLE Act was signed into law in December 2015 and launched in 2017. • As of December 1, 2023, NY ABLE had 2,974 open accounts, with over $31 million invested. Since launched, NY ABLE account owners have withdrawn over $17.5 million on qualified disability expenses.

Click image above to take you directly to the presentation on our YouTube channel. Please don't forget to subscribe and sign up for notifications.

In March Jenna McClosky with the NY Achieving a Better Life Experience (ABLE) Program provided an overview on the many ways NYABLE can be a financial resource for people with disabilities. Visit our Training and Education page to view the presentation, watch the recording, or contact Jenna. Note: if you need the recording with ASL or captioning click on the YouTube link because at this time Zoom’s cloud recording feature for archiving the webinars does not support the added accessibility. Due to budget advocacy being our top priority this time of year we have not been able to confirm a webinar for April. Keep an eye on your inbox for more information on our webinar series!


Center Spotlight

Executive Director, Denise Figueroa seated in a wheelchair accepting an award at the Women's History Luncheon from  Governor Hochul

Our member ILCs do great work in the community. Check out some upcoming events, new partnerships, and more!


  • Independent Living Center of the Hudson Valley (ILCHV) Executive Director Denise Figueroa was honored by Governor Kathy Hochul during a Women’s History Month luncheon. Denise continues to be a tremendous advocate for people with disabilities since playing a key role in developing the Independent Living Movement here in New York.



  • Western NY Independent Living’s Independent Living of the Genesee Region is hosting a luncheon simulating vision loss on April 25 from 11:30 a.m.-1:30 p.m. at the NYS School for the Blind in Batavia.


  • Southern Adirondack Independent Living (SAIL) recently launched a new initiative allowing businesses, event organizers, and community members to borrow Access Tracks to help people with disabilities navigate various environments more accessibly. This partnership is possible through the Technology-related Assistance for Individuals with Disabilities (TRAID) program, allowing New Yorkers with disabilities access to assistive technology. SAIL is one of several regional TRAID Centers which provide the assistive tech. Click here to learn more about the TRAID Program!
Newsletter ideas can be sent to bbryant@ilny.org for consideration.
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Contact Us
Lindsay Miller
Executive Director 
Alex Thompson
Director of Advocacy  
Blaise Bryant
Communications Specialist
New York Association on Independent Living
155 Washington Ave., Suite 208
Albany, NY 12210
Phone 518.465.4650 Fax 518.465.4625
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