NYSCRC Newsletter September 2016

Building Networks of Volunteer Respite 
" It Takes A Community"
Desmond Hotel and Conference Center
660 Albany Shaker Road
Albany, NY  12211

Wednesday November 9th
Registration and Networking 9:00-10:00
Conference 10:00-3:00

This conference is being designed to educate faith communities, non profit and government organizations on the "how to" for establishing and maintaining volunteer respite programs in their own communities.
 Keynote Speaker:
Jill Kagan - Director - ARCH National Respite Network and Resource Center.

ARCH is funded by the US Administration for Community Living.  She has served on numerous national advisory boards, including her current role on the National Advisory Council to the federally funded Family Support Research & Training Center. Ms. Kagan represents ARCH on several prominent national coalitions, including the newly formed core advisory group to the Assisting Caregivers Today (ACT) Congressional Caucus and the National Child Abuse Prevention Partners of the Children's Bureau. She is co-chair of the Elizabeth Dole Foundation's Respite Impact Council of the Military Caregivers Coalition, co-chair of the Autism, Developmental Disabilities and Family Support Task Force of the Consortium for Citizens with Disabilities, and facilitator of the national Lifespan Respite Task Force.
Prior to this, Ms. Kagan served as deputy staff director and as professional staff for ten years to the Select Committee on Children, Youth, and Families in the U.S. House of Representatives. She also worked as a policy consultant to national disability, aging, and child health organizations for more than 15 years.
Ms. Kagan received her masters in public health in maternal and child health from the University of North Carolina at Chapel Hill, and her bachelor's degree from Brandeis University, Waltham, Massachusetts.
Generously Sponsored by

Daphne Johnston will be presenting on the journey of the Respite Ministry at the First United Methodist Church in Montgomery Alabama
Daphne Johnston has been involved in senior administration for 15 years and currently leads the Respite Ministry in Montgomery, Alabama. The Respite Ministry serves over 200 people with Alzheimer's disease and dementia and includes 120 dementia trained volunteers from eight different churches and two synagogues. Ms. Johnston's volunteer model of care has drawn the attention of the University of Alabama's School of Medicine as they work to partner with other volunteer programs around the southeast United States. Ms. Johnston is an advocate for those living with memory loss and has made it her personal mission to help families, clergy and professionals better understand that trained volunteers can be the heart of community Alzheimer's programs. Ms. Johnston holds a bachelor's degree in sociology from Lagrange College and received her MA in Gerontology and Public Administration from the University of West Georgia.

This ministry a shining example of how one congregation has found the beauty, value, the meaning and purpose of an adult respite ministry.

Just one person with passion and vision can make all the difference for people of all level of abilities and their caregivers, while at the same time transforming a faith community.
The ministry charges $30 a day to support the program.
Daphne says, "not everyone can pay, but there are plenty that can - and they pay for those who can't!"
The ministry has received several donations of more than $25,000 each.  "Not everyone can volunteer but there are still many who want to help in anyway they can."
Daphne says.....
"You are just not in the cool crowd, if you are not doing respite."

The Neurology Department at UAB (University of Alabama at Birmingham) is establishing a formal partnership with the respite ministry and has referred more than 30 clients because there has been a significant increase in scores on the mini mental exam of patients who attend the program.

featuring Daphne Johnston
Are YOU or someone you know the special person that could take it in your community?
Then the NYSCRC conference is for you!
Come hear Daphne's amazing story!!!!


Finger Lakes Region Announcement
In partnership with Ithaca College and the Finger Lakes Geriatric Education Center this first session will be held on October 6th and 7th in the Finger Lakes Region.

5102 Parrish Street Ext.
Canandaigua, NY  14424

This training and materials will be provided for organization and faith communities for the following counties:

Allegany, Cayuga, Chemung, Cortland, Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Schuyler, Steuben, Tioga, Tompkins, Wayne, Wyoming, Yates
Value: $595 per Trainer -
Registration fee $25 per person
Sign up NOW! Space is limited.
Application Deadline - September 26th

The Coalition will be offering Train the Trainer opportunities by region throughout the state.

For information on bringing REST to your region, contact Doris Green
NYSCRC Mini Grant Applications
Organization receiving mini grant awards will be notified via email by September 15th.

Caregiver Coordinator Fall Forums
All the forums have been canceled due to an overwhelming amount of training that AAA's are experiencing this fall. Caregiver Coordinator training will be offered in the future. More information to come.

Be sure to let us know if you have a respite program, event or cause that you would like  featured in the monthly newsletter!
We are here to help support your efforts! 
All submissions are due by the25th of the month
New York State Caregiver and Respite Coalition
Managed by Lifespan
Doris Green - NYSCRC - Director
585-287-6393   Email