Working to ensure that all caregivers receive the respite and support they need.

Welcome to the New Universe: The Intersection of Aging and Addiction.  By Dr. Larry T. Force - Keynote from the 2017 NYSCRC State Conference  See NYSCRC Blog here

2018 Regional Caregiver Forums
The Association on Aging in New York encourages staff who oversee and provide
Caregiving and/or NY Connects services, as well as those in the KinCare Coalition Network, to attend the Spring 2018 Regional Caregiver Forums, "Caregiving and Respite Across the Lifespan: Linkages and Partnerships".

2018 Lifespan Respite Sustainability Summit
The purpose of the Summit is to strengthen state and community partnerships to sustain Lifespan Respite activities; develop strategies to maximize use of existing respite resources and identify and leverage new respite funds; engage in sustainability planning and/or generate innovative activities for future development.  Plan on being apart of this important and exciting event
To be held in Albany, New York
Hosted by the New York State Caregiving and Respite Coalition
May 18, 2018
Hearst Media Center
Details Coming Soon

2019 ARCH National Respite Conference
Buffalo, New York
Hosted by the New York State Caregiving and Respite Coalition
Adam's Mark and Hotel and Conference Center
May 1-2, 2019
Details Coming soon!

If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the Coalition can connect you with a REST Trainer in your area.

For information contact Doris Green

Upcoming Companion Trainings:
CareFirst- Painted Post
Wednesday May 22nd - Painted Post NY
Upcoming Train the Trainer Session:
CareFirst - Painted Post
Thursday - Friday - May 17 - 18 | 9:00-5:00 both days
  Thursday -Friday - May 31 - June 1 | 9:00-5:00 both days
Calling All REST Trainers - NYSCRC Monthly Networking Call
Monday April 16th  Details Here

Legislative Updates

Senate Passes Supporting Grandparents Raising Grandchildren Act (S. 1091)

On March 22, 2018, the Senate passed the Supporting Grandparents Raising Grandchildren Act (S. 1091), which would create a federal task force charged with supporting grandparents raising grandchildren. The opioid epidemic has fueled increases in the number of relative caregivers in need of support. The task force is charged with identifying, promoting, coordinating, and publicly disseminating information and resources to help grandparents or other relatives meet the needs of the children in their care and maintain their own health and emotional well-being. The task force terminates after five years. The bill was originally introduced by U.S. Senate Special Committee on Aging Chairman Susan Collins (R-ME) and Ranking Member Bob Casey (D-PA). The U.S. House of Representatives must pass the legislation before it becomes law.  Press Release

President Signs FY 2018 Omnibus Appropriations Bill

On March 23, after tweeting that he would not sign the bill because it did not include provisions protecting Deferred Action for Childhood Arrivals program (DACA) recipients or funding for a border wall, the President signed an omnibus spending measure (Public Law No. 115-141), averting a government shutdown. The bill sets federal spending levels for appropriated government programs for FY 2018, which started last October 1 and will end September 30, 2018.  

CDC Updated Disability and Health | NYS Profile
This fact sheet provides an overview of disability in New York compared to national estimates
How to Talk with Anyone About Mental Health video

Bring Change to Mind is a nonprofit organization dedicated to encouraging dialogue about mental health, and to raising awareness, understanding, and empathy.
Actress & activist Glenn Close co-founded Bring Change to Mind in 2010 after her sister, Jessie Close, was diagnosed with bipolar disorder, and her nephew, Calen Pick, with schizoaffective disorder.
Every individual who speaks out inspires another. And another. That's how we'll end the stigma around mental illness. That's how we'll Bring Change to Mind.

2018 Alzheimer's Facts and Figures
The Alzheimer's Association recently released their annual Alzheimer's Disease Facts and Figures report, and the numbers are startling. This annual report reveals the burden of Alzheimer's and other dementias on individuals, caregivers, and the nation's health care system. Read the report HERE. 

2016 Disability Status Report: United States
This annual report from Cornell University provides a summary of the most recent demographic and economic statistics on the non-institutionalized population with disabilities. The report includes information about the population size and disability prevalence for various demographic subpopulations. Statistics related to employment, earnings, household income, veterans' service-connected disability and health insurance are also included

New ARCH Fact Sheet: 9 Steps to Respite care for Children and Adults with Intellectual and Developmental Disabilities
This newest fact sheet addresses the unique needs of children and adults with intellectual and developmental disabilities and their caregivers and provides a comprehensive list of resources specific to this population.
Download the Fact Sheet or view in flip pages.

Caregiver Survey now Available at NYSCRC.ORG
Caregivers alone provide 80% of all long-term care in NYS. NYSCRC understands the unique needs of caregivers. Through training and education, we focus on increasing caregiver access to respite resources. The Caregiver Self Assessment Survey is designed to assist caregivers in recognizing the importance of self-care. 

NYSCRC Virtual Resource Center
NYSCRC provides a variety of  resources and training opportunities for professionals and caregivers.  Click on the desired training for description.


Caregiver Simulation Event Scheduled

Everyone Welcome!!


Friday June 15th - Sponsored by the Chemung County Department of Aging & Long Term Care


Often people who have not yet found themselves in a caregiving relationship cannot imaging the day-in and day-out financial, emotional, physical, spiritual and societal impact it has on a person.  Be prepared to walk away from this event changed!


Powerful Tools for Caregivers

Upcoming Trainings

Livingston-Geneseo - 6 Wednesdays starting April 18th | 1:00-3:30

Seneca - Waterloo - Six Fridays starting April 2oth | 1:00-2:30

Finger Lakes Caregiver Institute Powerful Tools Spring Schedule

Steuben | Wayne | Yates | Seneca | Ontario | Livingston | Chemung


Additional NYSCRC Training Resources

Speaker Services

Share the Care

Mindfulness for Caregivers

LifeCourse Tools

To schedule events or have your events posted in the newsletter - please contact Doris Green | 585-287-6393


Conferences and Webinars

Webinar: No Wrong Door Webinar: Supporting Community Living for Veterans Promising Practices
Administration for Community Living
Tuesday, April 10
1:00 p.m. to 2:00 p.m. ET 

The Administration for Community Living (ACL) is hosting a webinar to highlight promising practices for the aging and disability networks, Veterans Affairs Medical Centers, and Veterans Benefits Offices to forge partnerships and better support community living for veterans. During the webinar staff from ACL, the AARP Public Policy Institute, the VA Medical Center, a State Unit on Aging, and an Area Agency on Aging will present information about promising practices and how they can be replicated.  Register here

NAC Webinar - Rare Disease Caregiving in America
April 18th 4 PM | Online
A national research study capturing the experiences of more than 1,400 family caregivers of children and adults with a rare disease, condition, or disorder across 400 different diseases. Read Report
Join this national webinar for an overview of this groundbreaking report and to share your questions and insights into rare caregiving. Register HERE.  
Dementia Care Symposium - Alzheimer's Association
April 27th, 2018 |Cheektowaga, NY  See Details

ACUU (Aging Concerns Unite Us) - June 5th - June 6th
Albany, NY - Desmond Hotel  See Details
NYSCRC Annual Business Meeting - Tuesday June 5th 4:30-5:30 - The Desmond Hotel Suite 112
Thank you to the Association on Aging for providing space during ACUU.

State Society on Aging Conference (SSA) - Saratoga Springs
October 25-27, 2018
 "The Many Worlds of Aging: Implications for Policy, Research, Education and Practice."   more information available at
2018 FLGEC Conference - Healthy Aging in Rural NY: Emerging Strategies for Local Communities
April 18th 8:30 - 5:00
Watkins Glen Harbor Hotel
Registration opens March 2nd - click here to register
Finger Lakes Geriatric Education Center
Spanning the Continuum of Care: Innovations in Geriatric Heath Practice
Friday September 29th  - Click Here
Interantional Short Break Association - Worldwide Conference
"Opportunities and Co-Creation"
October 9-11, 2018  Reykjavik, Iceland  ISBA website


To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

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