Working to ensure that all caregivers receive the respite and support they need.

2018 NYSCRC Sustainability Summit

October 18, 2018
Hearst Media Center, Albany, NY

Presented by NYSCRC in partnership with the Administration on Community Living, ARCH National Respite, NYSOFA and Lifespan of Greater Rochester. 
The purpose of the Summit is to: strengthen state and community partnerships to sustain Lifespan Respite activities; develop strategies to maximize use of existing respite resources and identify and leverage new respite funds; engage in sustainability planning; and generate innovative activities for future development.
Consistent with other states' summits, this event aims to connect policymakers, researchers, family caregivers, and statewide partners to exchange knowledge and expertise, leading to the development of a statewide strategy for strengthening the respite care system for all individuals and caregivers, across the lifespan.
This is an Invitation  Event. We are seeking participants interested in this working Summit for disciplines across the age and disability Spectrum. For more information or a request to attend, please contact Doris Green
Share the Care with Sheila Warnock
September 13, 2018 |CareFirst | Painted Post
This FREE one-day SHARE THE CARE™ training will provide you with the information and tools you need to introduce the model to help family caregivers. You'll receive a copy of the Share The Care handbook, a 98-page training manual with electronic notes, all 23 Share The Care™ forms, and first-hand advice to guide you through every step in the process of organizing a Share The Care group and keep it functioning even when times are tough. This knowledge will allow you to offer information, support and concrete suggestions to new groups just getting started

The Share The Care™ model has helped patients and families across the USA and other countries manage the caregiving needs of multiple illnesses, disabilities, or difficulties associated with aging. This unique team approach systematically creates a network of friends, neighbors, work colleagues, etc. to provide caregiving help for the patient and their entire family as well as emotional support for all the caregivers involved.
Finger Lakes counties specific - Limited space available

ARCH National Respite Conference

Illuminate Respite! The Call for Presentations is now open for the 2019 ARCH National Lifespan Respite Conference to be held in Buffalo, New York, April 30-May 2, 2019. Proposals for breakout sessions are being accepted until the deadline, September 1, 2018.
The ARCH National Respite Network and Resource Center and its co-hosts, the New York State Caregiving and Respite Coalition and the New York State Office for the Aging, invite you to  submit a proposal  to participate in the only national conference focused on shining a light on innovation and quality in respite services for family caregivers of children and adults.
The theme, Illuminate Respite! is inspired by the rich history of Buffalo, located on the shores of Lake Erie near Niagara Falls. In the late 19th century, Buffalo was the first city to implement widespread streetlights, earning it the nickname, "The City of Light." During this time Buffalo was a hub of innovation, using the natural power of Niagara Falls to bring light and growth to the city. This conference will provide a space to harness the power of the respite network to explore and formulate strategies to meet the respite needs of the nation's 43 million family caregivers.
We welcome proposals for breakout sessions on any aspect of planned or emergency respite service delivery, streamlined access, research, evaluation, policy, best practices or innovation.
Call for Presentations                                            

Funding Opportunities
The Tower Foundation has issued an RFP for grants that have the potential to support respite services for children and youth with I/DD, mental health issues, learning disabilities, or substance use disorders. Deadline for preliminary applications is  August 22.  Request for Proposal


This Foundation funds services in Erie and Niagara Counties.

Seeking Public Comment

Announcement for the Formulation/Development of NY's
3-Year State Plan for Independent Living 2020-2022 
 New York's State Plan partners announce the formulation and development of the next 3-year Statewide Plan for Independent Living (SPIL). The initial public comment period will take place between July-August 2018.  Public Notice, Schedule and Written Comments Guidelines


National Transportation Coordination Survey

The National Center for Mobility Management (NCMM) is seeking input from state and local stakeholders on promising practices, barriers, and challenges around coordinated transportation. Coordinated transportation includes examples such as sharing vehicles among organizations or grouping trips among beneficiaries of two or more programs. Information gathered from this survey will be used for planning purposes by the Coordinating Council on Access and Mobility  (CCAM) federal interagency.  CCAM coordinates the efforts of the federal agencies that fund transportation services for older adults, individuals of low income, and people with disabilities. CCAM issues policy recommendations to improve the availability, accessibility, and efficiency of transportation provided by human service organizations. Survey Link


Legislative Updates
Supporting Grandparents Raising Grandchildren Act

Earlier this month, the Supporting Grandparents Raising Grandchildren Act (S.1091) was signed into law. This bill was originally introduced by Senator Susan Collins in May 2017.  This legislation establishes an Advisory Council to Support Grandparents Raising Grandchildren. This advisory council will meet for three years to identify, promote, coordinate, and publicly disseminate information and resources to help older relatives meet the needs of the children in their care and maintain their own health and emotional well-being. Read the Bill



Governor Cuomo Directs State Agencies to Implement Policies Aimed at Supporting Community Living for New Yorkers with Physical Disabilities

In recognition of the anniversary of the Americans with Disabilities Act, Governor Cuomo launched the "Able New York" initiative on July 26, 2018. This multi-agency initiative aims to improve the accessibility of state programs and services for New Yorkers with disabilities. Phase one of the agenda will be led by the Department of Health, which will develop a series of policies to support community living for New Yorkers with physical disabilities. The DOH will issue a series of guidance documents for providers on existing programs which support community living. The Department will also develop requirements that nursing homes must highlight community living options. Read the Announcement

Working with Kinship Caregivers
Child Welfare Information Gateway 
Bulletins for Professionals, 2018
This bulletin will help professionals who work with grandparents and relative caregivers by providing information, referral, and support services for these caregivers to ensure the safety, permanency, and well-being of children in their care. Information about trends in kinship care, caseworker and caregiver training, and examples of successful State and local kinship care programs are included.

Understanding Trauma and it's Impact on Older Adults
A research paper by Misty Boldt, LMSW

 Working with a Trauma Informed Care Professional (TICP) is important at any stage of life but appears to be more important later in the life. In my analysis, it has been identified a correlation between long term stress and health risks later in life. My findings to date indicate unstable relationships and developmental traumas are often identified. The purpose of an older adult working with a TICP is to allow for a relationship with a resilient and stable person in their life, which up to this point they may not have had and may not have been able to recognize as lacking in their life. The TICP is intended to help decrease the older adult's emotional distress by lowering anxiety levels and depression symptoms using a trauma informed and strength-based approach. Having a TICP use specialized tools like the ACE and LEST can screen older adults for trauma across their lifespans. These screens can be helpful to medical providers and caregivers in understanding why a person may behave the way they do or have certain reactions or outbursts to stimuli that isn't easily understood.
Read the Full Article at NYSCRC/Blog

RESPITE, or   short-term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.  Respite is often referred to as "giving the gift of time"
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across New York State. 

If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the NYSCRC  can connect you with a REST Trainer in your area.  For information contact Sharon Cackett.
Upcoming Companion Trainings
August 22nd and 29th | 12:30 - 4:30 | Gardiner, NY
Hosted by JFS of Ulster County -Must attend Both - Flier
August 11th | 8:00 -12:00 | Rochester, NY - Flier 
Hosted by Pinnacle Lutheran Church
REST is an evidence-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across NYS. Our talented trainers ease your mind and give you confidence to handle situations that may prevent you from giving the gift of your time.  Companion trainings coming soon!
Calling All REST Trainers!
July Technical Assistance Call | August 20| 3 pm

NYSCRC Virtual Resource Center

NYSCRC provides a variety of  resources and training opportunities for professionals and caregivers. Click on the desired training for description.   
Virtual Resource Center Online
Powerful Tools for Caregivers leader training are now being offered through the virtual resource center.  We offer Powerful Tools for Caregivers leader training for caregivers of parents of children with special needs.  Limited funding available to provide leader trainings for 10-12 people in your county.  For information contact Doris Green
Upcoming Trainings for Caregivers:
Six Thursdays beginning August 23  |9:30 -12:00
Location: Wood Library | Canandaigua, NY
Hosted by Ontario County Office for the Aging. Program Flier

Steuben | Wayne | Yates | Seneca | Ontario | Livingston | Chemung
Additional NYSCRC Training Resources
To schedule events or have your events posted in the newsletter, please contact Doris Green | 585-287-6393

Conferences and Webinars
New Save-the-Dates!
Updates in Alzheimer's Disease Research
Presented by Finger Lakes Alzheimer's Caregiver Institute
Tuesday, August 7th  | 3:00 - 4:15 |multiple locations | Details
Challenges in Healthcare - Focus on Resilience
Thursday September 27th | 8 am - 4:30 pm | Burgundy Basin Inn
Overcoming Barriers to a Heart Healthy Lifestyle
Presented by Finger Lakes Geriatric Education Center
Thursday, October 4, 2018 | 7:15 - 9:00 pm | Penn Yan
Speaker: Joe Piscatella |Registration Required
State Society on Aging Conference (SSA) | Saratoga Springs
October 25-27, 2018
 "The Many Worlds of Aging: Implications for Policy, Research, Education and Practice."   more information available at
Finger Lakes Geriatric Education Center
Spanning the Continuum of Care: Innovations in Geriatric Heath Practice
Friday September 29th  | Click Here


To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

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