Working to ensure that all caregivers receive the respite and support they need.

A VERY cool Ted Talk - Take 9 minutes out of your day to be inspired!

The Hidden Role Informal Caregivers Play in Health Care

Scott Williams is a patient advocate who believes that the modern health systems would cease to function without the crucial role played by caregivers.  

Caregivers and the Opioid Crisis
Mental Illness and Addiction - A Caregiver's Message
Written by Doris Green - NYSCRC Director
The Opioid Crisis and its Impact on Kinship Care
New York State Kinship Navigator - November 14, 2017
Kinship care refers to nonparents (grandparents, other relatives and close family friends) who care for children when parents are unable or unwilling to care for their children.
In New York State, most of these households provide care privately, and do no receive foster care supports
This extensive article discusses Prevalence, How drug use impacts kinship care and provides links to recent reports, articles and news stories. Proposed Legislation and Recommendations for the President's Commission on Combatting Drug Addiction and the Opioid Crisis. Read the full article
Raising the Children of The Opioid Epidemic: solutions and support for grandfamilies - Generations United - State of Grandfamilies 2016
More than 2.5 million children are raised by grandparents, aunts, uncles, siblings and other extended family and close family friends who step forward to care for them when parents are unable. Although data is limited research shows parental substance used is the most common reason the grandfamilies come together to raise children who would otherwise go into foster care. With the rise in heroin and other opioid use, more relatives are stepping up to raise children whose parents have died, are incarcerated, currently using drugs, in treatment or otherwise unable to take care of their children. Read the full report
"The Caregivers of the Opioid Epidemic are Going it Alone" PacificStandard- December 2017
Across the country, people are becoming unexpected caregivers of children whose parents have become addicted to opioids. In most states they are doing it with little or no help at more
What we learned during CNN Parents' chat on mental health and addiction
Kelly Wallace-CNN
Nearly 9 million Americans battle both mental illness and drug addiction.
REST study get published in a peer review journal, the final step in becoming an Evidenced Based Program! Read the Press Release.
Any organization, person or faith community in the state can access Train-the-Trainer programs as a way to provide evidenced informed training for volunteer respite programs. 

If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the Coalition can connect you with a REST Trainer in your area.

2018 Mini Grant Announcement coming soon. Stay Tuned

For information contact Doris Green

Upcoming Train the Trainer Session:
Broome County | March 22nd-23rd contact Shelli Spinelli for details

Funding Opportunities

Clark Family Mental Health and Disability Scholarship - Attention: Employees of non profit organizations in Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne and Yates counties

Clark Family Scholarship Accepting Applications for 2018/19 Academic Year:  The Clark Family Scholarship provides financial support for professionals working in the mental health or developmental disabilities fields within the eight-county area surrounding Rochester (Monroe, Genesee, Livingston, Ontario, Orleans, Seneca, Wayne, and Yates counties) who wish to pursue advanced degrees in their field.  The scholarship was established several years ago by Rochester area residents Tom and Barbara Clark.  The Clarks have been closely involved with agencies serving the disadvantaged and have personally witnessed the skills and dedication of those who have chosen this career. One of their children, born with Down Syndrome, has been the beneficiary of many services provided by the agencies and health systems serving the developmentally disabled.  This scholarship was established to assist individuals dedicated to serving in the field of developmental disabilities or mental health with their advanced educational pursuits.

Award amounts are determined through a  scholarship committee review process, which takes into consideration academic performance, financial need, and access to other available grants or resources.  The maximum award amount is $5,000 per year.  Application forms can be found on the RACF website and are due by April 15th.   While the scholarship is a one-time award , students may apply in future years and receive a maximum of four awards during a consecutive six-year period.  

The Elizabeth Dole Foundation-Hidden Heroes Fund
Now-February 23, 2018 | Apply Online
Does your organization serve military and veteran caregivers? Do you have a scalable initiative or innovative program concept that provides support? The Elizabeth Dole Foundation is now accepting applications for the 2018 Hidden Heroes Fund, which supports programs that make a direct impact on the lives of America's military caregivers.

Legislative Updates

President Signs RAISE Family Caregivers Act
Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act into law. The bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. The bill also calls on HHS to convene a Family Caregiving Advisory Council to advise the department on ways to recognize and support family caregivers. This Council will be comprised of relevant federal agency representatives as well as family caregivers, older adults with long-term services and support needs, health care providers, and other key players in the caregiving community.

For more information, please NAC website: 

For analysis of the bill, please see Next Avenue,


Congressional Stories of Family Caregiving

Late last year, six members of the U.S. House of Representatives shared personal stories of their experiences with family caregiving. The Gerontological Society of America (GSA) partnered with the National Alliance for Caregiving and others to host the Congressional Stories of Family Caregiving Briefing. Supporters of the briefing included The John A. Hartford Foundation, AARP, and the Alzheimer's Association. Read the full proceedings report from the briefing here.

Caregiver Survey now Available at NYSCRC.ORG
Caregivers alone provide 80% of all long-term care in NYS. NYSCRC understands the unique needs of caregivers. Through training and education, we focus on increasing caregiver access to respite resources. The Caregiver Self Assessment Survey is designed to assist caregivers in recognizing the importance of self-care. 

Facing Addiction Facing Addiction Inc. is a national non-profit organization dedicated to finding solutions to the addiction crisis by unifying the voice of the over 45 million Americans and their families directly impacted by addiction.

Family to Family Recovery Resource Guide
Friends of Recovery New York, in response to requests for help from families across New York State who are struggling with a loved one's addiction and with support from NYS Office of Alcoholism and Substance Abuses Services (NYS OASAS) created a comprehensive guide to help families navigate their way through this challenging and painful experience.

Kinship Navigator  website
The NYS Kinship Navigator is an information, referral and advocacy program for kinship caregivers in New York State. A kinship caregiver is an individual that is caring for a child that is not biologically their own. In New York State, there are an estimated 179,000 caregivers, 131,000 of whom are grandparents. Many others are aunts and uncles.

The Navigator seeks to assist these caregivers by providing information on financial assistance, legal information and referrals, and other types of issues that caregivers face when raising children in order to provide stability and permanency in the home.

Our County Resources allow kinship caregivers to find resources specific to the county they reside in. Each county displays kinship, legal, aging, youth, and any other services that are available in that county, along with program descriptions and contact information.

February 8,2018 | 1:00 EST | Webinar
very common when caring for a loved one with dementia, but ignoring your personal needs opens the door to distress. This webinar will highlight the importance of self-care for the body and mind and living in a manner consistent with your core values so that you can thrive as a caregiver. To register, click Here

February 14, 2018 | 1:00 PM EST | Webinar
In the 80's, Tina Turner had us all singing, "What's love got to do with it?" If you're a dementia care partner, you now know the answer: everything! In our Valentine's Day webinar, we'll talk about real love - the choice-driven kind of love that hangs in there when "for better or for worse" turns out to be worse. We'll also talk about caregiver guilt, and why it's okay to take extra good care of yourself. To register, Click Here

From Insight to Advocacy - Addressing Family Caregiving as a National Public Health Issue - National Alliance on Caregiving
An important paper that seeks to answer the broader question - What is the impact of caregiving on the public's health. An examination of the relationship between public health issues, public health policy and family caregiving.
Read the full paper Here
Training for the primary care workforce about dementia, and caring for those affected, is essential. The facts are compelling:  currently more than five million Americans live with Alzheimer's disease . Ultimately, one out of every three Americans will die from Alzheimer's disease or another dementia.  With federal partners and public stakeholders, HRSA created a curriculum - 16 core modules and four supplemental modules - for health educators to train the primary care workforce about dementia care, and to help providers address caregiver needs. Access the training curriculum  HERE.

NYSCRC Virtual Resource Center
NYSCRC provides a variety of  resources and training opportunities for professionals and caregivers.  Click on the desired training for description.

To schedule events please contact Doris Green | 585-287-6393


Save the Dates
Genesee Valley Nurses Association - 33rd Annual legislative Meeting - Thursday February 15th 6:30-8:30
St. John Fisher College
Topic: Legislative Issues Affecting Nursing and Health Care along with a presentation on The Opioid Crisis and How the Community is Responding - Details

Stand Up for Recovery Day
March 6th 2018 8am-3pm
Empire State Plaza Concourse
Convention Hall, Albany, NY
On behalf of individuals and families in New York impacted by addiction, Friends of Recovery New York (FOR-NY),the State wide Recovery Community Organization (RCO) is committed to educating decision makers and the general public about addiction recovery and call for the end of discrimination that blocks access to addition treatment, housing, employment, education and community-based recovery supports. Register Here

28th Annual Conference on Aging & Vendor Expo
Jan 25, 2018; 8 am - 5 pm at New York Academy of Medicine in NYC

State Society on Aging Conference (SSA) - Saratoga Springs
October 25-27, 2018
 "The Many Worlds of Aging: Implications for Policy, Research, Education and Practice."   more information available at
2018 FLGEC Conference - Healthy Aging in Rural NY: Emerging Strategies for Local Communities
April 18th 8:30 - 5:00
Watkins Glen Harbor Hotel

Finger Lakes Geriatric Education Center

Spanning the Continuum of Care: Innovations in Geriatric Heath Practice

Friday September 29th  - Click Here

Interantional Short Break Association - Worldwide Conference
"Opportunities and Co-Creation"
October 9-11, 2018  Reykjavik, Iceland  ISBA website


To learn more, call

1-800-342-9871. Or go to 


Copyright © 2017. All Rights Reserved.