Working to ensure that all caregivers receive the respite and support they need.

New Reports and Resources

Illuminate Respite Conference |  PowerPoint Presentations, Handouts and Conference Photos  now available

Global State of Care
Embracing Carers and International Alliance of Carer Organizations (IACO), 2019
What are countries around the world doing to support caregivers? This report assesses how individual countries and governments are supporting unpaid caregivers, and the areas where more support is needed. Respite Care is a one of the six categories included among Legislation, Financial support, Working arrangements, Pension credits, and Information and training.
Access the report.

GRAND Resource: Help for Grandfamilies Impacted by Opioids and Other Substance Use. This resource from Generations United provides tips, practical information and a list of additional resources covering five topic areas - Practicing Self-Care; Addressing Childhood Trauma; Preventing Harmful Drug Use by Children; Engaging with Birth Parents; and Talking with a Child about their Birth Parent. Learn more.

Support Needs of People with I/DD and Co-Occurring Mental Health Challenges and their Families
The Arc has recently released a 2018 brief on the support needs of people with I/DD and co-occurring mental health challenges and their families. Up to 40% of individuals with I/DD experience co-occurring mental illness, with some estimates pointing to even higher prevalence rates. Despite its large presence in the community, little is known about how to support families, caregivers, and direct service providers in meeting the needs of individuals experiencing mental illness and I/DD. Read the Brief Here.

The 2018 caregiver forums were highlighted through the New York State Caregiving and Respite Coalition (NYSCRC), which is tasked with developing coordinated systems of accessible community-based respite care services to family caregivers. This effort is funded by a federal grant from the Administration on Community Living to NYSOFA through the Lifespan Respite Act. Also, the Association on Aging in New York (AgingNY) supported this work and continues to make training available to its members designed to improve their ability to serve caregivers and increase overall access to services.
Read the Report and access PowerPoint presentations. Here

Finger Lakes Alzheimer's Caregiver Institute Summer Newsletter.  Check it out!
Community Workshop with Rev Dr. Cynthia Hummel
Summer Education and Wellness Class Listings  and much more!

Elder Abuse Prevention
Supports and Tools for Elder Abuse Prevention
The National Center on Elder Abuse (NCEA) and the National Association of Area Agencies on Aging (n4a) STEAP (Supports and Tools for Elder Abuse Prevention) Initiative includes free and ready-to-use materials to engage and educate your community about preventing elder abuse. This includes a toolkit with practical and customizable elder abuse education and outreach resources, including a brochure, fact sheets, outreach guide, and presentation materials.
Policy Updates

Status of FY 2020 Funding for Lifespan Respite and the National Family Caregiver Support Program

In early May, the House Appropriations Committee approved its version of the FY 2020 Labor-HHS-Education Appropriations bill. It includes $5.5 million for Lifespan Respite, which is $1.39 million above the FY 2019 level and $200 million for the National Caregiver Support program, which is $18.8 million above the FY 2019 level. In addition to increased funding for respite for these two programs, the bill includes an increase of $4 million for the Alzheimer's disease program to issue grants to demonstrate the benefits of providing direct respite care services to caregivers supporting individuals living with Alzheimer's disease.

The Senate is expected to consider its FY 2020 funding bill in early June. On May 30, the National Respite Coalition sent a  letter from 54 national organizations  to Senate appropriators in support of $20 million for the Lifespan Respite Care Program, the amount authorized for FY 2020 in the  Lifespan Respite Care Reauthorization bills  recently introduced in the House and Senate. Because the purpose of the Lifespan Respite Care Program is to improve access to respite for family caregivers without regard to income, age or disability, the National Respite Coalition and its national partners continue to advocate for the higher amount of $20 million. The letter from national organizations also requested $202.7 million for NFCSP. On May 28, the National Respite Coalition also submitted  written testimony to the Senate  Subcommittee on Labor-HHS-Education Appropriations in support of increased funding for Lifespan Respite.   Read more.
Funding Opportunities

Field Hall Foundation Grants
The Foundation awards grants to not-for-profits and local government for programs and projects that will improve the lives of older adults and their caregivers in Westchester, Putnam and Dutchess counties, New York. One of our priority/focus areas is respite and support for caregivers. This is a new grant-giving foundation, and just recently completed their first grant cycle by awarding eight grants between $5,000 and $75,000, totaling $274,000.The Foundation is now accepting Letters of Inquiry for its Winter 2019/20 Grant Cycle. The deadline to submit LOIs is June 21, 2019.For more information, please visit the Foundation website or 
Contact:Patti Lavan Horvath
Program Officer
Office: 914-813-9103 Mobile: 914-843-1943
Brookdale Relatives as Parents Program (RAPP)
Seed Grants Available for the Creation or Expansion of Supportive Services to Grandparents and Other Relatives Raising Children.

The Brookdale Foundation Group has issued a Request for Proposals (RFP) for the creation or expansion of supportive services to grandparents and other relatives raising children. Up to 15 programs will be selected to receive a seed grant of $15,000 ($10,000 and $5,000 respectively), contingent upon progress made during year one and potential for continuity in the future. On-going technical assistance will also be provided. Any 501 (c)(3) or equivalent not-for-profit organization can apply. The RFP proposal and guidelines can be downloaded by visiting the website.  

Proposals are due at the Brookdale Foundation Group office in New Jersey on Wednesday, June 12, 2019. Selected applicants will be required to attend an Orientation and Training Conference, as our guests, to be held October 24-26, 2019 in Teaneck, NJ.

For Additional Information Contact:
Relatives As Parents Program (RAPP)

Brookdale Foundation Group
Group Respite Funding Opportunity - 2019 Request for Proposals for agencies interested in establishing a group respite or early memory loss program for elders with dementia.

Deadline is 4:00 PM EDT on Wednesday June 26, 2019.
For more information on who to apply visit the Foundation website
RESPITE, or   short-term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.  Respite is often referred to as "giving the gift of time."
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across New York State. 

If your organization would like to provide REST companion trainings for YOUR volunteer program, NYSCRC  can connect you with a REST trainer in your area.  For information contact Sharon Cackett.

June 13th | 10 AM - 6 PM | Skidmore College | Falstaffs Building |  Flier
NYSCRC Virtual Resource Center
Virtual Resource Center Online
Additional NYSCRC Training Resources
To schedule events or have your events posted in the newsletter, please contact Doris Green | 585-287-6393
Upcoming Events and Webinars

Caring for Patients with Advanced Alzheimer's Disease: Are We Getting It Right?

The NYSCRC Caregiver Simulation  Experience

Friday June 21st |  1:00-4:00 | Mt. Morris, NY | Sponsored by the Genesee Valley Health Partnership |  Details Here

2019 Aging Concerns Unite Us (ACUU) Conference
Tues, June 11 - Wed, June 12, 2019
The Desmond, Albany, NY  Registration Now Open!
Curious about the Caregiver Simulation Experience -NYSCRC will be presenting an interactive experience on Wednesday. Learn about how you can bring this valuable offering to your community.

Train the Trainer | Pro Active Stress Reduction
Registration Open to Agency Staff and Peer Facilitators
Tuesday, June 18th | Amherst, NY | More Information | Brochure

Stress Reduction Workshop Series for Parents and Other Caregivers |  ProActive Caring Stress Reduction is a FREE training series for parents and other caregivers who are raising children or caring for other family members with intellectual and developmental disabilities. Join us, meet other care givers, and learn self-care strategies. This program is designed by the Center on Aging and Disability Policy at Mount Saint Mary College.

The course is intended for parents and other family members who are caring for infants, children, adolescents, and adults with disabilities. Several series are being offered:

To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2