Working to ensure that all caregivers receive the respite and support they need.

Sponsorship and Exhibitor Deadline Extended to February 1st
Conference Website

Experience the world's largest CAREGIVER SIMULATION at the opening session of the 2019 ARCH National Respite Conference!
What better way to understand caregivers than to spend a few hours in their shoes. This active simulation allows participants to experience a fraction of the challenges caregivers face day-in and day-out, including finding respite. Each participant is assigned a role, tasks, dilemmas and opportunities to navigate throughout the simulation. This unique conference experience will increase your empathy  for caregivers, care receivers and better inform agencies who serve caregivers and their loved ones.
NY Resident Discount code: NYResident 
There are a limited number of discounted rooms at $129 - Don't delay in making your reservation. Check out the ALL New Buffalo Grand Hotel (formerly Adam's Mark)

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Mini Grant Announcement


NYSCRC has awarded  two mini grants in the amount of  $3500 for the development or expansion of volunteer respite programs.


 Congratulations to:

Grace Lutheran Church - Broome County

Grace is developing the "Senior Care Respite Program" which will provide a monthly opportunity for caregivers to drop off their loved one at the program and provide much needed relief for caregivers in the Vestal, NY area.


Greece Baptist Church - Monroe County

Greece Baptist is developing the "Give Me a Break" Drop off Respite program that will be hosted monthly and will provide a well deserved break for caregivers in area of Greece, NY


Both of the dedicated faith communities are committed to using REST to train and support their volunteers


Program details will be provided as the programs develop!

Caregiver Research Opportunity

Seeking 80 caregivers who are using respite services and who reside in the following counties: Allegany, Cattaraugus, Cayuga, Chautauqua, Cortland, Erie, Genesee, Herkimer, Madison, Niagara, Orleans, Oneida, Onondaga, Oswego, Tompkins and Wyoming.
The Health Foundation for Western and Central New York has awarded researchers from the University of Georgia, the University of North Carolina at Chapel Hill, and the University of Rochester a grant to collaborate on a research study to better understand caregivers' experiences with respite.


Administration for Community Living

Outcome Evaluation of the National Family Caregiver Support Program

Survey response data were collected from a nationally representative sample of NFCSP client caregivers, a comparison group of caregivers who do not receive NFCSP services, and a sample of care recipients (CRs) of caregivers in the two groups. This was the first national longitudinal survey of caregivers designed for the purpose of evaluating the NFCSP. The five caregiver outcome measures that were focused on in this evaluation were: mental health, physical health, caregiver burden, caregiver satisfaction, and caregiver confidence.

Key Respite Findings
Key among the evaluation's findings are important insights into the value of respite in reducing caregiver burden and that education and training services can lead to greater caregiver confidence over time. One key finding regarding respite was that, on average, NFCSP caregivers who received 4 or more hours of respite care per week had a decrease in self-reported burden over time, while the comparison caregivers experienced an increase in self-reported burden. In addition, among caregivers who used NFCSP respite care, as the respite hours per week increased, so did the probability of a more favorable response regarding caregivers' perception that services helped them continue caregiving. Additional data were collected on caregivers' use and perceived helpfulness of NFCSP respite care. 

On November 28, 2018, the Administration for Community Living held a webinar with the Westat Evaluation team on the NFCSP Outcome Evaluation Report to preview the findings. The webinar slides provide a useful summary of the principal findings from the report. See also responses to attendee questions posed during the webinar. 

Health Resources and Services Administration (HRSA)-led Study Estimates 1 in 40 U.S. Children has Diagnosed Autism

A new study led by HRSA found that approximately 1.5 million U.S. children have received a diagnosis of, and currently have, autism spectrum disorder. The analysis used data collected from parents of more than 50,000 children from the 2016 HRSA National Survey of Children's Health. The Centers for Disease Control and Prevention (CDC), Harvard University, Drexel University, and George Washington University contributed to the study. 

Previous research has shown that autism diagnoses have increased in children over the past 20 years. "Through the National Survey of Children's Health, our study provides the most recent nationally representative data on both the prevalence of autism and some of the challenges families face obtaining care," said lead author Michael D. Kogan, Ph.D., of HRSA's Maternal and Child Health Bureau. "This new information improves our capacity to understand and address autism, a complex neurological disorder." Read the study here

Pushing Disability Integration into Law

The Consortium for Citizens with Disabilities (CCD) is working with Senator Schumer (D-NY) and Representative Sensenbrenner (R-WI) to push for the passage of the  Disability Integration Act of 2017 into law prior to 07/26/2019.

If signed into law, the bill would prohibit states and local governments from denying community-based services to individuals with disabilities who are in need of long-term services and supports or health-related tasks. In addition, it would help these individuals to live and age in their communities, reducing the danger of placing persons with disabilities in nursing homes and/or institutions.  

To learn more, click HERE
RESPITE, or   short-term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.  Respite is often referred to as "giving the gift of time."
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across New York State. 

If your organization would like to provide REST companion trainings for YOUR volunteer program, NYSCRC  can connect you with a REST trainer in your area.  For information contact Sharon Cackett.

NYSCRC Virtual Resource Center
Virtual Resource Center Online
Powerful Tools for Caregivers leader training are now being offered through the virtual resource center.  We offer Powerful Tools for Caregivers leader training for caregivers of parents of children with special needs.  Limited funding available to provide leader training's for 10-12 people in your county.  For information contact Doris Green

Additional NYSCRC Training Resources
To schedule events or have your events posted in the newsletter, please contact Doris Green | 585-287-6393

Finger Lakes Geriatric Education Center
Save the Date | Annual Conference |April 18, 2019 |Watkins Glen Harbor Hotel
For information contact Anna Rosenblatt 05 607-274-1604
The Second Global Carework Summit | June 9-11 in Toronto, Ontario
The Carework Network is an international organization of scholars and advocates
who focus on the caring work of individuals, families, communities, paid caregivers, social service agencies and state bureaucracies.

To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2