Administration for Community Living
Outcome Evaluation of the National Family Caregiver Support Program
Survey response data were collected from a nationally representative sample of NFCSP client caregivers, a comparison group of caregivers who do not receive NFCSP services, and a sample of care recipients (CRs) of caregivers in the two groups. This was the first national longitudinal survey of caregivers designed for the purpose of evaluating the NFCSP. The five caregiver outcome measures that were focused on in this evaluation were: mental health, physical health, caregiver burden, caregiver satisfaction, and caregiver confidence.
Key Respite Findings
Key among the evaluation's findings are important insights into the value of respite in reducing caregiver burden and that education and training services can lead to greater caregiver confidence over time. One key finding regarding respite was that, on average, NFCSP caregivers who received 4 or more hours of respite care per week had a decrease in self-reported burden over time, while the comparison caregivers experienced an increase in self-reported burden. In addition, among caregivers who used NFCSP respite care, as the respite hours per week increased, so did the probability of a more favorable response regarding caregivers' perception that services helped them continue caregiving. Additional data were collected on caregivers' use and perceived helpfulness of NFCSP respite care.
On November 28, 2018, the Administration for Community Living held a webinar with the Westat Evaluation team on the NFCSP Outcome Evaluation Report to preview the findings. The
provide a useful summary of the principal findings from the report. See also
responses to attendee questions
posed during the webinar.
Health Resources and Services Administration (HRSA)-led Study Estimates 1 in 40 U.S. Children has Diagnosed Autism
A new study led by HRSA found that approximately 1.5 million U.S. children have received a diagnosis of, and currently have, autism spectrum disorder. The analysis used data collected from parents of more than 50,000 children from the 2016 HRSA National Survey of Children's Health. The Centers for Disease Control and Prevention (CDC), Harvard University, Drexel University, and George Washington University contributed to the study.
Previous research has shown that autism diagnoses have increased in children over the past 20 years. "Through the National Survey of Children's Health, our study provides the most recent nationally representative data on both the prevalence of autism and some of the challenges families face obtaining care," said lead author Michael D. Kogan, Ph.D., of HRSA's Maternal and Child Health Bureau. "This new information improves our capacity to understand and address autism, a complex neurological disorder." Read the study