Working to ensure that all caregivers receive the respite and support they need.

Call for Presentations and Sponsorship Opportunities Now Open!

The Call for Presentations is now open for the 2019 National Lifespan Respite Conference to be held in Buffalo, New York, April 30-May 2, 2019.

Proposals for breakout sessions are being accepted until the deadline, September 1, 2018.

Call for Presentations and sponsorship information available on the Conference Website 

Thirty Six Hours in Buffalo - New York Times


  Lifting Our Voices for Caregivers Video

This video was developed as a result of NYSCRC's  participation in the Story Growing Initiative funded by the Western and Central New York Health Foundation and the Oshie Foundation.


Caregivers are everywhere and their stories matter!



The Annual Business Meeting will be held via Webex in order to engage as many participants statewide.  Please join us to learn about who we are, what we are doing and why you need to be involved!

Tuesday, July 31, 2018 11:00 am
Event number: 645 186 767
Event password: June123
Event address for attendees:

Audio conference information
To receive a call back, provide your phone number when you join the event, or call the number below and enter the access code.
US Toll Free: 1-844-633-8697
Local: 1-518-549-0500
Toll-free dialing restrictions:
Access code: 645 186 767
RESPITE, or   short-term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.  Respite is often referred to as "giving the gift of time"
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across New York State. 

If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the NYSCRC  can connect you with a REST Trainer in your area.  For information contact Sharon Cackett.
Top L-R: Amy Bowie, Cheryl Harris, Wendy Westcott, Shelli Spinelli
Bottom L-R: Victoria Nichols, Jennifer Wilson, Tricia Shirey

Shelli Spinelli from Broome County OFA and director of the Yesteryears program completed her Master Training Requirements by leading her first Train-the- Trainer event. Shelli did a fabulous training hosted by CareFirst in Chemung County. Congratulations to Shelli on her Master Trainer Certification and welcome to our new REST Trainers.
Top: New Master Trainers from Florida and Minnesota
Seated L-R Sharon Cackett, D0ris Green
Doris Green and Sharon Cackett became the first in the nation to be trained as REST Regional Trainers. We are now partnering with REST to provide Master Trainings in the northeastern US.  Doris and Sharon went to Chicago to be trained for this new initiative and then immediately trained five Master Trainers from Florida and Minnesota. It was an uplifting and positive experience, and we are excited that NYSCRC is the first coalition to a participate in this pilot!

Upcoming Companion Trainings
REST is an evidence-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across NYS. Our talented trainers ease your mind and give you confidence to handle situations that may prevent you from giving the gift of your time.  Companion trainings coming soon!
Calling All REST Trainers!
July Technical Assistance Call | July 16th | 3 pm


Congratulations to the two programs that were awarded $5000 to support their volunteer respite programs. REST will be used to train all volunteers and staff.

Broome County Yesteryears Program
The Broome County Office for Aging's Yesteryears program recently implemented Saturday volunteer respite serving older adults and their caregivers. The Saturday REST program provides caregivers with three hours of respite one Saturday a month, while participants enjoy a quality structured social experience. The core volunteer base is students from local universities. Respite is available for older adults with cognitive impairments from Broome and surrounding counties.

The Living Well Program in Yates County
The Living Well program in Yates County serves people who have memory impairment. The funding for this project will lay a solid foundation to include appropriate training using the REST training model, recruitment of qualified volunteer and marketing of the project. The c ounty did not have a free respite service for people living with dementia and their caregivers. This program will provide a safe, stimulating, engaging array of activities and food for those living with dementia while offering caregivers time to rejuvenate and relax.
Legislative Update

Assembly Passes Legislation to Add Bereavement to Paid Family Leave Act  Press Release

National Respite Coalition requests Advocacy Action!

In early spring, the House and Senate Appropriations committees began work on the FY 2019 Labor-HHS-Education Appropriations bill. This bill will include funds for programs administered by the Department of Health and Human Services to support family caregivers, including the Lifespan Respite Care and National Family Caregiver Support programs (NFCSP).

With escalating need, additional funding is critically needed. The National Respite Coalition and its national, state and local partners are requesting $5 million for Lifespan Respite and an additional $21.7 million for the NFCSP in FY 2019, but we need YOUR HELP. And we need it quickly!

Advocacy must be ongoing! Continued action is still needed to make sure we build on the small increases both programs enjoyed in FY 2018. Educating your senators and House members through personal visits and phone calls are the best ways to be effective.  Here are ways to help!
  • Personal visits. Need a few tips on how to meet with your member of Congress? See the NRC's Advocacy Tools
  • Call or email. Call your representatives and senators and urge them to support funding for Lifespan Respite and the NFCSP in the FY 2019 funding bill.
NYSCRC Virtual Resource Center

NYSCRC provides a variety of  resources and training opportunities for professionals and caregivers. Click on the desired training for description.   
Powerful Tools for Caregivers leader training are now being offered through the virtual resource center.  We offer Powerful Tools for Caregivers leader training for caregivers of parents of children with special needs.  Limited funding available to provide leader trainings for 10-12 people in your county.  For information contact Doris Green
Upcoming Trainings:
Six Thursdays beginning August 23  |9:30 -12:00
Location: Wood Library | Canandaigua, NY
Hosted by Ontario County Office for the Aging. Program Flier

Steuben | Wayne | Yates | Seneca | Ontario | Livingston | Chemung

Additional NYSCRC Training Resources
To schedule events or have your events posted in the newsletter, please contact Doris Green | 585-287-6393

Conferences and Webinars
New Save-the-Date!
"Share the Care" workshop with Sheila Warnock
The Share The Care™ model has helped patients and families across the USA and other countries manage the caregiving needs of multiple illnesses, disabilities, or difficulties associated with aging. This unique team approach systematically creates a network of friends, neighbors, work colleagues, etc. to provide caregiving help for the patient and their entire family as well as emotional support for all the caregivers involved.
Finger Lakes counties specific - Limited space available
September 13, 2018 |CareFirst | Painted Post

YOUTH POWER! of Families Together in New York State is excited to announce a FREE opportunity for youth and parent/caregivers in the Western Region! Youth Power website
For Youth: Western YLF
Saturday, July 21-24, 2018 | Adam's Mark Hotel and Event Center | Buffalo, New York  Apply now on-line

For Parents and Caregivers:
Foundations for Leadership: Saturday, July 21 AND Tuesday, July 24, 2018  Adam's Mark Hotel and Event Center | Buffalo, New York
State Society on Aging Conference (SSA) - Saratoga Springs
October 25-27, 2018
 "The Many Worlds of Aging: Implications for Policy, Research, Education and Practice."   more information available at
Finger Lakes Geriatric Education Center
Spanning the Continuum of Care: Innovations in Geriatric Heath Practice
Friday September 29th  - Click Here

NYSCRC Sustainability Summit | October 18th | 9-4
Hearst Media Center - Albany
The purpose of the Summit is to strengthen state and community partnerships to sustain Lifespan Respite activities across the age and disability spectrum; develop strategies to maximize use of existing respite resources and identify and leverage new respite funds; engage in sustainability planning.

2019 ARCH National Respite Conference
Buffalo, New York
Hosted by the New York State Caregiving and Respite Coalition
Adam's Mark Hotel and Conference Center
May 1-2, 2019

The theme of the 2019 ARCH National Conference is "Illuminate Respite" inspired by the rich history of Buffalo, located on the shores of Lake Erie near Niagara Falls. In the late 19th century, Buffalo was the first city to implement widespread streetlights, earning it the nickname, "The City of Light." This conference will provide a space to harness the power of the network to explore and formulate strategy to shine a light on the respite needs of 43 million caregivers.  Conference Website

To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

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