Working to insure that all caregivers receive the respite and support they need

Learn about REST

REST trainings are offered at no cost to organizations interested in providing respite for caregivers through community-based volunteer programs.  NYSCRC is funded with a federal grant for Lifespan Respite awarded by the Administration on Aging/Administration for Community Living to the New York State Office for the Aging.
Statewide trainings are being generously supported through the New York State Office of the Aging, AANYS and LiveOn NY. This funding is time limited.
REST trainings are also funded by The Finger Lakes Geriatric Education Center/University of Rochester Medical Center to the following counties: Allegany, Cayuga ,Tioga, Tompkins, Cortland, Chemung, Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Schuyler, Steuben, Tioga, Tompkins, Wayne, Wyoming and Yates.  
Any organization, person or faith community in the state can access Train-the-Trainer programs as a way to provide evidenced informed training for volunteer respite programs.
We are seeking host sites in August, September and October.
We are also seeking four additional master trainer candidates.
Contact Doris Green at 

Program Spotlight
The Carter Burden Center for the Aging (CBCA)
Founded in 1971 by Carter Burden, a NYC Council Member representing Upper Manhattan has grown to be an integral part of the Aging Support Services in NYC. The mission is to promote the well-being of seniors, 60 and older through a continuum of services, advocacy and volunteer programs in NYC oriented to individual, family and community needs.
Alexandra Jurenko and Holly Hedemark head up the Caregiver Resource Program and Volunteer Services ant Career Burden.  They are both certified REST Trainers and will be offering REST Companion trainings in the very near future.
The Caregiver Resource Program serves a resource for unpaid caregivers of adults who are 60 years or older. The program is designed to address the complex mental health needs of those caring for loved ones with a variety of diagnoses. The program includes assessments, information and referrals, educational workshops and caregiver respite and support groups.
The Volunteer Services Program has more than 2000 volunteers who do Meals on Wheels, grocery shopping, friendly visiting, teaching a variety of classes at the Senior Center and more!
NYSCRC is thrilled to working with Alexandra and Holly to provide REST to the Carter Burden volunteers and the NYC community.
For information on upcoming trainings contact Alexandra Jurenko at

Legislative Corner 


CONTACT:  Anita Baffoni,  401-732-9400
Congressmen Langevin and Harper collaborate with Senators Collins and Baldwin to introduce Lifespan Respite Care Reauthorization Act
Washington, D.C.- Congressmen Jim Langevin (D-RI) and Gregg Harper (R-MS), co-chairs of the House Bipartisan Disabilities Caucus, today introduced the Lifespan Respite Care Reauthorization Act of 2017, which would reauthorize the Lifespan Respite Care Act of 2006 in order to support coordinated respite services for family caregivers. Senator Susan Collins (R-ME), chair of the Senate Select Committee on Aging and a member of the Committee on Health, Education, Labor and Pensions (HELP), joined Senator Tammy Baldwin (D-WI), who is also a member of HELP, to introduce the companion bill in the Senate.


Survey Opportunities
The Ithaca College Gerontology Institute and the  Finger Lakes Geriatric Education Center (FLGEC) are exploring ways to increase access to training for health care providers, aging services professionals and caregivers.  We are looking for individuals to complete this confidential and voluntary survey to help us identify learning needs and preferences.   
If you have a need for paper surveys, please request them by emailing or calling 607-274-1604.
Thank you for helping to support our mission to improve the health care delivered to older adults through enhanced geriatric education of health professionals and their caregivers. 

Administration for Community Living (ACL) invitation to participate in an Environmental Scan of Community-Based Disability Organizations

The rapid expansion of Medicaid managed long-term services and supports (MLTSS) and other efforts to integrate healthcare and long-term services and supports is creating new opportunities and challenges for community-based organizations (CBOs). This change is compelling organizations to think differently about the services they offer, the customers they serve, and how to demonstrate the value they add to services and supports. Instead of contracting directly with government funders, CBOs are now negotiating contracts with hospitals, health systems, accountable care organizations, health plans, and other integrated care entities.
To equip CBOs with the skills, training, and experience needed to effectively negotiate and partner with integrated care entities and other payers, the Administration on Community Living is funding a three-year grant focused on business acumen for disability organizations to the National Association of States United for Aging and Disabilities (NASUAD) in partnership with 10 other national organizations representing a variety of perspectives and experience on disability.
To best understand and meet the needs of the disability network and CBOs, NASUAD is conducting an environmental scan of the business acumen of organizations serving people with disabilities.
Funding Opportunities

Brookdale Foundation - Relatives as Parents Program
Seed Grants Available for the Creation or Expansion of Supportive Services to Grandparents and Other Relatives Raising Children

The Brookdale Foundation Group has issued a Request for Proposals (RFP) for the creation or expansion of supportive services to grandparents and other relatives raising children. Up to 15 programs will be selected to receive a seed grant of $15,000 ($10,000 and $5,000 respectively), contingent upon progress made during year one and potential for continuity in the future. On-going technical assistance will also be provided. Any 501 (c)(3) or equivalent not-for-profit organizations can apply. The RFP proposal and guidelines can be downloaded by visiting our website:

New York State Health Foundation
Does your organization need funding to get you to the National Respite Conference in Huntsville Alabama?
Through this Request for Proposals (RFP), NYSHealth will sponsor nonprofit and other low-resource organizations to attend or present at local, State, or national conferences related to empowering health care consumers. NYSHealth will support both organizations already engaged in this work and those new to this field but that want to incorporate consumer empowerment into their work. 
Deadline for proposals is Thursday June 15.

Selected applicants will be required to attend, as a guest of the Foundation, an Orientation and Training Conference to be held October 20-22, 2017 in Denver, Colorado.
 For Additional Information Contact :
Melinda Perez-Porter, Director
Relatives As Parents Program (RAPP) 
Upcoming Events
NYSCRC Annual Conference - October 2nd and 3rd
Desmond Hotel and Conference Center - Albany

Monday October 2nd - Caregiver Simulation Experience 1 - 4 pm. 
Come and experience an interactive roll play designed to increase awareness and empathy for caregivers. Great for professionals and  students alike. Plan on joining us for a interesting and eye opening experience!

Tuesday October 3rd - "Understanding and Effectively Engaging Caregivers"
Speaker: Melanie Funchess - Mental Health Association of Greater Rochester

National Lifespan Respite Conference,  October 11-13 in Huntsville, Alabama 

Webinar: Using BRFSS Data from the Cognitive Decline and Caregiver Modules for Action - June 20th 1:00 - 2:00 p.m.

The National Alzheimer's and Dementia Resource Center, in partnership with the American Society on Aging, will host a webinar on using Behavioral Risk Factor Surveillance System (BRFSS) data.The BRFSS collects data on U.S. adults' health-related risk behaviors, chronic health conditions, and use of preventive services, including respite. Findings from the BRFSS cognitive decline and caregiver modules can help states to influence changes in their long-term services and supports systems, and to educate decision makers.

The webinar will discuss the BRFSS' background, purpose, and types of data collected; describe the BRFSS cognitive decline and caregiver modules and their purpose; and list ways to translate BRFSS data into outcome-oriented actions. Free CEUs are available and the webinar will be recorded and available for viewing at For more information, click here.
Past Is Prologue: How to Advance Caregiver Interventions 
SH Zarit
Aging & Mental Health, 2017

What are appropriate goals for treatment and what outcome measures should be used to address those goals in caregiver interventions? Intervention studies would ideally examine fidelity of treatment implementation more frequently. One intervention examined is respite care. The author notes that caregivers who receive a predictable break by using adult day services or other respite care have a lower exposure to care-related stressors. The author recommends ways to improve the design of future trials through better attention to the heterogeneity of the caregiving population, better conceptualization of goals, and accommodation of caregivers' differing needs and resources.  

Family and Other Unpaid Caregivers and Older Adults with and without Dementia and Disability
Catherine Riffin, Peter H. Van Ness, Jennifer L. Wolff, and Terri Fried
Journal of the American Geriatrics Society
Published early online: 20 April 2017

"A Yale-led study finds that while many family caregivers assist older adults with serious health problems like dementia and disability, the majority aid adults without those issues." Researchers recently reported in the Journal of the American Geriatrics Society, that this group of caregivers assisting people without dementia and substantial disability "had the largest number of caregivers experiencing caregiver burden and participation restrictions, and sizeable proportions experienced depressive and anxiety symptoms and poor physical health, yet only a small minority accessed supportive services, including caregiver training, respite care, and support groups."
Read the Yale News story about the study and the view the journal article abstract.

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