Working to ensure that all caregivers receive the respite and support they need.

Caregiving Youth
Who are Caregiving Youth?
Caregiving Youth are children and adolescents who are 18 years of age or younger and who provide significant or substantial assistance, often on a regular basis, to relatives or household members who need help because of physical or mental illness, disability, frailty associated with aging, substance misuse, or other condition. - American Association on Caregiving Youth
Do All Caregivers Matter?
Huffington Post-  updated April 26th, 2017 - blog
By Feylyn Lewis Read it here

Youth as Caregivers Initiative at PSS
According to the American Psychological Association, at least 1.4 million children in the U.S. between the ages of 8 and 18 provide care for an older adult or sibling, including approximately 400,000 youngsters who are between the ages of 8 and 11. A report from the National Alliance on Caregiving (NAC) showed that youth caregivers typically live in lower income households where on third are caring for a grandparent and one third for a parent, with two thirds of these young caregivers living in the same home as the one for whom they are providing care. About half (49%) of youth report that they spend "a lot of time" caregiving. Many of the children and youth are performing tasks that go beyond routine chores and required levels of responsibility traditionally assumed by adults.
Most youth caregivers report feeling isolated as their own problems go unrecognized. Just as adult caregivers, miss struggle with or stop working , youth caregivers are late for or miss school, have difficulty completing homework, and may even quit school to help out at home. The majority cannot participate in age appropriate activities. These caregiving children need recognition, information, practical training on running a household and caregiving, understanding at school, homework help, peer friendships, social/recreational activities and opportunities to "just be kids'
Presbyterian Senior Services in NYC partnered with the American Association of Caregiving Youth to address the needs of caregiving youth in grand-parent led families Read more
Read the NYSCRC Blog Post by Damond Haynes - Youth and Adult Program Manager for PSS.

Youth Caregivers: A Growing Population - Family Caregiver Alliance 
E arlier this year, Mark's world was turned upside down when his mother's Multiple Sclerosis took a turn for the worst, leaving her in a wheelchair and unable to care for herself as tremors and weakness made it difficult to even prepare her own breakfast.  Since Mark's mother and father have been divorced since he was a toddler, the role of being his mother's primary caregiver has fallen to him at just 16 years of age. Now, with so much concern for his mom's wellbeing, Mark has trouble focusing at school and the former straight-A student is trying to figure out how to make up for the days of school he misses when his mom is just too ill to leave alone. Read More
If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the Coalition can connect you with a REST Trainer in your area.

For information contact Doris Green

Upcoming Companion Trainings
Ulster County | March 28th |flier

Upcoming Train the Trainer Session:
Broome County | March 22nd-23rd contact Shelli Spinelli for details

Funding Opportunities

Clark Family Mental Health and Disability Scholarship - Attention: Employees of non profit organizations in Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne and Yates counties. Applications due by April 15

New Medicare Cards Coming Soon - Don't get Scammed

Changes are coming to your Medicare card. By April 2019, your card will be replaced with one that no longer shows your Social Security number. Instead, your card will have a new Medicare Beneficiary Identifier (MBI) that will be used for billing and for checking your eligibility and claim status. And it will all happen automatically - you won't have to pay anyone or give anyone information, no matter what someone might tell you. Read More

Caregiver Survey now Available at NYSCRC.ORG
Caregivers alone provide 80% of all long-term care in NYS. NYSCRC understands the unique needs of caregivers. Through training and education, we focus on increasing caregiver access to respite resources. The Caregiver Self Assessment Survey is designed to assist caregivers in recognizing the importance of self-care. 

Rural Aging
By John Krout, Director of Ithaca College Gerontology Institute

A small but significant area of study within gerontology examines aging in rural places and compares elders based on rural or urban residence. Researchers and practitioners working in "rural gerontology" focus on the impact of rural community characteristics and life styles on the quality of life of elders. 

Caregiving Youth Project
The CYP is the first US comprehensive program to address the challenges faced by children who take care of ill, injured, elderly or disabled family members. It promotes social and system change by integrating healthcare (body), education (mind) and the community (spirit) to create a solid foundation of support services. Website
NYSCRC Virtual Resource Center
NYSCRC provides a variety of  resources and training opportunities for professionals and caregivers.  Click on the desired training for description.
  • REST (Respite Education and Support Tools)

Upcoming Trainings

Train the Trainer - Broome County - March 22nd -23rd

Upcoming Simulations

The Caregiving Youth Simulation - Thursday April 5th

Upcoming Trainings

Seneca - Waterloo - Six Fridays starting April 2oth | 1:00-2:30


Broome County - Six Thursdays starting April 5th | 5-7pm

To register contact Diana Liz-Reyes


To schedule events or have your events posted in the newsletter - please contact Doris Green | 585-287-6393


Save the Dates

National Alliance for Caregiving Webinar
March 6, 2018 | 2pm EST | Online

The National Alliance for Caregiving recently released  From Insight to Advocacy: Addressing Family Caregiving as a Public Health Issue. On March 6th at 2 p.m.,  the Alliance will be hosting a special webinar to discuss the report's findings and hear from the authors, including: Jennifer Wolff, Ph.D., the Johns Hopkins Bloomberg School of Public Health; Erin D. Bouldin, Ph.D., Appalachian State University; and Richard Schulz, Ph.D., the University of Pittsburgh. Register  HERE.

Stand Up for Recovery Day
March 6th 2018 8am-3pm
Empire State Plaza Concourse
Convention Hall, Albany, NY
On behalf of individuals and families in New York impacted by addiction, Friends of Recovery New York (FOR-NY),the State wide Recovery Community Organization (RCO) is committed to educating decision makers and the general public about addiction recovery and call for the end of discrimination that blocks access to addition treatment, housing, employment, education and community-based recovery supports. Register Here

State Society on Aging Conference (SSA) - Saratoga Springs
October 25-27, 2018
 "The Many Worlds of Aging: Implications for Policy, Research, Education and Practice."   more information available at
2018 FLGEC Conference - Healthy Aging in Rural NY: Emerging Strategies for Local Communities
April 18th 8:30 - 5:00
Watkins Glen Harbor Hotel
Registration opens March 2nd - click here to register
Finger Lakes Geriatric Education Center
Spanning the Continuum of Care: Innovations in Geriatric Heath Practice
Friday September 29th  - Click Here
Interantional Short Break Association - Worldwide Conference
"Opportunities and Co-Creation"
October 9-11, 2018  Reykjavik, Iceland  ISBA website


To learn more, call

1-800-342-9871. Or go to 


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