Working to ensure that all caregivers receive the respite and support they need.

The 2010 ARCH National Lifespan Respite Conference was a HUGE success!

Thanks to all our Generous Conference Sponsors!

Thank you to all the phenomenal speakers and presenters!

Thank you to the 72 people who volunteered to present a most amazing Caregiver Simulation Experience.  We couldn't have done it without you!

A special Thanks to the Women for NYS Wines and the NYS Wine and Grape Foundation for an outstanding wine tasting event!

In terested in learning more about New York State Wines and the  Foundation?
Emblem Health | Care for the Family Caregiver
You Are Not Alone
  video series  hosted by Gregory Johnson

National Alzheimer's and Dementia Resource Center
The Messages We Send:Stigma Toward Persons Living with Dementia & How to End It 

In this web seminar, discover the types of stigma that can affect persons living with dementia. Learn about the role language plays in stigma around Alzheimer's disease, including how it perpetuates stigma and how it helps heal the injuries created by it. Acquire everyday strategies for countering stigma through person-centered approaches. Hear from a person with early stage dementia about her experiences related to these issues.

Presenters: Dr. Cynthia Huling-Hummel and Dr. Shana Stites
See the presentation on youtube

Aging and Disability Institute
The latest field guide from the Aging and Disability Business Institute, A Primer on Managed Care: Multiple Chronic Conditions, is now available online at no cost to you! This supplement to our quarterly journal Generations features articles from numerous experts and explores the landscape of managed care, with a focus on chronic conditions, social determinants, Medicare Advantage and dementia care.

This special publication supports the Aging and Disability Business Institute's mission to build and strengthen partnerships between community-based organizations (CBOs) and the healthcare system-a vision intended to improve the health and well-being of America's older adults and people with disabilities through improved and increased access to quality services and evidence-based programs.

Policy Updates

Policy Alert: Supporting America's Caregivers and Families Act (S. 1017) 
The National Alliance for Caregiving recently collaborated with Senators Dick Durbin (D-IL) and Tim Kaine (D-VA) to introduce the  Supporting America's Caregivers and Families Act, a bill that would increase funding, training, and support for family caregivers of adults in America.  Durbin and Kaine's bill would bolster the nation's network of Area Agencies on Aging (AAAs), and enhance support for caregivers through skills building, resources and information, respite care, counseling, and other services. The Supporting America's Caregivers and Families Act enhances the ability of AAAs, under the authority of the Older Americans Act, to support caregivers and those they serve by doing the following... READ MORE

Support Letter for FY 2020 Funding for Lifespan Respite and National Family Caregiver Support Program

Work has begun to make sure the Lifespan Respite Care Program (LRCP) and the National Family Caregiver Support Program (NFCSP) are funded in FY 2020.  

Last week, the House Appropriations Committee approved its version of the FY 2020 Labor-HHS-Education Approprations bill. It includes $5.5 million for Lifespan Respite, which is $1.39 million above the FY 2019 level and $200 million for the National Caregiver Support program, which is $18.8 million above the FY 2019 level. In addition to increased funding for respite for these two programs, the bill includes an increase of $4 million for the Alzheimer's disease program to issue grants to demonstrate the benefits of providing direct respite care services to caregivers supporting individuals living with Alzheimer's disease.
However, the Senate must consider its funding bill soon. The National Respite Coalition and its national organization partners are still advocating for $20 million for Lifespan Respite in FY 2020 to ensure that all family caregivers in need have access to respite regardless of the age or condition of their loved ones and we need your help.

Please sign your State or Local Agency or Organization onto a letter to Congress urging FY 2020 funding for the Lifespan Respite Care Program and the National Family Caregiver Support Program. To find out more, keep reading!
Deadline is May 31, 2019!  Sign on Congressional Letter

May is Older Americans Month
Every May, the Administration for Community Living leads our nation's observance of Older Americans Month. Read More. The 2019 theme, Connect, Create, Contribute, encourages older adults and their communities to:
  • Connect with friends, family, and services that support participation.
  • Create by engaging in activities that promote learning, health, and personal enrichment.
  • Contribute time, talent, and life experience to benefit others.

Field Hall Foundation
The Foundation awards grants to not-for-profits and local government for programs and projects that will improve the lives of older adults and their caregivers in Westchester, Putnam and Dutchess counties, New York.  One of our priority/focus areas is respite and support for caregivers. 
This new grant-giving foundation is now accepting Letters of Inquiry for its Winter 2019/20 Grant Cycle.  The deadline to submit LOI is June 21, 2019.   
F or more information, please visit The Foundation website   or contact 
Patti Lavan Horvath, Program Officer
Office: 914-813-9103  Mobile: 914-843-1943 or  email
Rehabilitation Research and Training Center (RRTC) on Family Support
The Administration for Community Living is seeking applications for an RRTC on family support. The purpose of this particular RRTC is to conduct research, training, technical assistance, and related activities to contribute to effective support of family caregivers of people with disabilities, and ultimately to improved community living, health and function, and employment outcomes of people with disabilities who are supported by family members.
Interested parties should submit their application by Monday, June 10. 
Click here to learn more.

Seed Grants for Grandparents and Other Relatives Raising Children
The Brookdale Foundation Group has issued a Request for Proposals for creating or expanding supportive services to grandparents and other relatives raising children. Up to 15 programs from throughout the United States will be selected to receive a seed grant of $15,000 based on progress made during the first year and potential for more in the future. Technical assistance will also be provided. Any 501 (c)(3) or equivalent not-for-profit organizations can apply.
Apply for this funding opportunity by June 12, 2019 . Click here  to learn more.

Brookdale Foundation Group
Group Respite Funding Opportunity - 2019 Request for Proposals for Agencies Interested in Establishing a Group Respite or Early Memory Loss Program for Elders with Dementia
Deadline is 4:00 PM EDT on Wednesday June 26, 2019

The Brookdale National Group Respite Program seed grant initiative for the year 2019 are now available. For more information and to apply, visit
Since 1989, the Brookdale National Group Respite Program has awarded seed grants to organizations to develop and implement social model group respite programs. These day programs have served thousands of elders with Alzheimer's disease or related dementia and their family caregivers. In addition to group respite, the development of programs for people with Early Memory Loss (EML) is also supported through this grant initiative.

Administration on Community Living: 
National Volunteer Care Corps
ACL has released a new   funding opportunity  for the establishment of the National Volunteer Care Corps. Under this new opportunity, ACL will fund one cooperative agreement under which the grantee will focus activity in two priority areas: 1) adding to the nation's capacity to support volunteer programs that provide non-medical care to assist caregivers, older adults, and/or persons with disabilities; and 2) advancing innovative models that support local volunteer programs that provide non-medical care to assist caregivers, older adults, and/or persons with disabilities.
RESPITE, or   short-term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.  Respite is often referred to as "giving the gift of time."
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across New York State. 

If your organization would like to provide REST companion trainings for YOUR volunteer program, NYSCRC  can connect you with a REST trainer in your area.  For information contact Sharon Cackett.

June 13th | 10 AM - 6 PM | Location to be announced
NYSCRC Virtual Resource Center
Virtual Resource Center Online
Powerful Tools for Caregivers leader training are now being offered through the virtual resource center.  We offer Powerful Tools for Caregivers leader training for caregivers of parents of children with special needs.  Limited funding available to provide leader training's for 10-12 people in your county.  For information contact Doris Green

Additional NYSCRC Training Resources
To schedule events or have your events posted in the newsletter, please contact Doris Green | 585-287-6393
Upcoming Events and Webinars

Information and Inspiration - free May workshops 
see schedule Here

Webinar: Engaging, Training and Implementing Programs that Utilize Volunteers for Dementia Programs 
Tuesday May 21st, 2019 3:00-4:00 EST

Volunteers can provide valuable support for organizations serving persons living with dementia and their caregivers by enabling those organizations to expand their capacity and plan for long-term sustainability. This webinar will focus on finding, training, and retaining volunteers; providing volunteers with meaningful work; and determining which volunteers are a good match for programs. Presenters include representatives from two programs that rely on volunteers to provide dementia-capable services.
  • Kay Wallick is the program director for Dementia Friendly Wyoming. She is a founder of Green House Living for Sheridan, an alternative skilled nursing facility, and was national Director of Shepherd's Centers of America.
  • Daphne Johnston is founder and director of the Respite Ministry in Montgomery, Alabama. Her faith-based, volunteer model of care has spread to 12 new programs in the southeast.
Registration is required to receive the webinar information. Visit the webinar webpage to learn more, including CE credit information.

HCBS Business Acumen Center - Collaborating to Address HCBS Workforce Challenges in MLTSS Programs
Tuesday, May 28, 2019 from 12:30 - 1:30 PM Eastern 

Presented by Camille Dobson, Deputy Director at the National Association of States United for Aging and Disabilities and Debbie Pierson and Yonda Snyder, partners at Sage Squirrel Consulting discuss this report including the challenges and promising practices such as accessibility and use of data in addressing workforce challenges via network adequacy, rates and reimbursement and quality.
Learning Objectives:
  • Understand how accessibility and use of data can address workforce challenges via network adequacy
  • Understand how accessibility and use of data can address workforce challenges via rates and reimbursement
  • Understand how accessibility and use of data can address workforce challenges via quality standards
Click here to register for this event. 

The NYSCRC Caregiver Simulation | Friday June 21st | 
1:00-4:00 | Mt. Morris, NY | Sponsored by the Genesee Valley Health Partnership | Details Here

2019 Aging Concerns Unite Us (ACUU) Conference
Tues, June 11 - Wed, June 12, 2019
The Desmond, Albany, NY  Registration Now Open!
Curious about the Caregiver Simulation Experience -NYSCRC will be presenting an interactive experience on Wednesday. Learn about how you can bring this valuable offering to your community.

To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2