Working to ensure that all caregivers receive the respite and support they need.
Every May, the Administration for Community Living leads the nation's observance of Older American's Month. The 2018 theme is
Engage at Every Age
. This theme emphasizes that no one is too old (or young) to take part in activities that can enrich physical, mental, and emotional well-being. It also celebrates the many ways in which older adults make a difference in communities. Visit the Official OAM Website
May 10th - Children's Mental Health Awareness Day
Learn how YOU and your community can get involved
National Children's Mental Health Awareness Day
seeks to raise awareness about the importance of children's mental health and show that positive mental health is essential to a child's healthy development.
Partnering for Heath and Hope Following Trauma
will focus on the importance of an integrated approach to caring for the mental health needs of children, youth, and young adults who have experienced trauma as well as their families. More than 1,100 communities and 160 national collaborating organizations and federal programs will organize local Awareness Day activities and events around the country.
Spotlight on Male Family Caregivers
The face of American caregiving is changing rapidly
, according to
"Breaking Stereotypes: Spotlight on Male Family Caregivers,"
a recent report from AARP.
Eight years ago, 34 % of caregivers surveyed were men, Today, 40 % of the 40 million Americans caring for a loved one are male.
Information and Resources for male caregivers
Male Caregivers: Growing in Number and in Needs
The Rapid Rise of the Make Caregivers
Caregiver Profile: The Male Caregiver -
AARP public Policy Institute
This profile summarizes data from the Caregiving in the U.S. 2015 research study, jointly conducted with the National Alliance for Caregiving and AARP.1 While the data presented below provide aggregate information about the average caregiver, it should be noted that the face of caregiving is changing. Family caregivers come in all variations and circumstances-from the grandson helping his grandmother out by cutting the grass and driving her to the store a couple hours a week; to the mother helping her adult son 10 hours a week with various activities due to his post-traumatic stress disorder; to the adult daughter caring for her mother with Alzheimer's; to the wife caring for her husband around the clock to deal with his stroke, diabetes, and wound care.
short term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.
Respite is often referred to as
"giving the gift of time"
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn to help. NYSCRC has trainers across NYS.
If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the Coalition can connect you with a REST Trainer in your area.
Upcoming Companion Trainings
Wednesday May 22nd - Painted Post NY
Cortland County Area Agency on Aging
Tuesday June 19th | 8:00 - 4:00
Upcoming Train the Trainer Sessions
Thursday - Friday - May 17 - 18 | 9:00-5:00 both days
Thursday -Friday - May 31 - June 1 | 9:00-5:00 both days
Calling All REST Trainers -
NYSCRC Monthly Networking Call
AS PARENTS PROGRAM (RAPP)
For Grandparents and Other Relatives Raising Children
FOR IMMEDIATE RELEASE
Seed Grants Available for the Creation or Expansion of Supportive Services to Grandparents and Other Relatives Raising Children
Teaneck, New Jersey - May 1, 2018 - The Brookdale Foundation Group has issued a Request for Proposals (RFP) for the creation or expansion of supportive services to grandparents and other relatives raising children. Up to 15 programs will be selected to receive a seed grant of $15,000 ($10,000 and $5,000 respectively), contingent upon progress made during year one and potential for continuity in the future. On-going technical assistance will also be provided. Any 501 (c)(3) or equivalent not-for-profit organizations can apply. The RFP and guidelines can be downloaded by visiting our website:
For more information about proposals for the Relatives as Parents Program Click Here
Proposals are due at the Brookdale Foundation Group office in New Jersey on Wednesday, June 13, 2018.
Selected applicants will be required to attend an Orientation and Training Conference, as our guests, to be held October 25-27, 2018 in Teaneck, NJ.
The National Group Respite Program
Since 1989, the Brookdale National Group Respite Program has awarded seed grants to organizations to develop and implement social model group respite programs. These day programs have served thousands of elders with Alzheimer's disease or related dementia and their family caregivers. In addition to group respite, the development of programs for people with Early Memory Loss (EML) is also supported through this grant initiative.
The goals of the program are:
- to offer opportunities for persons with Alzheimer's disease or a related dementia to engage in a program of meaningful social and recreational activities in a secure and supportive setting in order to maximize their cognitive and social abilities; and
- to provide relief and support to family members and other primary caregivers of individuals with Alzheimer's disease or a related dementia.
A 2018 Request for Proposals (RFP) is Now Available for Agencies Interested in Creating Group Respite or Early Memory Loss Program for Elders with Dementia.
For more information about proposals for the National Group Respite Program Click Here
Request t0 Complete Long Term Care Planning Council Survey
from the New York State Office for the Aging
In Governor Cuomo's 2018 State of the State, he announced the launch of a Long Term Care Planning C0uncil to prepare for emerging needs of New York State's growing aging population. The charge of the Council is to examine New York's long term care system. Specifically, the Council will:
- Analyze, Evaluate, and identify the existing service gaps in New York's long term care system;
- Determine the most cost-effective evidenced-based interventions; and
- Prepare a strategic plan to meet the emerging needs of New York's aging population over the next decade.
For the purpose of this Council, the "long term care system" should be broadly interpreted to include a variety of services and supports that help meet both the medical and non-medical needs of individuals with a chronic illness, disability, or functional need, and includes services and supports for caregivers.
The New York State Office for the Aging and the NYS Department of Health have created a general survey to hear directly from you, your clients/customers, stakeholder groups and coalition partners on what you are experiencing at the community level in terms of supporting the autonomy and independence of older New Yorkers and their caregivers. We are interested in learning directly form you not only what works well and should be expanded, but what gaps exist and what you propose are ways to fill those gaps. Specifically, we are looking for as wide a distribution of this survey as possible, so feel free to pass it on, as the goal is to get broad representation of older adults themselves and caregivers from across the state.
NYSOFA is asking that you take the following two actions:
- Please complete this survey on line and submit by June 18, 2018; and
- Distribute the general survey to any stake holders you know, including older adults, caregivers, community-based organizations and coalition partners that you believe would offer substance to this data gathering phase. Link to the survey
A new report from the Alzheimer's Association
Looking for Alzheimer's caregiving information in Spanish?
Check out Cómo cuidar a una persona con la enfermedad de Alzheimer: Una guía fácil de usar del Instituto Nacional Sobre el Envejecimiento.
This new book from the National Institute on Aging at NIH has helpful tips on topics including: changes in behavior; wandering; healthy eating and exercise; and caregiver health. Copies are available to order for free , or read the new Spanish language Alzheimer's information for caregivers online.
Projected Costs of Informal Caregiving for Cardiovascular Disease: 2015 to 2035
A Policy Statement From the American Heart Association
SB Dunbar at al, Circulation, published online April 9, 2018
A recent American Heart Association report estimates that by 2035, medical costs and productivity losses of cardiovascular disease (CVD) are expected to grow from $555 billion in 2015 to $1.1 trillion. This estimate does not include family, informal, or unpaid caregiving costs, including respite, provided to patients with CVD. This analysis estimates projected costs of informal caregiving associated with CVD for 2015 to 2035.
Carer-Related Research and Evidence Exchange Network (CAREN)
The Open University
This freely accessible knowledge exchange resource is for carers, employers, policy makers, practitioners, researchers, third sector organizations and research funders around the globe. Carer-related knowledge, such as research evidence, practice and policy is included in the
maintained by the Open University in the United Kingdom. It is based on carer-related research and knowledge funded by the National Institute for Health Research School for Social Care Research (NIHR SSCR). The resources within this network, organized into 62 themes, include
respite specific studies
. Review a list of resources within each theme, click on an author's name to find additional resources by that author, and use the DOI and other links to access the original source material (although some source materials require subscription or permission).
Caregiver Survey now Available at NYSCRC.ORG
Caregivers alone provide 80% of all long-term care in NYS. NYSCRC understands the unique needs of caregivers. Through training and education, we focus on increasing caregiver access to respite resources. The Caregiver Self Assessment Survey is designed to assist caregivers in recognizing the importance of self-care.
NYSCRC Virtual Resource Center
NYSCRC provides a variety of resources and training opportunities for professionals and caregivers. Click on the desired training for description.
Caregiver Simulation Event Scheduled
Friday June 15th - Sponsored by the Chemung County Department of Aging & Long Term Care
Often people who have not yet found themselves in a caregiving relationship cannot imaging the day-in and day-out financial, emotional, physical, spiritual and societal impact it has on a person. Be prepared to walk away from this event changed!
Powerful Tools for Caregivers
Finger Lakes Caregiver Institute Powerful Tools Spring Schedule
Steuben | Wayne | Yates | Seneca | Ontario | Livingston | Chemung
Additional NYSCRC Training Resources
Share the Care
Mindfulness for Caregivers
To schedule events or have your events posted in the newsletter - please contact Doris Green | 585-287-6393
Conferences and Webinars
INFORMATION AND Inspiration for older Adults and Caregivers - Month of May
2018 Regional Caregiver Forums
The Association on Aging in New York encourages staff who oversee and provide
Caregiving and/or NY Connects services, as well as those in the KinCare Coalition Network, to attend the Spring 2018 Regional Caregiver Forums, "Caregiving and Respite Across the Lifespan: Linkages and Partnerships".
Caregivers are encouraged to join the afternoon session of the each of the forums
PUBERTY, SEXUALITY, AND BEHAVIOR - How to Guide Young People with Disabilities - Sponsored by The DDPC
You Don't Have to Do It Alone- Understanding and Navigating the World of Caregiving - Sponsored by
Fairport Baptist Homes
Thursday May 3rd, 10th, 31st | Tuesday May 29th| 6 :30 - 7:45 pm
ACUU (Aging Concerns Unite Us) - June 5th - June 6th
Albany, NY - Desmond Hotel See Details
NYSCRC Annual Business Meeting - Tuesday June 5th 4:30-5:30 - The Desmond Hotel Suite 112
Thank you to the Association on Aging for providing space during ACUU.
State Society on Aging Conference (SSA) - Saratoga Springs
October 25-27, 2018
"The Many Worlds of Aging: Implications for Policy, Research, Education and Practice." more information available at www.ssany.org
Finger Lakes Geriatric Education Center
Spanning the Continuum of Care: Innovations in Geriatric Heath Practice
Friday September 29th - Click Here
International Short Break Association - Worldwide Conference
"Opportunities and Co-Creation"
n4a Annual Conference and Tradeshow
July 28-August 1, 2018
This year's National Association of Area Agencies on Aging's (n4a) Annual Conference in Chicago will focus on preparing leaders of Area Agencies on Aging and Native American Aging Programs to be prepared for future challenges and opportunities. No other conference addresses the specific needs of AAAs through educational, networking and engagement sessions. The n4a Annual Conference & Tradeshow is the largest gathering of local aging leaders and professionals in the United States with more than 1,000 Aging Network professionals in attendance.
2018 Lifespan Respite Sustainability Summit
The purpose of the Summit is to strengthen state and community partnerships to sustain Lifespan Respite activities; develop strategies to maximize use of existing respite resources and identify and leverage new respite funds; engage in sustainability planning and/or generate innovative activities for future development. Plan on being apart of this important and exciting event
Hosted by the New York State Caregiving and Respite Coalition and ARCH National Respite
October 18, 2018
Hearst Media Center, Albany, NY
Details Coming Soon!
2019 ARCH National Respite Conference
Buffalo, New York
Hosted by the New York State Caregiving and Respite Coalition
Adam's Mark and Hotel and Conference Center
May 1-2, 2019
The theme of the 2019 ARCH National Conference will be "Illuminate Respite." This theme is inspired by the rich history of Buffalo, located on the shores of Lake Erie near Niagara Falls. In the late 19th century, Buffalo was the first city to implement widespread streetlights, earning it the nickname, "The City of Light." During this time Buffalo was a hub of innovation, using natural power to bring light and growth to the city. This conference will provide a space to harness the power of the network to explore and formulate strategy to shine a light on the respite needs of 43 million caregivers. Conference Website
To learn more, call
1-800-342-9871. Or go to
Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2
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