Working to insure that all caregivers receive the respite and support they need.

Celebrate National Family Caregivers Month

Caregiver Action Network, which sets the theme for National Family Caregivers Month, recognizes the challenges family caregivers face when their loved ones need round the clock care. National Family Caregivers Month is a time to celebrate family, raise awareness of family caregiver issues and increase support for family caregivers. Click here for the theme, background on National Family Caregivers Month and a sample proclamation for state and local governments.

NYSCRC welcomes 5 new REST Trainers
Catholic Charities, Schenectady

Catholic Charities Senior and Support Services staff:
Erin Szesnat, Erin Plonka, Lauren Harrington, Tracy Paradise and Francine Mead. 
Doris Green REST Master Trainer
Statewide trainings have been generously supported by the New York State Office of the Aging, AANYS and LiveOn NY.

New York currently has 6 Master Trainers and 117 REST Trainers, 24% of the REST Trainers in the nation!

Our Trainers are working to train an unprecedented number of Volunteer Respite Companions around the state. We currently have 117 people trained to provide competent respite care.

  REST training is also funded by The Finger Lakes Geriatric Education Center/University of Rochester Medical Center for the following counties: Allegany, Cayuga ,Tioga, Tompkins, Cortland, Chemung, Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Schuyler, Steuben, Tioga, Tompkins, Wayne, Wyoming and Yates.  
Any organization, person or faith community in the state can access Train-the-Trainer programs as a way to provide evidenced informed training for volunteer respite programs.
For information contact Doris Green

NYSCRC Staff was invited to participate in two Train the Trainer modules which are part of a Developmental Disabilities Planning Council (DDPC) initiative targeting family caregivers by providing opportunities for support training. Our own Sharon Cackett attended The Positive Adult Development curriculum and the Mindfulness Based Stress Reduction (MBSR) courses which are evidence based programs developed by researchers at the Vanderbilt  Kennedy Center for Excellence in Developmental Disabilities. The program will be introduced to western New York and New York City in years two and three of the initiative. 

Charting the LifeCourse Tools

Missouri Family to Family, which is housed within Missouri's University Center for Excellence in Developmental Disabilities Education, Research and Services (UCEDD) at the University of Missouri-Kansas City Institute for Human Development, in collaboration with the ARCH National Respite Network and Resource Center, developed Charting the LifeCourse Respite materials that were released at the National Lifespan Respite Conference. The materials include a Respite guide book, portfolio and other tools meant to help family caregivers caring for anyone of any age or disability and those who support them create a plan to access respite services within and outside the formal services system.
The purposes are to provide:
  • information on the importance of respite for the well-being of the family caregiver and all family members;
  • tools for thinking about and planning for respite; and
  • additional resources for finding informal respite in the community.
Information on how to use the Charting the LifeCourse respite materials can be found in this Power Point Presentation of Jane St. John, Community Inclusion Specialist and Field Research Specialist for the Missouri Family to Family team at the UMKC-Institute for Human Development at the 2017 ARCH National Lifespan Respite Conference. Stay tuned for additional training opportunities on how to best use the tools.

Trends in 1115 Waivers Impacting Seniors and People with Disabilities - National Council on Healthy Aging (NCOA) and Disability and Aging Collaborative, October 13, 2017

NCOA and the Disability & Aging Collaborative host webinars to help state advocates avoid cuts to home and community-based services and encourage the adoption of the Affordable Care Act options for new long-term services and supports. In October, Trends in 1115 Waivers Impacting Seniors and People with Disabilities was presented by Judy Solomon,Vice President for Health Policy Center on Budget and Policy Priorities and David Machledt, Ph.D.,Policy Analyst, National Health Law Program. Access the archived webinar.

Employer Tools to Support Working Caregivers
Northeast Business Group on Health
Almost 1 in 6 employees in the U.S. care for parents, siblings, children, relatives, or friends. Half of the current working caregivers are Millennials and GenXers. The numbers are projected to grow, with more people needing care than there will be available caregivers. Caregiving benefits can be powerful retention tools for employers, and supporting working caregivers need not be expensive. Many employers still need to learn how to support their working caregivers. Northeast Business Group on Health has partnered with AARP to create a three-pronged approach to help educate employers. Access the free toolkit

Caregiving in the LGBT Community:A Guide to Engaging and Supporting LGBT Caregivers through Programming
SAGE, September 2017
Get an overview of caregiving in the LGBT community, ideas, lessons learned, and best practices to expanding programming for LGBT caregivers and those who care for LGBT older adults. The guide is also applicable for all caregivers and those they serve. Included is a list of resources for service providers and for caregivers.

Medicaid Moving Ahead in Uncertain Times: Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2017 and 2018 - Kaiser Family Foundation, Oct 19, 2017
This report provides an in-depth examination of the changes taking place in Medicaid programs across the country as Congress continues to debate major ACA repeal and replace legislation. The findings are drawn from the 17th annual budget survey of Medicaid officials in all 50 states and the District of Columbia conducted by the Kaiser Family Foundation (KFF) and Health Management Associates (HMA), in collaboration with the National Association of Medicaid Directors (NAMD). Policies in place in state Medicaid programs in FY 2017 and policy changes implemented or planned for FY 2018 are highlighted. Key findings show that despite uncertainty about federal legislative changes, many states were continuing efforts to expand managed care, move ahead with payment and delivery system reforms, increase provider payment rates, and expand benefits as well as community-based long-term services and supports.
Read Report including section on Long-Term Services and Supports.
It's National Caregiver Month
See what's happening...

Lifespan of Greater Rochester

Free workshops! November 2017
Reservations required
244-8400 ext. 201

 Saturday, November 11th - Erie County


Friday, November 17th - Cortland County Area Agency on Aging
 Caregiver Appreciation Luncheon

Friday, November 17th - Poughkeepsie
13th Annual Caregiver Conference
"Hats off to Caregivers" Event Flier


To learn more, call

1-800-342-9871. Or go to 


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