Working to insure that all caregivers receive the respite and support they need.

NYSCRC 2017 Conference a GREAT Success!

Thank you to all our sponsors, volunteers and attendees for making "Understanding and Effectively Engaging Caregivers" a rich and educational experience!  Thank you to the volunteers at the Caregiver Simulation who helped to make this an enriching experience for all participants!

What better way to understand caregivers than to spend a few hours in their shoes. The caregiver simulation allows participants to experience a fraction of the challenges caregivers face day-in and day-out. Each participant is assigned a role, and has tasks, dilemmas and opportunities to navigate throughout the afternoon. We believe that this experience can develop empathy for caregivers, care receivers and agencies who are involved along the way.


To learn more about bringing the Caregiver Simulation experience to your organization, Contact   Doris Green    585-287-6393.

Learn about REST. 

REST Reception for Trainers - 2017 NYSCRC conference

A wonderful opportunity for REST Trainers to gather for networking!!

Kelly Fitzerald: REST and Sharon Cackett: NYSRC, Master Trainer
New York welcomes three new Master Trainers:
Pictured from left to right:
Lois Sheaffer: REST Director
Eugene Abrahamson: New Master Trainer, Hearts and Hands - Erie County
Denise Bell: New Master Trainer, Lifespan - Monroe County.
Shellie Spinelli: New Master Trainer, Broome County OFA

Statewide trainings are generously supported by the New York State Office of the Aging, AANYS and LiveOn NY. This funding is time limited.  REST training is also funded by The Finger Lakes Geriatric Education Center/University of Rochester Medical Center for the following counties: Allegany, Cayuga ,Tioga, Tompkins, Cortland, Chemung, Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Schuyler, Steuben, Tioga, Tompkins, Wayne, Wyoming and Yates.  
Any organization, person or faith community in the state can access Train-the-Trainer programs as a way to provide evidenced informed training for volunteer respite programs.
REST Train the Trainer Opportunities:
Register at
  Schenectady - October 25-26    R egistration deadline 10/20/17.

New York Receives REST National Vision Award
NY received the National "Vision" Award" for training the most REST Trainers in the nation in 2017!

Pictured from left to right:
Jeff Duncan - Nevada Aging and Disability Services Division. Nevada received an award for training the most REST Companions in 2017.
Lois Sheaffer - REST
Doris Green - NYSCRC Director
Wendy Berk - REST
Legislative Updates
Caregivers Act Clears Senate
Reprinted from Disability Scoop by Michelle Diament | October 10, 2017

Legislation to establish a federal strategy to address the needs of family caregivers - including those supporting people with developmental disabilities - is gaining steam.

The U.S. Senate unanimously approved a bill known as the Recognize, Assist, Include, Support and Engage, or RAISE Family Caregivers Act late last month. The legislation now goes before the House of Representatives.
The measure would direct the secretary of health and human services to create and implement a national plan to "recognize and support family caregivers" that incorporates recommended steps that can be undertaken at the federal, state and local level.

In addition, the bill calls for the secretary to convene a family caregiving advisory council comprised of federal officials and stakeholders in the community to weigh in on what the government can do to assist an estimated 40 million family caregivers nationally.

Sponsored by lawmakers from both parties, the caregivers act has support from Autism Speaks, the Autism Society, Easterseals, United Cerebral Palsy, The Arc and other disability groups.

"By passing the bipartisan RAISE Family Caregivers Act in the Senate, we have taken an important step forward to formally recognize and support our family caregivers across America," said Sen. Tammy Baldwin, D-Wis., who spearheaded the legislation along with Sen. Susan Collins, R-Maine. "If we are serious about ensuring that our older adults and loved ones with disabilities receive the highest quality care in their own homes, then we owe it to our current and future generations to continue to fight to see the RAISE Family Caregivers Act move forward and be signed into law."

Paid Family Leave - Coming to New York in January 2018

 According to AARP, the paid-family-leave program, which Gov. Andrew Cuomo (D) signed into law last year, lets workers take paid time off to care for a newborn or a close relative with a serious illness or when a family member is called for active military duty.

Virtually all private employers in the state are required to offer the benefit to workers who have been employed full time at least 26 weeks or part time for 175 days. Public employers may opt in.

In 2018, employees can receive half of their weekly wages for up to eight weeks. Over the next three years that will increase to 67 percent over 12 weeks.
If workers earn more than the statewide average weekly wage (currently $1,305.92), replacement wages will be capped at a percentage of that amount, starting at 50 percent and rising to 67 percent by 2021.

Employees are also entitled to return to their old jobs, or one with comparable pay and benefits, and continue their health insurance, paying their portion of the premium while they're out.

The benefit, funded through payroll deductions, is available to noncitizens and undocumented workers, too.

The state benefit is in addition to the federal Family and Medical Leave Act of 1993, which allows eligible workers to take up to 12 weeks of unpaid job-protected leave for certain medical and family reasons.

The New York State Paid Family Leave Program-advocated by AARP New York-is expected to help an estimated 6.4 million state residents who lack access to paid family leave, according to A Better Balance, a national legal advocacy group.


U.S. Home Care Workers: Key Facts
U.S. Nursing Assistants Employed in Nursing Homes: Key Facts
Robert Espinoza, PHI Vice President of Policy, and plenary session presenter at the upcoming ARCH conference, announced the release of the latest data on the direct care workforce. In 2016, there were 2.4 million home care workers and more than 600,000 nursing assistants working in nursing homes. Due to low wages and part time hours, many live below the federal poverty line and rely on some public assistance. Most are female, the majority are people of color, and more than a quarter are immigrants. Access the home care workers brief, the nursing assistants brief and an interview with economist and author Paul Osterman.

The Many Faces of Caregivers: A Close-Up Look at Caregiving and Its Impacts
Transamerica Institute
September 2017

The Transamerica Institute's inaugural study of caregivers comprehensively examines the state of unpaid caregiving in America. As people enter a time where they will likely need to be a caregiver, many find themselves unable to retire. Coupled with a healthcare system that is often difficult to navigate, this can be a challenging situation. The survey uncovers the various challenges caregivers face, their physical and financial health, and the support they want. 
Read the report.

The 2017 National Family Caregivers Month Theme: Caregiving Around the Clock

The Caregiver Action Network recognizes the challenges family caregivers face when their loved ones need round the clock care. National Family Caregivers Month is a time to celebrate family, raise awareness of family caregiver issues and increase support for family caregivers. Click here for the theme, background on National Family Caregivers Month and a sample proclamation for state and local governments.
Upcoming Events

Lifespan of Greater Rochester

Free workshops! November 2017
Reservations required
244-8400 ext. 201

Wed., Friday, November 1-3, Potsdam
NTG Dementia Capable Care of Adults with Intellectual Disabilities and Dementia 

This specialized training curriculum acknowledges the emerging need for professionals who are capable and comfortable with interventions and supports related to the nuances of dementia and intellectual disabilities (ID). Caring for individuals with ID and dementia requires a significant shift in skill set and a change in philosophy of care (as opposed to care philosophies inherent to lifelong intellectual disabilities).  Attendees will gain in-depth knowledge of the levels of cognitive function seen across the various stages of illness as well as practical dementia care approaches tailored to the individual's current cognitive level. The workshop is appropriate for any staff with direct or ancillary care responsibilities of older adults with intellectual and developmental disabilities in both disability-related, health care, and aging-related agencies.
Friday, November 3rd - Kingston
10th Annual Circles of Caring-Aging and Caregiver Conference:
"Detoxifying the Caregiver" with Keynote: Dr. Larry Force.
Best Western Hotel and Conference Center 
For conference information and registration contact Sharon Murray-Cohen


Friday, November 17th - Cortland County Area Agency on Aging
 Caregiver Appreciation Luncheon

Friday, November 17th - Poughkeepsie
13th Annual Caregiver Conference
"Hats off to Caregivers" Event Flier


To learn more, call

1-800-342-9871. Or go to 


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