Working to ensure that all caregivers receive the respite and support they need.

2018 Lifespan Respite Sustainability Summit
Only 5 more days to REGISTER
Registration Deadline Friday October 5th at 5PM
Marriot reduced rate room block for October 17th...just a few rooms left...Book now!

October 18, 2018
Hearst Media Center, Albany, NY

Presented by NYSCRC in partnership with the Administration on Community Living, ARCH National Respite, NYSOFA , MCOFA and Lifespan of Greater Rochester. 

We are seeking a diverse group of participants for this working meeting, with representation from every region of the state and from all disability and disease related organizations who strive to support caregivers.  If you know of caregivers that would to lend their voice, we welcome them as well. READ MORE

In order to have the best possible outcome, it is our expectation that participants attend the entire day.   If you are registered and cannot attend, please let us know who will be coming in your place.  All work groups will be pre-assigned.
 A special Thank you for the generous support of AGS.
 For more information please contact Doris Green


The Theme for National Caregivers Month November 2018 is....SUPERCHARGE YOUR CAREGIVING!
Caregivers are superheroes. Managing medications. Getting to doctor appointments. Balancing work and home. How can family caregivers handle it all? Even superheroes need tools! Thankfully, new caregiving tools can help lighten the load.  Each year, Caregiver Action Network sets the theme for November's National Family Caregivers Month. CAN recently announced that this year's theme will be "Supercharge Your Caregiving."  For a downloadable version of this year's theme, click HERE. For more information on National Family Caregivers Month, click HERE.  
Research  Opportunities

The National Alliance for Caregiving, in partnership with the Crohn's & Colitis Foundation and ImproveCareNow, is launching a first-of-its-kind survey of inflammatory bowel diseases (IBD) caregivers. The survey, which is being conducted by researchers from Crimson Research at New Mexico State University, is seeking feedback from family caregivers of children and adults living with Crohn's disease or ulcerative colitis, the two major types of IBD. "Through this survey, we hope to capture the power behind these unpaid friend and family caregivers and to articulate what they are doing so that they can serve as a model for caregivers in other communities," explains C. Grace Whiting, President and CEO of the National Alliance for Caregivng. To take the survey, click  HERE

The Depression and Bipolar Support Alliance have teamed up to elevate the voices of people living with depression and bipolar in research and therapy development. A first-of-its-kind "Supporting Wellness"  survey invites your perspective on diagnosis, goals for wellness, and what research priorities you recommend based on your personal experiences. The findings from this research will be shared with FDA, research funders, and broadly in the community by the Milken Institute and DBSA. To participate, click HERE .
Legislative and Policy Updates

Governor Cuomo Announces $8.4 Million to Combat Elder Abuse and Financial Exploitation
The Office for the Aging is partnering with Lifespan, which is based in Monroe County, and Weill Cornell Medicine's NYC Elder Abuse Center to manage, monitor, and distribute the funding this year through Sept. 30, 2020. The funding will sustain and expand existing enhanced multidisciplinary teams and create additional teams to ensure that every county in the state is represented, as well as provide technical assistance and training; collect data; and provide teams with forensic accounting, geriatric psychiatry services and community legal services, depending on the needs of cases they are handling. Read More
National Respite Coalition - Legislative Alert
Lifespan Respite Care Reauthorization Act (HR 2535; S 1188) Introduced in the House and Senate.  Read more on the  Lifespan Respite Reauthorization Action Center!

Respite Resources

Generations United seeks to support Grandfamilies or kinship families are families in which children reside with and are being raised by grandparents, other extended family members, and adults with whom they have a close family-like relationship such as godparents and close family friends. About 7.8 million children across the country live in households headed by grandparents or other relatives. About 2.5 million grandparents report they are responsible for their grandchildren's needs. In about a third of these homes neither of the children's parents are in the home. New York State Grand Facts
ARCH National Respite |9 Steps to Respite Care

RESPITE, or   short-term temporary relief, supports caregivers who are caring for loved ones. Respite allows caregivers to step away from their duties to refresh and relax.  Respite is often referred to as "giving the gift of time"
REST is an evidenced-based, national training program which prepares people, in both formal and informal support networks, to learn how to help. NYSCRC has trainers across New York State. 

If your organization would like to provide REST Companion Trainings for YOUR volunteer program, the NYSCRC  can connect you with a REST Trainer in your area.  For information contact Sharon Cackett.
Paul's Place - Faith Based Respite opening Oct 18th | Penn Yan
Paul's Place is opening as an outcome of the NYSCRC mini grant received by The Living Well. Welcome New REST Companions
This amazing group has been recruited and trained, ready to provide companionship to those with a memory loss, while their caregiver takes an often much needed respite. St. Paul's Lutheran Church on Hamilton Street in Penn Yan will host the program. For more information, please contact Kimberly Lyons at (315) 536-0838 | Grand Opening Flier

Participate in the 2018 REST Companion Challenge for National Family Caregivers Month in November (REST National) Details

Upcoming Companion Trainings
Two Part Training | October 20th & 27th | 9:30 - 1:30 | Ulster County
Vineyard Commons | 6 Merlot Drive | Highland NY | Details

NYSCRC Virtual Resource Center
Share the Care Event held in Painted Post in September, 38 people particpated in the day long learning event!
Sheila Warnock, Co- Author of the Share the Care presented on the techniques behind organizing a group for caregiving.  NYSCRC is continuing this effort by providing the opportunity for organizations to take advantage of NYSCRC resources to introduce these techniques to your staff.  For more information contact Sharon Cackett
This successful educational event was funded by the Finger Lakes Geriatric Education Center
Virtual Resource Center Online
Powerful Tools for Caregivers leader training are now being offered through the virtual resource center.  We offer Powerful Tools for Caregivers leader training for caregivers of parents of children with special needs.  Limited funding available to provide leader trainings for 10-12 people in your county.  For information contact Doris Green

Additional NYSCRC Training Resources
To schedule events or have your events posted in the newsletter, please contact Doris Green | 585-287-6393

Caregiver Events Around the State
Upcoming Trainings for Caregivers:
Lifespan Fall Workshops - See what you can learn at Lifespan!
Tai Chi for Arthritis | Medicare 101 | Powerful Tools for Caregivers |
Matter of Balance | Fall Prevention | Legal and Financial Planning for Families Impacted by Dementia | Living Health with Diabetes | Explore Your Future

Proactive Caring Stress Reduction Series
Free Training for parents and other caregivers who are raising children or caring for other family members with intellectual, developmental, and/o other disabilities.
Three program options available:
Hudson Valley Behavioral Solutions | Hopewell Junction - Oct. 2,16,30
-Mount St. Mary College | Newburgh | Oct 10, 25 and Nov 7 
-Center for Spectrum Services | Ellenville | Oct. 10, 25 and Nov. 7  Details
St. Regis Mohawk Tribe Memory Café & Support Group | Thurs Oct 4 |
5 -7 pm Details

Give Them A Break - Open House
Faith In Action Steuben County
Thursday October 18, 2018
Are you a caregiver to an older adult with dementia, in Steuben County? Come visit this open house for Give Them a Break | Thursday, Oct. 18, 2018 | Details
LGBTQ+ Care Partner Programs | Monroe
Offered through a collaboration between the Finger Lakes Caregiver Institute at Lifespan and the Out Alliance | October - December Schedule
Alzheimer's Association Specialty Support Group
For individuals living with Alzheimer's and other Dementias - Caregiver Support Group simultaneously. | Second Tuesday of the Month | Rochester | Details

Caring for the Caregiver Conference
Presented by UR Medicine Homecare
Thursday, October 25, 2018 | 9AM -3PM | Canandaigua
Keynote: Martha Stettinius, Author, Inside the Dementia Epidemic: A Daughter's
Memoir | Register Here
2nd Annual Alzheimer's Association Go Purple! Initiative
The Alzheimer's Association of the Rochester & Finger Lakes invites you to make an impact in your faith community!
November 3rd | Rochester | Details
Caring for the Caregiver Retreat| Nov 17th |Leicester |   Event Flier
Caregiver Summit/Cumbre Para Cuidadores
A free event specifically for caregivers of people living with Parkinson's
Saturday December 1st | 10:00 - 2:45 | Nazareth College | Rochester  Event Flier

Conferences and Webinars
New Save-the-Dates!
MCOFA Public Hearing / Elder Law Fair |Oct 13th Rochester brochure 
State Society on Aging Conference (SSA) | Saratoga Springs October 25-27, 2018
 "The Many Worlds of Aging: Implications for Policy, Research, Education and Practice."   more information available at
2018 NYS Adult Day Service Providers Symposium
November 7-9 | Gideon Putnam | Saratoga Springs | Save the Date
Mercy Care for the Adirondacks - Educational Forum on Age Friendly Health Systems
November 15, 2018 | Paul Smith's College | Save the Date

ARCH National Respite Conference

Hosted by the NYS Caregiving and Respite Coalition

In Partnership with NYSCRC, managed by Lifespan NYS Office for the Aging | Monroe County Office for the Aging


Adam's Mark Hotel and Conference Center | April 30 - May 2

Conference Website


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To learn more, call

1-800-342-9871. Or go to 


Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

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