National CMV Foundation eNews | May 2023

In this edition...
  • Faces of CMV Campaign
  • CMV Educational Materials
  • Podcast Episode Featuring Megan Nix
  • Upcoming Strides Events
  • CMV Community Survey
  • National CMV Family Database
Faces of CMV Campaign
CMV Awareness Month will soon be here! June is Cytomegalovirus (CMV) Awareness Month, a yearly campaign intended to provide education, information, and resources about the risks of congenital cytomegalovirus (cCMV). This year’s theme is #StopCMV #AllTogether4CMV! Great strides have been made to increase CMV awareness and provide CMV education around risk reduction practices through partnerships and collaborative efforts worldwide, and we want to highlight these efforts.

One way we are increasing CMV awareness is through our annual Faces of CMV Campaign! This year, we have made it even easier for families to share their CMV journey with others. Simply fill out the survey and upload your photo here.

Together, we can promote and educate others on CMV risk reduction, screening, and critical early interventions! To learn more about our June events and ways to get involved, continue to visit our social media channels. Ready to donate to the cause? We NEED your support today! You can make a tax-deductible contribution here.
CMV Educational Materials
The National CMV Foundation is piloting a program to have a select number of educational materials available to order (for free) on our website. We want to ensure everyone can access information about reducing the risk of CMV during pregnancy and the next steps to take after a CMV diagnosis. Materials can be shipped in the US in quantities of 25 and will be delivered directly to you!

Anyone can order these CMV educational materials on our website by clicking here to complete the order survey. Be sure to share this opportunity with the healthcare providers in your area.

Want to help support our efforts to provide CMV education to all expectant parents and those with a CMV diagnosis? Your $25 gift provides 100 prevention rack cards that can be distributed to those who are pregnant or planning a pregnancy. You can donate here.
CMV Speaks Podcast Episode with Megan Nix
We invite you to listen to our most recent CMV Speaks podcast episode, featuring Megan Nix! Megan is a long-time cCMV advocate and the author of Remedies for Sorrow. In this episode, we dive into Megan's book and how she has used her family's story to advocate for CMV awareness. You can listen to the full podcast episode here.

Megan's writing has appeared in The New York Times; The Washington Post; Brain, Child magazine; and elsewhere. A graduate of the University of Alaska Anchorage Master of Fine Arts program in nonfiction. Megan divides her time between Colorado and Alaska with her husband and young children. To order your copy of this amazing book, you can visit the publisher's site here.

Upcoming Strides Events
Registration is now open for the 5th annual Strides 4 CMV Twin Cities! The 5k will be held June 24th come rain or shine! Early registration ends June 4th. Be sure to register early for a guaranteed shirt on race day.

Interested in volunteering to make this event a success? To learn more about volunteer opportunities please send us an email.

Sponsorship opportunities are available! If you are interested in sponsoring this year's event, please send us an email. 









Get ready for the 4th annual Strides 4 CMV Worldwide Virtual 5k on June 24th! Your challenge is to walk, run, or roll for 5k (3.1 miles) from anywhere in the world. You can decide to create your own team or participate by yourself. If you want to host an in-person event, make it simple by choosing a route and inviting your friends and family to walk, run, or roll with you.

We are looking for regional race captains, so if you wish to lead a group in your area, let us know here by sending an email.

Sponsorship opportunities are available! If you are interested in sponsoring this year's event, please send us an email.
CMV Community Survey
The National CMV Foundation values your feedback and requests your input on our community survey. We pride ourselves on developing high quality programming and impactful educational and awareness opportunities. Always open to new ideas, we desire to strengthen our programming, research, and advocacy efforts, and we want to hear your suggestions!

Please take a few minutes to complete our online survey. We thank you for your honest feedback!
National CMV Family Database

CMV Family Database
Your participation in this database provides information to researchers in the areas of diagnostics, treatment and prevention of CMV. It also allows us to connect you with newly diagnosed families and those interested in working on CMV advocacy.
National CMV Foundation | www.nationalcmv.org