NDRS Newsletter 21 February 2020
Welcome to the monthly NDRS newsletter
Each month we share the latest news from the National Disease Registration Service (NDRS) including new data releases, publications and events.

In this month's update, we share the preliminary statistics on 2018 cancer registrations, updates on the Cancer Data Conference 2020, and we announce new vacancies.

The National Disease Registration Service is part of Public Health England and collects data from the NHS about cancer, rare diseases and congenital anomalies in England.

It is made up of the   National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Diseases Registration Service  (NCARDRS). The NDRS uses data to detect changes in the health of the population and help the NHS improve the diagnosis and treatment of these diseases.

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Data releases and publications
2018 cancer registrations
In January, we published preliminary statistics on 2018 cancer registrations. These statistics were published by 3-digit ICD10 code, sex and quinary age group as national statistics. The data shows that there has been a 3.6% increase compared to 2017, and that prostate cancer is now the most common cancer.

This work has attracted media coverage and received attention from Actuarial Post and Prostate Cancer UK.
London Screening Intervention tools
Last month, the Transforming Cancer Services Team (TCST)-NCRAS partnership updated their London Screening Intervention tools. These dashboards show detailed information about planned screening interventions across London against screening coverage data. Data has been refreshed using updated information from stakeholders against screening coverage at April 2019.

By sharing this information, the delivery of interventions can be optimised across London, so that resources can be targeted where they are most needed. This will lead to increased coverage and reduced inequalities between populations.
Emergency presentation metric
We have updated the emergency presentation metric to include data up to June 2019. It is available by CCG and Cancer Alliance, and by cancer site.

The number of cancers diagnosed through emergency presentations has slightly increased, with the one year average rising by 0.1% to 18.7%. Despite this, the longer term trend shows a decrease in the number of emergency presentations.
Cancer Services profile update
We have expanded the Cancer Services profile on PHE Fingertips to include breakdowns at Primary Care Network (PCN) level.

The profiles are used by commissioners and health care professionals to assess the impact of cancer on local populations and make decisions about services. The tool also contains data on cancer services at GP and CCG level, which is collated by us here at NCRAS.
New blog for World Cancer Day
The 4th February marked World Cancer Day. To play our part in raising awareness, we published a blog which highlights how important cancer data is and how our work is helping to improve care for those affected by the disease.

The blog was also promoted on Twitter and received a positive response.
Be Clear on Cancer metric summaries
We continue to measure the impact of Public Health England's Be Clear on Cancer campaigns which encourage those with cancer symptoms to seek medical assistance.

Recently, we published updated evaluation metric summaries for the first national respiratory symptoms campaign and abdominal cancer symptoms campaign, which look at diagnostics in secondary care.
Papers published on errors in determination of net survival, cardiac mortality, and limitations of CPES data
NCRAS data was used in a paper published in the British Journal of Cancer (BJC) called " Errors in determination of net survival: cause-specific and relative survival settings". This work explores differences in cause-specific and relative survival estimates for common cancers.

Cancer registry data formed the basis of a study called " Cardiac Mortality after Radiotherapy, Chemotherapy and Endocrine Therapy for Breast Cancer: Cohort Study of 2 Million Women from 57 Registries in 22 Countries". The paper was published in the International Journal of Cancer (IJC) and found that the relative increase in cardiac mortality from cardiac exposure during breast cancer radiotherapy in the past was greater in younger women and when chemotherapy was also given.

A paper was published in the British Medical Journal (BMJ) Open called " How representative are colorectal, lung, breast, and prostate cancer patients responding to the National Cancer Patient Experience Survey (CPES) of the cancer registry population in England?". The work explains the limitations of CPES data compared to the wider cancer population.
Upcoming data releases
London: end of life treatment - 3rd March
On 3rd March, the NCRAS partnership with the Transforming Cancer Services Team (TCST) will be releasing a dashboard describing care at the end of life for London cancer patients. For people resident in London at diagnosis who died between 2014 and 2017 with cancer as the underlying cause of death, the dashboard describes:

  • Location of death
  • Occurrence of the ≥3 emergency admissions in the last 90 days of life
  • Length of stay in hospital in the last 90 days of life
  • Receipt of radiotherapy, chemotherapy or surgery in the last 90 days of life

The data is provided broken down by age at death, sex, income deprivation, ethnicity, tumour-site, stage, and area of residence at diagnosis. The dashboard will be accessible via the partnership webpage.
Get data out: new data for stomach oesophageal, bladder and kidney cancers, and sarcomas - 16th March
On 16th March, detailed statistics on stomach, oesophageal, kidney and bladder cancers, and sarcomas will be released as part of the Get Data Out programme from NCRAS. Statistics about incidence, routes to diagnosis and treatment will be available.
Cancer Data Conference 2020
Registration remains open for the Cancer Data Conference, and there are still a couple of days left to apply for the patient and carer bursary which closes on 23rd February.

We are also pleased to announce that the Parliamentary Under Secretary of State for Health and Primary Care, Jo Churchill MP, will be opening the conference as the keynote speaker. Further details of speakers will be added to the conference website in the coming weeks.

There are also opportunities to get involved via sponsorship and the conference exhibition. If you are interested, please get in touch or go to the conference website.
Other news
Now recruiting four new clinical leads
We are now looking to recruit four new clinical leads to support our data and analytical work across NDRS. These will be part-time secondments. Each lead will be a recognised expert in their field and we are particularly seeking experts in radiotherapy, systemic anti-cancer therapy, haematology, and congenital anomalies and rare diseases.

Please get in touch with Brian Rous for an informal discussion about the radiotherapy, systemic anti-cancer therapy, haematology roles, and Sarah Stevens for the congenital anomalies and rare diseases role.

All applications should be received by 5pm on 20th March 2020.
Annual SACT data completeness report
The annual SACT data completeness report has been released. The report provides completeness of SACT data items across a 12 month period (April 2018-March 2019 data). It demonstrates ongoing improvements in SACT data and highlights variation across tumour groups and data providers.
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