NDRS Newsletter 20 August 2021
NDRS News
Each month we share the latest news from the National Disease Registration Service (NDRS) including recent publications, data releases and upcoming events. 
  
This month, NDRS published the National Audit of Breast Cancer in Older Patients (NABCOP) 2021 Annual Report and 2021 Patient and Public Report. We share two reports evaluating the impact of the 'Be Clear on Cancer' campaign developed by Public Health England. Also, please see the Events section for details of our webinar series starting in September.

The National Disease Registration Service is part of Public Health England and collects data from the NHS about cancer, rare diseases and congenital anomalies in England.

It is made up of the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS). NDRS uses data provided by patients and collected by the NHS as part of their care and support. NDRS uses this data to detect changes in the health of the population and to help the NHS improve the diagnosis and treatment of these diseases.

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Data releases and publications
National Audit of Breast Cancer in Older Patients (NABCOP) 2021 Annual Report and 2021 Patient and Public Report published
NDRS recently published the 2021 NABCOP Annual Report and 2021 NABCOP Patient and Public Report. The reports are available to view here.

This year the NABCOP has reported on:
  • diagnosis and treatment patterns in England and Wales from 2019 to 2020 (using the Rapid Cancer Registration Dataset for the English data)
  • endocrine therapy prescriptions in England in 2018 (using the Primary Care Prescription Dataset)
  • outcomes data for patients diagnosed from 2014 to 2018
  • results from the NABCOP organisational survey
  • fitness assessment for older women in the breast clinic
The first page of the NABCOP Annual Report 2021
Pre-print published on COVID-19 infection, hospitalisation and death amongst people with rare autoimmune rheumatic disease in England
Using high quality NDRS data, the team from the Registration of Complex Rare Diseases Exemplars in Rheumatology (RECORDER) project recently published the pre-print of a new study.

The study found that between March and July 2020, during the first wave of the COVID-19 pandemic in England, people with rare autoimmune rheumatic disease were more likely to:
 
  • be infected by COVID-19 (1.5x)
  • die as a result of COVID-19 (2.4x)
 
This is compared to the general population.
 
The results highlight the urgent need to understand the real-world effectiveness of vaccination among people with rare autoimmune rheumatic diseases, as there are concerns that they may respond less well to vaccination than the general population.
The RECODER project logo
Paper published evaluating the impact of the 'Be Clear on Cancer' (BCoC) campaign
This month, NDRS published a study on the impact of the BCoC campaign, developed by Public Health England, on public awareness of key abdominal cancer symptoms. This was recently published in the European Journal of Cancer Care.

The study found that the campaign significantly improved knowledge of ‘bloating’ as a symptom compared to pre-campaign levels. GP attendances for abdominal symptoms also increased by 5.8%, although the actual increase per practice was small.
The 'Be Clear on Cancer' (BCoC) logo
Revised metric summaries for the first national 'Cervical Screening Saves Lives' 2019 campaign published
NDRS and Public Health England Screening have published 12 metric summaries evaluating the first national ‘Cervical Screening Saves Lives’ 2019 campaign. The summaries are published on the GOV.UK website.
The 'Cervical Screening Saves Lives' 2019 campaign logo
Radiotherapy Dataset (RTDS) Version 6 approved and published
The RTDS Version 6 has been formally approved and published. The RTDS Version 6 is intended to go live with patients treated in April 2022. The specification can be found here.
An icon of radiotherapy
Paper published on routes to diagnosis and the association with the prognosis in patients with cancer in Denmark
This month, NDRS provided input for a nationwide register-based cohort study in Denmark on routes to diagnosis and the association with the prognosis in patients with cancer. The study adapted the English approach to routes to diagnosis to the data available in the Danish system. It showed broadly similar associations between route and patient outcomes.
An icon of diagnosis
NHS Antenatal Screening Standards Data Report 2019 to 2020 published
This month, NDRS published the NHS antenatal screening standards data report 2019 to 2020, including national detection rates provided by NCARDRS to the NHS Fetal Anomaly Screening Programme (FASP). You can find the rates in Table 6 and Figure 9 of the report. NCARDRS produced these figures from an audit of the records of 5,521 babies, from 97% of NHS maternity providers, comparing the performance of FASP screening tests against the diagnostic gold standard to measure how well the screening tests detect certain congenital conditions.
An icon of a foetus
Paper published on children with haematological malignancies
NDRS have co-authored a study on children with haematological malignancies. This was recently published in the British Medical Journal (BMJ). The study shows that, in marked contrast to adults, children with haematological malignancies are not at higher risk of severe COVID-19 infection than children with other cancers.
An icon of COVID-19
NDRS contribution sent to Heath Economics in Radio-Oncology (HERO)
The Radiotherapy Dataset (RTDS) team within NDRS sent a contribution to Health Economics in Radiation Oncology (HERO). HERO is a pan European project comparing the cost of radiotherapy delivery run by The European Society for Radiotherapy and Oncology (ESTRO). The English contribution to this project is sponsored by the Royal College of Radiologists, with the counts for individual treatments provided by RTDS data.
The European Society for Radiotherapy and Oncology (ESTRO) logo
Events
Upcoming NDRS Webinars
We’re delighted to invite you to our upcoming webinars starting next month.

Please click on each link below for more information and to register for free.

All sessions will be recorded so you can watch back later.

Thursday 2nd September, 12 to 1pm

Thursday 9th September, 12 to 1pm

Thursday 16th September, 12 to 1pm

Thursday 23rd September, 12 to 1pm

Thursday 7th October, 12 to 1pm

Thursday 14th October, 12 to 1pm
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