CHAPTER EVENTS
- Help Kiss - Off Pancreatic Disease | Vero Beach, FL | January 26, 2019
- Project Cuffway | Tulsa, OK | May 3, 2019
- Strike - Out Pancreas Disease Louisiana Chapter | New Orleans | June 9, 2019*
- Western PA Gala | Pittsburgh, PA | September 23, 2019*
*Save the date! More details to follow.
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(Above)
March 8th - 10th, 2019 in Fort Lauderdale, FL.
The Annual Chapter Chairs’ Retreat is the cornerstone of the NPF’s chapters program allowing us to bring our core grassroots volunteers together for a weekend during which they connect, learn and train to better help meet the mission of the NPF.
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National Pancreas Foundation Opioid Statement of Principles
"Advocacy is one of the main pillars of the National Pancreas Foundation," said Executive Director, Matthew Alsante. "We felt that it was imperative we release a statement on the opiod crisis
, supporting the needs of the patients and families in our NPF community.
." To read the new
NPF Opioid
Statement of Principles, please click here.
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Education and advocacy are part of the National Pancreas Foundation's (NPF) mission. Please see the list of events that are coming up throughout the year. We hope you are able to join us! For a complete list, please see our
Events Page
.
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PATIENT EDUCATION EVENTS
- Minnesota Chapter Education Event | Minneapolis, MN | February 23, 2019
- Ohio/Kentucky Chapter Education Event | Cincinnati, OH | February 23, 2019
- Louisiana Chapter Education Event | New Orleans, LA | March 30, 2019
- Western PA Chapter Education Event | Pittsburgh, PA | May 11, 2019*
- Washington State Chapter Education Event | Seattle, WA | May 18, 2019*
- Indiana Chapter Education Event | Indianapolis, IN | September 21, 2019*
*Save the date! More details to follow.
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SUPPORT GROUPS
If you would like to create a support group in your city, please contact National Chapter Manager, Patrick Salami at psalami@pancreasfoundation.org.
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Shop with AmazonSmile and give back to the NPF!
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Getting to Know - Jane Macke, NPF Louisiana Chapter Chair
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The two most influential people in my life were my maternal grandparents. They exemplified and instilled in me many of the values I cherish today, especially the importance of family, community and giving of one’s time and talent to family and community. When my children were young, our community consisted of church and school, and following my grandparents’ footsteps, I gave my time and talent to those communities. Now, that my children are grown, I wanted to use my time and talent to give back to the community that provided me and my family with support when it was greatly needed – the pancreatic diseases support community and the National Pancreas Foundation.
When Cameron (my son) was first diagnosed with familial pancreatitis in 2006, I used my skills as a research attorney and found the NPF, which led me to Dr. Mark Lowe. After contacting and meeting with Dr. Lowe, he became a consulting physician to Cameron’s physicians at Children’s Hospital in New Orleans. The
NPF
and Dr. Lowe provided us with the information and support needed to obtain the best medical care for Cameron.
Now, it is my turn to help those who are seeking support, hope and information about pancreatic diseases. Since becoming Louisiana’s chapter chair in February 2018, I have been able to attend a few NPF events. I feel blessed to have been able to attend PancreasFest, where I was introduced to and welcomed into the NPF family. It was a wonderful opportunity to meet and connect with the NPF staff and other chapter chairs. I also had the to meet numerous pancreatic specialists. I was amazed and encouraged by the willingness of the physicians and scientists to speak with us and discuss the complexities of diagnosing and treating pancreatic diseases. I have also attended an education event in Houston, Texas, where I had the opportunity to observe how an education event is conducted. And I went to the Ohio/Kentucky Party for a Cure to support that chapter’s efforts. I observed how well the NPF staff and volunteers came together to create a very successful and enjoyable evening. Attending these events has made me feel like I have found the place where I want and need to be at this point in my life.
The Louisiana chapter recently had its first fundraiser on Giving Tuesday. A local restaurant donated fifteen percent of its proceeds from dinner at the restaurant that evening. We had a full house, with people waiting to be seated at one point. In the upcoming year, I would like to establish support groups for both adult and pediatric patients in the New Orleans area, with the hope of expanding support groups and education events to areas outside of New Orleans. I would also like to see the chapter pursue fundraising events in southwest Louisiana.
To see upcoming events for the Chapter, please go
here
. If you would like to become an NPF volunteer, please go
here
.
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The NPF Announces Four Additional NPF Pancreatic Cancer Centers
The NPF provides hope for those suffering from pancreatitis and pancreatic cancer, announces the designation of four additional NPF Centers. The four additional Centers complement the already 38 approved Centers for pancreatic cancer. The recently approved Centers are: Roswell Park Comprehensive Cancer Center; Carolinas Medical Center; Atrium Health; Nebraska Methodist Estabrook Cancer Center; and NYU Langone, Perlmutter Cancer Center.
To read more, please click
here
.
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A Letter to FCS - Alvin's Story
"
Looking back 11 years ago, I considered myself normal. Someone who had a job, hung out with friends and family, and was in relatively good health. But then our journey together started when I experienced my first symptom because of you, severe stomach pain while on a flight home to Tampa Bay. An ambulance was my welcome home vehicle as I was immediately brought to the emergency room, where I was diagnosed with acute pancreatitis. The doctor said that my case was so bad there was only a 5% chance I would survive.
" - Alvin Middleton
Familial Chylomicronemia Syndrome (FCS) occurs in about 1 in 1 million people. This disease frequently leads to symptoms such as pancreatitis.
Alvin writes a letter to his FCS that details his journey with this disease.
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Calling All Runners to Join Team Pancreas!
Have you always wanted to run for a cause? Take on that that New Year's Resolution to start getting fit? Or want to run with a group of like-minded people who want to find a cure for pancreas disease?
The NPF has been chosen as a charity partner for the 2019 Marine Corps Marathon/10K in Washington, DC on October 27, 2019.
We are looking for runners to run and raise funds for the NPF. In return the NPF will support you every step of the way with motivation, team support (via a private Facebook group), swag, a team pasta dinner the night before, as well as a team tent for you to meet your friends and family at the finish line. In 2018, our 44 runners raised $36,686 all in the name of finding a cure for pancreas disease. Act now as space is limited and our charity bibs are first come, first serve.
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COMING IN FEBRUARY...
The NPF is proud to partner with Aniplex USA to to bring attention to pancreatic disease in anime form. Based on the award-winning novel by Yoru Sumino, “I Want to Eat Your Pancreas” is an uplifting, coming-of-age tale that has captivated the hearts of millions. The film captures an emotional journey between two polar opposites who discover the true meaning of compassion, crossing off a Bucket List, while trying to find happiness when one is living with a life-threatening pancreatic disease. "This trailer is a glimpse into the complex and multifaceted lives of those suffering from pancreatic disease, particularly highlighting the effects disease has on those who care for the sufferer;" said Cecilia Petricone, pancreas disease patient.
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