THE LEGACY OF JUSTICE RUTH BADER GINSBURG |
Justice Ruth Bader Ginsburg was an integral part of sparking change in fighting for women's rights, the LGBTQ community, undocumented people, disabled people, and expanding voting rights. In 1993 she acquired a seat as the second woman and first Jewish person on the Supreme Court. That fighting spirit prevailed through her career championing for women and through her struggle with pancreatic cancer. Justice Ginsburg was diagnosed with three types of cancer (pancreas, lung, and ovarian); however, this did not stop her from fighting for others, and she remained a strong voice in the Supreme Court. Justice Ginsburg battled four bouts of cancer within the past two decades. Her pancreatic cancer reemerged in July 2020, and she passed away on September 18, 2020. Nevertheless, her legacy will live on forever.
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Thank you to all the patients, caregivers, organizations, physicians, and researchers who work tirelessly in the fight. May they be the lanterns that light the way for progress and change in the study and treatment of pancreatic cancer. May Justice Ginsburg's life and legacy stoke the fires to find better treatments, early direction steps, and preventative measures to fight against pancreatic cancer.
"Fight for the things that you care about, but do it in a way that will lead others to join you." - Ruth Bader Ginsburg
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Education and advocacy are part of the National Pancreas Foundation's (NPF) mission. Please see the list of events that are coming up throughout the year. We hope you can join us! For a complete list, please see our Events Page.
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PATIENT EDUCATION EVENTS
(Due to COVID-19 precautions, in-person events are being rescheduled; however, the NPF calls on its friends and supporters to explore virtual activities they can undertake to help raise funds for our mission. )
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SUPPORT GROUPS
(Due to COVID-19 precautions, in-person support groups are put on hold. Please click on the Chapter links for updates)
If you would like to establish a support group in your city, please contact [email protected].
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CHAPTER & NPF EVENTS
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Marine Corps Marathon and 10K | Virtual | October 25, 2020
- Inaugural NPF National Virtual “Rocking Party” Gala & Fundraiser | January 30, 2021 from 7:00 p.m. – 8:30 p.m. (EST)*
*More information to follow.
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Please subscribe and stay tuned for newly added videos in the Early Detection series and more inspiring videos like Cecilia Petricone's Post TPIAT | Day in the Life of a Diabetic, all November for Pancreas Disease Awareness.
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PHYSICIAN PROGRAMS
NPF RESEARCH GRANT PROGRAM AND ANNUAL NPF FELLOWS SYMPOSIUM
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Founded in 1997, the NPF has given over $4 million to fund 124 groundbreaking research projects. The proposed research must have direct relevance to the diagnosis and/or treatment of pancreatitis, pancreatic cancer or other pancreas diseases. Grants are awarded for a period of one year. These and other grant requirements are detailed in the application.
Grant research proposals should directly address questions in basic, experimental or translational pancreas disease research, including, but not limited to acute, chronic, & pediatric pancreatitis, pancreatic cysts, pancreatic insufficiency, and pancreatic cancer, including early detection and treatment of these disorders. Click HERE for more information.
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The National Pancreas Foundation holds an annual Fellows Symposium as an opportunity for Fellows to gain insight and instruction from renowned specialists. The 2020 Symposium has been canceled due to COVID-19 but will resume May 14 – 16, 2021. The application is due no later than January 31, 2021. Click HERE for more information.
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SAVE THE DATE. ADVOCATE. PREP YOUR PLATE. |
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NPF Hosts
National “Rocking Party” Virtual Gala
The NPF National Office is excited to announce the Inaugural NPF National Virtual "Rocking Party" Gala & Fundraiser on Saturday, January 30, 2021, from 7:00 p.m. – 8:30 p.m. (EST).
Entertainment for the Gala will be a performance by rock legend Peter Frampton whose hits include "Do You Feel Like We Do" and "Show Me the Way." The Gala will feature the Inaugural Legacy Awards honoring clinicians' career achievements in the field of pancreas disease. These first-time awards will honor Dr. Peter Banks and Dr. Bill Go. An additional Legacy Award will be featured for volunteerism. The evening will also feature the launch of Camp Hope, a pediatric pancreatitis summer camp, as well as testimonials from patients and celebrities.
NPF will be using GathR, a start-of-the art-technology platform. "Out Of Our Minds Creative Services" will be providing creative and production expertise for NPF's Gala. They have worked with talents such as Justin Bieber, Prince, KISS, Jay Z, Ariana Grande, Bob Seger, and the Silver Bullet Band, George Benson, The Band Perry, and Chris Brown.
Sponsorship packages will range from $50,000 to $500 and individual tickets $25. For additional information, please contact
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NPF Registry
In a synergistic partnership, the NPF has teamed up with Backpack Health (a software service of Invicro, LLC) to establish the NPF EMPOWER Portal in an effort to provide a collaborative opportunity for both the patient and medical communities to work collectively towards a cure for pancreatic disease.
Backpack Health is an innovative patient engagement resource app that is designed to help patients and caregivers streamline access and control over personal health information by consolidating from various medical record sources (i.e., patient portals) into a secure, centralized digital environment, along with providing an avenue to share access with healthcare providers to better ensure continuity of care.
By partnering with Backpack Health, NPF can foster a community that empowers individuals to become more proactive in their healthcare by tracking their personal health, along with offering an opportunity to contribute to an information-sharing effort to help lead to better health outcomes across this disease population.
NPF is aiming to launch the NPF EMPOWER Portal in early 2021. Stay tuned for updates at
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Nutrition Program: Cookbook & Pocket Guide for Pancreas Disease
In order to address the knowledge gaps in nutrition information in pancreatitis and pancreatic cancer, the NPF, in collaboration with Krames, is revamping the cookbook and creating a pocket guide for pancreatitis and pancreatic cancer. A comprehensive update will provide handy health information to empower patients to make important health decisions.
The cookbook includes healthy, tasty, and low-fat recipes for pancreatitis, pancreatic cancer, pediatric pancreatitis patients, and their families. It also includes an "About the Pancreas" section. The cookbook will be available both in print and as a flipbook on the website.
The Pocket Guide is a unique tool that provides nutritional information using a simple, easy to understand format. The guide is evidence-based and is needed to better educate the patient population on proper nutrition, wellness tips, and enzyme replacement therapy.
The NPF has collaborated with their physicians as well as Krames' extensive network of experts to ensure the guide fits this unmet need. This nutritional program was made possible through a grant from Abbvie.
These items will be available in the late fall of 2020.
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The NPF and staff helped sponsor and support the Familial Chylomicronemia Syndrome (FCS) Foundation's Run Rare 5K. To learn more about the FCS Foundation, please click HERE.
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Shop at smile.amazon.com and Amazon will donate 0.5% of eligible purchases to the NPF! |
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