In This August 2020 Issue

  • You Told Us · We Listened · We Are Changing
  • It Is Time for a Facelift—Check Out the New End Stage Renal Disease (ESRD) National Coordinating Center (NCC) Patient Resources Webpage
  • 2020 National Patient and Family Engagement-Learning and Action Network (NPFE-LAN) Affinity Group Resources Released
  • Coronavirus 2019 (COVID-19) Resources Available Through the Patient Grant Library
  • New Patient Telemedicine Guide Available
  • Join the ESRD NCC #MaskUp! Social Media Campaign
  • Coming SoonESRD NCC Resources Under Development
  • Mark Your Calendar
  • KCER: Are You New to Preparing After-Action Reports or Intimidated by the Process?
Patient and Family Engagement
You Told Us · We Listened · We are Changing

The ESRD NCC announced a big change to its COVID-19 Quickinar series. Starting the first week of August, patient and professional events will be held every other week at new times and now 1-hour in length. Professional events will offer one continuing education credit for those who qualify.

Professional COVID-19 Webinar Events:
  • Wednesday, August 5 at 3:00 p.m. ET
  • Wednesday, August 19 at 3:00 p.m. ET

Patient COVID-19 Webinar Events:
  • Tuesday, August 11 at 4:00 p.m. ET
  • Tuesday, August 25 at 4:00 p.m. ET

The ESRD NCC made this change based on feedback from the ESRD Networks, dialysis facility staff, and patients. Thank you for your input! 

Speakers and topics will vary week to week, but the overall subject will remain constant: patients and healthcare professionals from around the country sharing how they or their organizations are coping with and combating COVID-19 in their areas of practice. Each webinar will offer new insight as the COVID-19 pandemic evolves.

Visit for COVID-19 resources and to register for future COVID-19 Webinar Events.
It Is Time for a FaceliftCheck Out the New ESRD NCC Patient Resources Webpage

The Patient Resource Page on the ESRD NCC website has a fresh new look and improved navigation. The resources have been reorganized and links were added to patient videos, patient podcasts and audio recordings, Patient Grant Library, COVID-19, and peer mentoring resources.
Visit the new page today! Click on the Patients tab on the top navigational banner. Share these resources with the dialysis facilities in your service area. 
2020 NPFE-LAN Affinity Group Resources Released and Posted

The Bloodstream Infection (BSI) Affinity Group created two resources discussing missing treatment, infection prevention, the kidney diet, understanding lab results, and more:

The Home Dialysis Affinity Group, using the overall theme of Home Dialysis 101, developed two resources to prepare patients for a smooth transition to a home treatment. Choosing Home Dialysis with Your Care Team identifies members of the care team and offers a few home dialysis-related topics the patient can discuss with that member. The My Home Dialysis Checklist helps with organizing space and getting ready to transition care to a home setting. Click on the links to download the home dialysis resources:

The Kidney Transplant Affinity Group created resources tackling the kidney transplant process. The resources focus on seven key aspects of getting transplanted.  

The Patient-Selected Topic Affinity Group examined what patients wished they knew when they started dialysis. Using a resource created by the Heartland Kidney Network, ESRD Network 12 as a foundation, the group developed two resources with the theme “Introduction to Dialysis.” The resources titled, Questions to Help With Your Treatment Choices and Questions to Get You Started offer topics and questions to consider asking the
healthcare team:

Each Affinity Group is also creating an audio or video companion piece as part of their resource development. The ESRD Networks will be updated when the audio and video pieces are released on the NCC website. All resources are available on the NPFE-LAN webpage at
COVID-19 Resources Available Through the Patient Grant Library
It is here! We have updated the landing page of the Patient Grant Library with a listing of organizations offering help and support services for COVID-19.

If you know someone who needs help with submitting an application for an Emergency Grant, the Quick Start to Submitting an Emergency Grant Request resource can help. Social workers are invited to use this resource when working with patients during the grant submission process.
New Patient Telemedicine Guide Available

To support the transition to telemedicine during the COVID-19 pandemic, the NCC released a new telemedicine guide. Kidney Patient Care: Your Guide to Using Telemedicine includes information about the benefits of using telemedicine, how patients can start using it, and the equipment needed to get started. The guide even shows patients how they can track their healthcare appointments. This is a resource many patients and dialysis facilities have been asking forshare it with them.

Join the ESRD NCC #MaskUp! Social Media Campaign

The goal of the #MaskUp! campaign is to show people that wearing a face covering is important in protecting themselves and others from COVID-19. Everyone is encouraged to participatepatients and their family and friends, ESRD Networks, dialysis facility staff, and kidney community advocates. It’s easy to participate. Just snap a selfie and include a message of why you think it’s important to wear a facemask. Let’s show everyone that the renal community stands together.

Share your facemask selfie with the ESRD NCC. We’ll tag your organization, too. We’d like to see how you #MaskUp!
Coming SoonESRD NCC Resources
Under Development
Here are a few items we are creating for you:
  • BSI Affinity Group Staying Safe Outside the Dialysis Unit podcast
  • COVID-19 Multigenerational Home Safety educational resource
  • COVID-19: Separating Myths from Facts educational resource
  • Mental Health Toolkit
  • Network Toolkit
  • Updated ESRD Directory 
Mark Your Calendar
August 131, National Immunization Awareness Month
August is National Immunization Awareness Month (NIAM). This annual event highlights the importance of vaccination for people of all ages. Vaccines prevent serious, sometimes deadly, diseases. Visit for vaccine education tools and resources for patients and professionals.

August 915, National Health Center Week
National Health Center Week celebrates nearly 1,400 health centers that serve more than 28 million people. Health centers provide complete, high-quality preventive and primary healthcare to patients regardless of their ability to pay. Go to to learn more about National Health Center Week.

September 1–30, National Prostate Cancer Awareness Month
September is National Prostate Cancer Awareness Month. Prostate cancer is the second most common cancer in American men. There are several risk factors associated with prostate cancer, including family history, race, and diet, but the most common factor is age. Prostate cancer occurs mainly in older men. To learn more about the risk associated with prostate cancer, visit:

September 1–30, National Preparedness Month
Each September, National Preparedness Month encourages and reminds Americans to be prepared for disasters or emergencies in their homes, businesses, and communities. No matter where you live, a natural or man-made disaster can happen. Preparation is key for the safety of you and your family. Learn what you can do before, during, and after a disaster to minimize harm by visiting

September 1–30, National Cholesterol Education Month
The month of September is National Cholesterol Education Awareness Month. Heart disease is the number one killer of Americans. And someone in America has a stroke every 20 seconds. Having high cholesterol is a risk factor for both events according to the Centers for Disease Control and Prevention (CDC). Learn more about how to prevent high cholesterol by clicking on this link:

September 1–30, National Sickle Cell Awareness Month
National Sickle Cell Awareness Month shines a light on a condition affecting millions of people worldwide. The World Health Organization (WHO) estimates over 300,000 children are born every year with the condition. Sickle cell disease can occur in all races, but is most common in African Americans and Hispanics. Learn about the CDC’s Sickle Cell Monitoring project at

September 6–12, Environmental Services and Housekeeping Week
Environmental Services and Housekeeping Week is a time to recognize the men and women of environmental services. These individuals spend countless hours maintaining buildings, preventing infection, and lending a helping hand to ensure healthcare facilities are safe. Buildings that are not properly cleaned can lead to illness and productivity loss for the people who visit, eat, work, and play there.

September 13, National Grandparents Day
Since 1978, this day has been designated to celebrate both paternal and maternal grandparents. Grandparents Day is a day for celebrating the connection between the generations. Visit the Legacy Project website at to learn more about the history of Grandparents Day.

September 13–19, National Rehabilitation Awareness Week
National Rehabilitation Awareness Week is a time to acknowledge the many benefits that can arise from rehabilitation programs. This observance highlights the positive impact that these services make in the lives of people in need. Learn more about rehabilitation services by visiting 
Are You New to Preparing After-Action Reports (AARs) or Intimidated by the Process?

The Kidney Community Response (KCER) Program, in partnership with the Tampa Bay Health & Medical Preparedness Coalition (TBHMPC), has a new webinar available on the KCER website that covers the basics of preparing an incident or disaster-related AAR. TBHMPC provides an overview of its simplified AAR template and gives tips for preparing a complete and useful AAR and Improvement Plan. COVID-19 specific topics are also discussed to assist you in evaluating your response to the pandemic. Visit the KCER website to view the AAR-related webinar and materials.
Don’t forget to ‘Like’ the ESRD NCC on Facebook.
‘Follow’ us @ESRDNCC on Twitter.
This material was prepared the End Stage Renal Disease National Coordinating Center (ESRD NCC) contractor, under contract with the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services. The contents presented do not necessarily reflect CMS policy nor imply endorsement by the U.S. Government. FL-ESRD NCC-7N51TB-08042020-01