ACPMP Research Foundation Newsletter
Fall, 2017
Happy Fall Y'all!

It's been nearly a year since our last newsletter so we have a lot to share. Please take a minute to read about what we've been up to and what we have planned.

We are so thankful for the organizers and supporters of so many great events this past year. It's people like you that help us raise awareness across the globe, and are helping fund critical research and education for Appendix Cancer and PMP.

Thank you from the bottom of our hearts!

From the volunteers at the ACPMP Research Foundation

What's in this issue...
PMP Pals Conference Recap
UMass/ACPMP Research Foundation Cancer Patient-Practitioner Symposium
Current & Upcoming Fundraising Events
Past Fundraising Events
2017 Research Grants
PMP Pals Conference Recap
ACPMP Volunteer/Board Member Therese Surges (third from left) represented ACPMPRF at the PMP Pals Conference this October in Monterey, CA.

The program was informative and thoughtful. The line-up of speakers gave both patients and caregivers positive information and ideas to carry forward in daily life for the physical, emotional and spiritual well-being of each.

This year's focus was on mental health while fighting cancer. Speakers included Dr. Laura Lambert from UMass and Dr. Tessa Sugarbaker, Marriage and Family Therapist, OB-GYN. 

SuperBowl Champion  Brendon Ayanbadejo  gave the audience such good advice on how to embrace today. Check out the video here.

Therese was grateful for the opportunity to share our organization with those not familiar and to greet old and new friends in the process.

UMass/ACPMP Cancer Patient-Practitioner Symposium Recap
We are proud to have sponsored the 7th Annual UMass PMP/Appendix Cancer Patient-Practitioner Symposium in October! 

Thanks to ACPMP's Jim Carroll, ACPMP Super Fundraiser and advocate Lauren Smith, our host Dr. Laura Lambert, and our Keynote Speaker Dr. Kiran Turaga for another fantastic event!

Current and Upcoming Events
Beat, Research & Advocate Appendix Cancer & PMP
Meet 21-year-old Lauren Smith who is raising awareness and funds for appendix cancer and PMP patients through her inspiring story and Beat, Research & Advocate Appendix Cancer & PMP Campaign.

After being diagnosed this year, Lauren raised nearly ten thousand dollars in just a few days and is asking her friends and family to help spread awareness.

Please visit to read Lauren's story and support her amazing efforts to help the AC/PMP Community.

Pole-Peddle-Paddle Challenge
Peyton and Casey Jobe pledge to Pole, Peddle and Paddle to raise awareness and funds for AC/PMP in honor of Aly Jobe (Peyton's wife and Casey's mom)

Their Challenge:
  ~ XC Ski 1 mile for every $1K
  ~ Bike 5 miles for every $1.5K
  ~ Kayak 2 miles for every $2K

"This fundraiser exists to give hope and support to my wife, Aly, and to all those suffering from PMP. Selfishly, it also exists to give my own life broader meaning, as well." says Peyton.

Join the challenge at
Share on social media and use hashtag #DoGood

Forever Flowers, Carol
Carol Koch has created her very own inspiration of creating "Forever Flowers" as a way to not only shed light into everyones' lives, but donate 100% of the profits to  ACPMP
Each "Forever Flower" is handpicked, cre ated, and engraved by Carol herself as a way to spread the love and awareness all around.

Carol and her family have attracted attention all over Chicago and across the globe. They have sold over 400 flowers and have raised over $15,000 so far, through their Facebook Group and open garages, and have even caught the attention of ABC7 News.  (Click here to watch video). 

Their last Open Garage of the year will be held this  Saturday, Novembver 11th in Lemont, IL.

We Believe (Breakfast with Santa & Candy Cane Lane)
Join Santa and Mrs. Claus on December 9th at Applebees in Bensalem, PA for an all-you-can-eat breakfast, including pancakes, sausages and more. 

Win prizes, bring your letter to Santa and your camera/phone for a photo with the big man, while raising awareness and money for research and education for AC/PMP. 

Santa will also be at Candy Cane Lane on December 16th, 20th and 23rd amongst over 30,000 lights and candy canes.

Visit for details and to register.

Tampa Bay 5K Fun Run & Walk - March 10, 2018
Save the Date! 
March 10, 2018

Rich Boozell is hosting this year's Tampa Bay PMP/Appendix Cancer awareness 5K Fun Run and Walk in beautiful, waterside Clearwater, Florida.

The goal this year will be to r aise awareness and $8,000 for the ACPMP Research Foundation, upping the ante from last year's event which raised over $6,000. 

Registration will be open  soon at .

We hope to see you in March!

Past Fundraising Events
11th Annual PMP/Appendix Cancer Walk & Dad's Day 5K
Another fantastic Father's Day was had this year raising over $36,000 for AC/PMP. This event is held annually in memory of Dutch Culbertson, beloved father, husband and friend. 

Thank  you to our loyal supporters and sponsors for helping us raise awareness and funds for the AC/PMP Community, year after year. 

2nd Annual Bob Strong Appendix Cancer Awareness Walk
Bob Worden's family is raising awareness in the Syracuse area while cheering on their Dad who has been courageously battling appendix cancer since 2014.

Supporters came to beautiful  Onondaga Lake Park in July raising over $5,000 for ACPMP.

Thank you to all the Bob Strong supporters for another successful event!

Check out their website  here  for details.

Madisonbelle Fundraiser

Friends of Kim Dziabis, employees and customers of Madisonbelle joined together in September in memory of  Kim at this  quaint boutique in historic Leesburg, VA raising over $2,000 for ACPMP. 

Thank you to the Belle's for hosting this thoughtful event. 
Hair Today - Gone Tomorrow

After George Haskin was diagnosed with PMP in 2014, he and his wife Dawn became advocates for the disease. They wanted to make a difference and raise awareness and funds for the ACPMP Research Foundation.

Dawn came up with the idea "Hair Today - Gone Tomorrow", initially pledging to shave her head if she raised $10,000. She decided to hold an event so others could witness the head shaving, which turned into a celebration and silent auction.  Midway through the effort, someone offered to pay more if she did not shave her head so she put it to a vote and allowed donors to determine the fate of her hair. This vote was kept secret until the final event. 

In-kind donations were received from dozens of local organizations for the Silent Auction. Over sixty people attended the event in mid-August (the three year anniversary of George's diagnosis). The online fundraiser successfully raised $15,000, with the auction adding another $4,000. 

The vote resulted in Dawn cutting and donating her long locks to Pantene Wigs for cancer patients instead of shaving her head. This event also raised $500 for PMP Pals Network. "We are thrilled to have supported two PMP organizations and a general cancer organization through this one effort" said Dawn.

Congratulations and thank you to the Haskins and their supporters for achieving 191% of goal. Such a fun way to raise awareness and funds for a Appendix Cancer and PMP. Click here to visit their website.

2nd Annual Hoops for a Cure Basketball Challenge
Thank you to the wonderful sponsors and supporters for helping make the 2nd Annual Hoops for a Cure 3v3 Basketball Challenge another rousing success! Thank you to Scott Montgomery for organizing this amazing event and raising $8,000 for the ACPMP Research Foundation.

Check out the interview with organizer Scott Montgomery on  WBTV News.

Planning is already underway for next year's event. Visit the Hoops for a Cure Facebook page or the Hoops for a Cure website for details.

2nd Annual Santa's Summer 5K, Cancer Walk & Fun Run
Santa's Summer 5K began in 2016 as a way to reach out to more people after Scott Montgomery successfully raised awareness and funds through his  Hoops for a Cure Basketball Challenge in 2015. 
The 2nd Annual Santa's Summer 5K, Cancer Walk & Fun Run was another successful event, raising nearly $5,000 for Appendix Cancer & PMP research and education. 

Thank you to the many supporters and generous  sponsors. Please support these sponsors, and visit the Facebook page or Fun Run website for more info on this fun event.
Research Grants Approved in 2017
ACPMP and NORD are awarding four $50,000, 2-year grants for 2017. Proposals were due in early October and recipients will be announced in December. 

Please visit our  Research Grants Program for more info.

Past grant recipients can be found here  Research Grant Awards.

Click here to view  Published Research.

About Us
The ACPMP Research Foundation is an IRS-designated 501(c)3 charitable organization. We are a 100% volunteer organization made up of individuals affected by Appendix Cancer and PMP. Please visit us at  ACPMP Research Foundation for more info.

Want to help? 
GO BIG or Go small. Every bit helps! 

We need people like you to help raise awareness and funds for crucial Appendix Cancer and PMP research and education.

Do you want to organize a fundraising event? We can help! Click here to submit our Volunteer form or email us at

We are also looking for volunteer committee members! Let us know if you are interested in serving on one of the following committees: Fundraising, Education, Communication and Marketing, Finance, and Research.

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