Today ACPMP launched our new “PATIENT EMPOWERED” initiative. These new programs are designed to empower patients to learn more about their condition and participate in research. 

This initiative includes the following new programs:

New Patient Guide : a guide for new patients providing information on appendix cancer and pseudomyxoma peritonei along with quick links to patient resources.

Clinical Trial Guide : an explanation of clinical trials and links to active trials currently recruiting appendix cancer and/or PMP patients.

Excess Tissue Donation : ACPMP has partnered with Pattern.org to allow patients to direct their excess cancer tissue samples to research projects. Initially, samples donated via Pattern.org will be sent to the Broad Institute of MIT and Harvard , where the samples will be used to attempt to develop research models. Visit Pattern.org to learn more about this project.

Patient Registry : ACPMP is exited to announce the creation of the ACPMP Appendix Cancer Pseudomyxoma Peritonei Patient Registry, a collaborative effort between ACPMP Research Foundation and the National Organization for Rare Disorders (NORD) to study Appendix Cancer and Pseudomyxoma Peritonei.  The ACPMP Patient Registry is under development and expected to launch in the Fall of 2019; please contact us at info@acpmp.org if you are interested in assisting with the development of the registry.