As people with intellectual and developmental disabilities (I/DD) and their families age, one question often takes center stage: Where will I or my family member live in the future?
Nationwide, around 75% of adults live with an aging parent or other caregiver, and most are not connected to public supports or services. As a result, older parents and family members often must take on primary caregiving responsibilities for people with I/DD. Families worry about what will happen when they are not able to provide support to their family member and are especially concerned about where their family member will live. However, more than half of families do not have a plan for future.
- A short video
- Fact sheets
- A technical report
Our most important findings include:
- A lack of housing options and difficulty finding housing options in the community
- People with I/DD not always being included in decisions around their home, though they want to be
- People with I/DD wanting to live in homes that allow them to be as independent as possible
- A need for more opportunities for real community inclusion for people in their current homes