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Science & Research
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Clinical Trials
Ionis Webinar Recording Now Available Update

In case you missed it, the ASF | FAST • Ionis Community Webinar recording is now available! The Ionis team shares important details about the upcoming clinical trial during the 55-minute webinar (with smart chapters for easy navigation). 


Watch the recording:

Watch now
Fueling the Future of AS Research

New grants. New experts. New momentum. FAST is expanding the preclinical research landscape. Learn how you can join us in driving real change. 

 

Learn more:

Learn more
FAST Family Resources

FAST is here to support families from diagnosis to a promising therapeutic. If you are newly diagnosed or know someone who is, we would love to connect with them.  


Connect with us:

Connect with us

For all our community members, we have a variety of resources to review or request to support your own education and to help bring awareness to your local area. 


Access our resources:

Check out our resources
Last Chance to Share Your Voice with the FDA

Don’t miss this opportunity to have your voice heard! FAST and ASF are finalizing the Voice of the Patient report, highlighting real-life experiences, challenges, and priorities of the Angelman community. The report will be submitted to the FDA and serve as an essential resource for researchers, drug developers, and regulators working to advance new treatments. 


Your input will help ensure the Angelman community’s needs stay at the center of future progress. 

 

Add your comments by May 8:

Submit your comments
Spreading Hope Worldwide: FAST at the MENA Congress for Rare Diseases

FAST had the opportunity to present at the MENA Congress for Rare Diseases and connect with Angelman families from across the Middle East and North Africa. We shared exciting updates on the future of Angelman syndrome therapies— and left more inspired than ever by the strength and spirit of our global community.

 

Read more about the Congress:

Read more

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