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Empowering Through Information and the Fostering of Connections
Love. Acceptance. Intervention. Civil Rights. February 08, 2019

In This Issue

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Nature photography and the autistic point of view

Sensory, motor connections may be disrupted in autism brains

Germs in Your Gut Are Talking to Your Brain. Scientists Want to Know What They're Saying.

Big data approach shown to be effective for evaluating autism treatments

Sleep Deprivation and Mothering a Child with Special Needs

Family and Others Looking for Help!!!

Race for Autism Superhero 5K and 1 Mile Family Walk

Banyan Tree Educational Services Co-Hosts "The Educational Law Seminar" with Schwartz & Storey

Yvette M. Soto Accounting & Income Tax

36th Annual Cal-TASH Conference

Kulanu Shabbat Experience

MSNC Free Webinar Series: "Reading Evaluation & Intervention"

New CONNECTIONS class begins Monday, March 11

"I Heart" Club Beacons Celebration

Adaptive Dance Classes in Oceanside

Greatest Hits Benefit Concert

Jeremiah's Ranch February Newsletter

LCYO Champions 7th Season in Carlsbad

Learn About RDI in San Diego

Learn About RDI in Carlsbad


 

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ValeriesList is a FREE resource newsletter and Facebook Page for San Diego County and has been for over 18 years. No fees or membership are required to receive this info. An informed public makes better decisions for its' persons with Special Needs. Please share with friends, family, fellow professionals and clients!!! Click here to check out my FB page! Thank YOU!




thomas nelson
Your Child's Education Comes First!

Your child is entitled to a "free and appropriate public education" or FAPE, whereby the school addresses all of your child's unique needs. A school district must provide your child with an appropriate education regardless of budget cuts, what's convenient, or what's available. Too often the school district offers a "one size fits all" program that fits within their needs, but not within the unique needs of your child. Ensuring that your child's education comes first means having the right team on your side. An effective team works cooperatively and collaboratively with the school district, using their knowledge, expertise and experience to foster quick and yet effective resolutions.

As a practicing attorney for over 25 years, Thomas S. Nelson takes great pride in helping special needs children through affordable advocacy and legal services.






  • Nature photography and the autistic point of view
  • I am a working artist, specializing in nature photography. I want to tell the story of how I became interested in photography.

    When I was a toddler, I did not sleep well and had a lot of challenges. Almost every day, I would have panic attacks. I also tried to run off by myself a lot. That is called elopement, and it is dangerous because I could have had accidents outside. One funny story is I waited until my mom had to go the bathroom, then I took off all my clothes, unlocked the front door and ran outside into the snow. I was 2 years old. My mom understood that I did that because I wanted to be outside. I was curious. I wanted to feel the cold air and touch the snow.

    My mom took me for long walks every single day. We went in the woods and around the block. She took me to see things that were interesting to me like fountains and tall buildings. If I woke up at 5am and could not go back to sleep, we would walk in the neighborhood or go to the 24 hour grocery store or go swimming at the rec center. I learned the words for different things and about different places. This satisfied my curiosity. I did not want to run away anymore. Read on...

  • Sensory, motor connections may be disrupted in autism brains

  • Some links between sensory and motor brain networks are unusually weak in individuals with autism, according to a new study1. Other connections are enhanced, however, and their strength tracks with the severity of autism traits.

    The findings point to a possible neurological basis for sensory and motor problems in autism.

    Experts once considered sensory and motor problems, such as hypersensitivity to sound or an awkward gait, to be only secondary traits of autism. But mounting evidence suggests that such traits play a central role in the condition.

    "Our findings are fully consistent with the relevance of these sensory symptoms and also with the relevance of the sensory and motor networks," says lead investigator Jan Buitelaar, professor of child and adolescent psychiatry at Radboud University in the Netherlands. Read on...

  • Germs in Your Gut Are Talking to Your Brain. Scientists Want to Know What They're Saying.
  • The body's microbial community may influence the brain and behavior, perhaps even playing a role in dementia, autism and other disorders.

    In 2014 John Cryan, a professor at University College Cork in Ireland, attended a meeting in California about Alzheimer's disease. He wasn't an expert on dementia. Instead, he studied the microbiome, the trillions of microbes inside the healthy human body.

    Dr. Cryan and other scientists were beginning to find hints that these microbes could influence the brain and behavior. Perhaps, he told the scientific gathering, the microbiome has a role in the development of Alzheimer's disease.

    The idea was not well received. "I've never given a talk to so many people who didn't believe what I was saying," Dr. Cryan recalled.

    A lot has changed since then: Research continues to turn up remarkable links between the microbiome and the brain. Scientists are finding evidence that microbiome may play a role not just in Alzheimer's disease, but Parkinson's disease, depression, schizophrenia, autism and other conditions. Read on...

  • Big data approach shown to be effective for evaluating autism treatments
  • Researchers at Rensselaer Polytechnic Institute who developed a blood test to help diagnose autism spectrum disorder have now successfully applied their distinctive big data-based approach to evaluating possible treatments.

    The findings, recently published in Frontiers in Cellular Neuroscience, have the potential to accelerate the development of successful medical interventions. One of the challenges in assessing the effectiveness of a treatment for autism is how to measure improvement. Currently, diagnosis and evaluating the success of an intervention rely heavily on observations by professionals and caretakers.

    "Having some kind of a measure that measures something that's happening inside the body is really important," said Juergen Hahn, systems biologist, professor, and head of the Rensselaer Department of Biomedical Engineering. Read on...

  • Sleep Deprivation and Mothering a Child with Special Needs
  • I celebrated my 44th birthday last summer.

    My family blessed me with exactly the right gift - two nights away to get caught up on sleep.

    It was literally the only gift I really wanted.

    After several years of one sleep battle after another (really 15 years, but who's counting?), it's just a given around here.

    I am sleep deprived.

    Depending on how each of my children are sleeping, I average between 3-5 hours of uninterrupted sleep (and about 1-2 additional hours of interrupted, up and down, trying to find things to help them while still half asleep, sleep) a night. Like, always. Read on...

  • Family and Others Looking for Help!!!


  • I'm trying to find out if anyone knows a music or art professional who has experience with individuals with autism and can provide one-on-one sessions?

    Thanks for your help! Horacio HCJR@msn.com



    Good evening I have a 5 year old girl with autism is functional, I am looking for a private school for her I know that public schools have programs for children with autism but I can not put my girl in public school because I live in Tijuana so I have to pay for your education, I will appreciate if you know of any private school in the area of Chula Vista that accepts children with autism I appreciate your kind attention. yurygoodman@hotmail.com



    Seeking Someone for IHSS Provider
    Looking for someone to become an IHSS Provider for my 11 year old son with autism. Will need to be able to work between 6 and 16 hours per week. Wednesday is a must starting at 2:30 pm. You will also watch my daughter at times and during those times, I will supplement your rate.

    Schedule is not firm at this point, but Wednesday's are an absolute necessity. Ideally:

    Monday 4:30 pm to 6:30 pm
    Tuesday 4:30 pm to 6:30 pm
    Wednesday 2:30 pm to 9 pm
    Friday TBD can discuss
    Saturday TBD can discuss
    Sunday TBD can discuss

    Must be patient and assist my son with redirection, organization, personal hygiene, washing/changing bedding, etc. Constant supervision is required.

    Must be punctual and able to meet the school bus.

    Must be willing to help with transportation to appointments or activities.

    Would like a high school or college student that is close to the Rancho Bernardo area.

    Must like children and pets
    Must be self driven
    Must be punctual
    Must have reliable vehicle
    Must have good, clean driving record
    Must be willing to take and pass a background check
    Must be willing to take 3 hour IHSS Provider training

    Contact: tb_78@hotmail.com



    HI My name is Jennifer and our family is thinking about relocating to the San Diego area. We currently live in Sacramento. My son is 22, adult with autism. I would love to chat with someone in the area. Thank you. willjen3j@msn.com



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Race for Autism Superhero 5K and 1 Mile Family Walk
  • Saturday, April 6, 2019 at 7 AM - 11 AM
    Balboa Park
    1549 El Prado, San Diego, California 92101


    Register today at www.raceforautism.org!

    On Saturday, April 6, 2019 we are celebrating the 15th Anniversary of the Race for Autism in Balboa Park, and it's going to be "Super!"

    This family friendly event gathers together more than 5,000 families, educators, and autism professionals from across Southern California to help raise awareness and funding for one of our country's largest concerns- autism. Once considered rare, autism affects as many as 1 in 59 children in the US, and more than 20,000 families right here in our community.

    100% of the Race funds stay right here in San Diego and helps to provide funding for early identification and education efforts, technical training in software testing for young adults, parent programs, instructional workshops and has funded more than 900 community programs and classrooms, benefiting thousands of local children and families. To learn more about NFAR, click on about NFAR or go to www.nfar.org.

    Please join us in making a difference on April 6th. Because everyone can be a SUPERHERO!

  • Banyan Tree Educational Services Co-Hosts "The Educational Law Seminar" with Schwartz & Storey
  • Saturday, February 9, 2019
    9am to 1pm
    Dick Laub NTC Command Center
    2640 Historic Decator Rd.
    San Diego, CA 92106 (Point Loma)


    Make sure you RSVP to info@dorightlaw.com - this is a FREE event with limited space! Please give us a call if you have any questions- (858) 367-5428!

    Banyon Tree Educational Services: https://banyantlc.org
    Law Offices of Schwartz and Storey: http://www.dorightlaw.com

  • Yvette M. Soto Accounting & Income Tax
  • I offer professional accounting services that are customized to your specific needs, including full service computerized bookkeeping, payroll and tax preparation for individuals and small to medium sized businesses.

    Services Provided:

    • Bookkeeping Services
    • Business Consulting
    • Payroll Preparation
    • Income Tax Return Preparation
    • Notary Public Services
    Customer service is my number one priority. I like to work closely with my clients to make sure they understand how their business is doing.

    As a small business owner it is important that you spend your time on running your business and not on bookkeeping. Let me give you the peace of mind you deserve by utilizing my 20+ years of diversified experience in accounting and in business.

    I graduated with a Bachelor's degree in Accounting from the University of San Diego and have more than 20 years of experience in accounting. Before opening up my business I worked as a Staff Accountant for several local CPA firms. I was also was an Accountant/Office Manager for an owner operator of 20+ McDonald's franchises, a Controller of a manufacturing company, an Accounting Manager for a home builder and was in charge of running a local bookkeeping and income tax firm. I am also a Notary Public and speak Spanish.

    I can navigate the tax ramifications of receiving public benefits and credits for special needs because I have twins with Autism. This allows me to provide a very personal level of service because I understand the needs of these families. I enjoy volunteering for local Autism charities and mentor families of newly diagnosed children.

    Call to setup an appointment for a free initial consultation so that I can evaluate your bookkeeping needs and provide you with a quote.

    Yvette M. Soto Accounting & Income Tax
    3633 Camino Del Rio South, Suite 205
    San Diego, CA. 92108
    Phone (619) 977-6586
    yvettemsoto@gmail.com
    http://www.yvettesoto.com

  • 36th Annual Cal-TASH Conference

  • Civil Rights: Equity, Opportunity, & Inclusion
    February 22-23, 2019
    Town and Country Hotel in San Diego, CA
    Regional Center vendor #PW2184

    The 36th annual Cal-TASH conference, titled "Civil Rights: Equity, Opportunity and Inclusion" will be February 22-23 in San Diego at the Town and Country Hotel in Mission Valley. Registration information, including information on parent scholarships is available on the Cal-TASH website www.caltash.org. There is an entire track on inclusive education. This would be an excellent resource for any parent who was disenchanted with a self contained placement and was hoping for a more inclusive educational opportunity or those in "inclusion districts" that feel like they are not getting full support for their child.
    Click here for all the info and to register!!!

  • Kulanu Shabbat Experience
  • Friday, February 15, 2019 at 6 PM - 7:30 PM
    The Hive at Leichtag Commons
    441 Saxony Rd., Encinitas, California 92024


    The Kulanu Shabbat Experience is for anyone who has ever stayed away from a sanctuary for fear of making noise, needing to move around, social judgment, or any other reason. Kulanu means all of us and that is the point of this musical, interactive, and special Shabbat experience. It is for anyone with special needs, young children, and open to all ages! Led by Craig Parks and Rabbi David Frank, this evening is sure to bring smiles to everyone's faces as we level the Shabbat playing field and make it right for everyone! https://www.facebook.com/events/2408723622688444/

  • MSNC Free Webinar Series: "Reading Evaluation & Intervention"
  • Featuring Megan Trezza, M.Ed., Educational Therapist & La Jolla LearningWorks Founder

    The webinar will air on February 26th at 12:00 noon and will repeat on February 28th at 7:00 pm.

    Join us by registering at https://www.myspecialneedsconnection.com/sd-webinar

  • New CONNECTIONS class begins Monday, March 11
  • We're happy to announce that our newest set of classes for CONNECTIONS will begin on Monday, March 11th and continue until Monday, April 15th from 4:30-6:00 pm.

    Registration is currently available online on our website at www.unscriptedlearning.org/connections.

  • "I Heart" Club Beacons Celebration
  • Beacons, Inc.
    A California Nonprofit Public Benefit Corporation
    6150 Yarrow Drive, Suite E
    Carlsbad, CA 92011


    Please RSVP to: club@beaconsnorthcounty.com by Thursday 2/7/19 - 5pm to determine sufficient volunteers and participants. Beacons, Inc. reserves the right to cancel events if less than 10 participants sign up by RSVP deadline. www.beaconsnorthcounty.com

  • Adaptive Dance Classes in Oceanside
  • Creative Movement class for youth with special needs every Saturday afternoon from 1:00pm - 2:00pm. Call with questions!

    Olivia Oleson & Jessica Smith
    Studio Directors
    CADENCE DANCE PROJECT
    220-222 Wisconsin Ave.
    Oceanside CA 92054
    www.CadenceDanceProject.com
    info@cadencedanceproject.com
    760-277-3883

  • Greatest Hits Benefit Concert
  • SATURDAY, FEBRUARY 23
    Noon-3pm
    BELLY UP TAVERN
    143 S. Cedros Ave, Solana Beach, CA 92075


    TICKETS ON-SALE NOW!
    $15 advanced / $20 day of show
    $32 reserved loft seating

    Click here for all the info about this event, purchase tickets and also info about becoming a sponsor for this event!!!

  • Jeremiah's Ranch February Newsletter
  • Click here to read their latest newsletter for all the info and for upcoming events!!!

  • LCYO Champions 7th Season in Carlsbad
  • Champions Division is designed for boys and girls (ages 5 to 23 years) with physical and mental special needs.

    Volunteer buddies are provided and the fun is guaranteed. Come participate in our 7th season of co-ed baseball/softball.

    NOW REGISTERING PLAYERS
    No Fee for Champions players
    Registration required for participation
    Season will start March 9, 2019
    #1: Go to LCYO website, www.lcyo.org
    #2: Hit registration tab
    #3: Log-in as a new LCYO player and register in the Champions Division

    For more information contact Eli Rejto at rejto.sports@gmail.com

  • Learn About RDI in San Diego
  • Please RSVP!!!
    admin@tagforgrowth.com
    www.tagforgrowth.com
    858.689.2027

  • Learn About RDI in Carlsbad
  • Please RSVP!!!
    admin@tagforgrowth.com
    www.tagforgrowth.com
    858.689.2027

  • ASD Mornings at the NAT
  • The San Diego Natural History Museum (The Nat) is pleased to offer a program for the Autism Spectrum Disorder (ASD) community: a once-a-month ASD Morning in which the Museum opens early for adults and children on the autism spectrum and their families, friends, and caregivers. This innovative program encourages individuals to explore, play, and discover the treasures The Nat has to offer in an environment that is comfortable for them.

    ASD Mornings take place the second Sunday of every month. The Museum will open at 9 AM*, one hour earlier than its standard 10 AM opening time, providing a quiet and less-crowded environment for visitors to explore the Museum's galleries at their own pace. In addition, on ASD Mornings the Museum will offer a "quiet room" from 9 AM to noon if visitors need a quiet space to decompress or desensitize. General admission rates apply during ASD Mornings.

    www.sdnhm.org
    877.946.7797

  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • City of San Diego Park & Recreation Therapeutic Recreation Services Program

  • The City of San Diego Park & Recreation Therapeutic Recreation Services program provides sports, recreation, leisure and outreach services to people with physical, mental and emotional disabilities.

    Services include therapeutic recreation programs and adaptive sports opportunities. These address the special needs of individuals with disabilities who have difficulty accessing and participating in recreation opportunities offered to the general public.

    Under the direction of Certified Therapeutic Recreation Specialists, activities and services are designed to maintain or improve the physical, cognitive and social functioning of those who have limitations. The target population is children and adults, ages 3 and up, with any type of disability.

    For additional questions about Therapeutic Recreation Services, please call 619-525-8247.

    Click here to view their 2018-2019 newsletter and calendar of events!!!

  • "Autism Through the Lifespan" Monthly Parent Support and Information Meetings

  • October 2018 - May 2019
    PLNU Graduate Education
    4007 Camino Del Rio South - Fourth Floor
    San Diego, CA 92108


    Please join other parents, caregivers and professionals at the following monthly informational and support group meetings in Mission Valley. These meetings will discuss the various aspects of autism through the lifespan. Each meeting will feature an expert speaker and an ASA parent mentor. This is a time for you to meet other parents, ask questions and network.
    The meetings are free and open to all.

    Please RSVP for Spanish Translation support
    For further information, please contact:
    Lisa Larsson - (619) 725-8080 ext. 7946 email: llarsson@sandi.net
    Maryann Collins - email: mcollins1@sandi.net
    Grace Fantaroni, Ed.D. - (619) 563-2839 email: gfantaro@pointloma.edu

  • Participate in SPARK at UCSD

  • UC San Diego's Autism Center of Excellence is seeking individuals diagnosed with ASD and their biological family members to participate in SPARK, the largest national genetics research project in US history! The SPARK study aims to gain a better understanding of the causes and potential treatments of autism by building a cohort of 50,000 diagnosed individuals to facilitate research on an unprecedented scale. There is NO cost to participate in the study and it can even be completed without leaving the house!

    What we do
    SPARK researchers extract genetic data through a saliva sample and analyze information collected from thousands of people with autism and their biological parents. UCSD and over 20 of the nation's leading medical schools are part of this effort.

    How to join*
    1. Sign up online at www.sparkforautism.org/ucsd.sarrc -- registration typically takes about 20 minutes. Using this link connects you to our site, which enables us to better follow up with you if you encounter any issues or have specific questions.
    2. Complete a few questionnaires online.
    3. Provide a saliva sample. A saliva collection kit will be sent directly to your home after registration. When you are done, simply mail it back in the prepaid mailer.

    Benefits of joining
    1. Individuals with autism will receive gift cards valued at up to a total of $50 for participation.
    2. SPARK hosts monthly webinars, featuring psychologists, researchers, or speakers from the autism community, that provide useful information for families and individuals with autism.
    3. If a genetic finding is discovered related to the cause of autism, results will be shared back with families.
    4. The information you provide may help others with ASD for generations to come!

    *Our site also offers the option for home appointments where a member of our SPARK team can come to your home and assist you in the registration process, collect the saliva samples, and mail them in for you! This is typically the preferred method for families as everything gets completed at once. Please note that we ask that both biological parents and individual diagnosed with ASD be present for these appointments. We can accommodate a variety of dates and times outside normal business hours on the weekdays or weekends -- whichever is most convenient for you and your family! Alternatively, we can also schedule in-clinic appointments at our office if that is preferred.

    You can visit our SPARK FAQ page for additional details. Please contact us via email at mshir@ucsd.edu or via phone at 858-534-6906 if you would like to set up an appointment or if you have any questions!

  • Participate in Research!!! Can a Safe 'Fever' Help Autism Syptoms? Spanish Speakers Welcome!!!
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    Can a Safe 'Fever' Help AUTISM Symptoms?

    Una 'Fiebre' Para Disminuir los Sintomas de AUTISMO? 

    Pilot Study Enrollment


    This pilot study will enroll 12 families with ASD children ages 2-17 years old in a controlled study, in the San Diego and Los Angeles areas. We are testing a dry heat therapy from an FDA-cleared medical device with simulates the effect of a low-grade fever by non-invasively infusing heat into the circulatory system. The Fielding Graduate University IRB approved study is entitiled: "The Fever Effect: Do kids with autism do better when they use a device to warm their blood? Effects of six-week AVACEN Treatment Method on Autism Spectrum Disorder".

    If you are interested in participating in this pilot study please contact Frances Poteet at info@atmstudy.com and provide your phone number, email address, zip code and best time to reach you so that we can contact you. If you are not selected as part of this pilot study, you may be offered an opportunity to participate in a larger study of the device at a later date.

    Participants who complete the entire study will receive a $200 Amazon gift card. Enrolling now! Limited openings available!

    We can offer services in English and Spanish (all the way from the Orientation throughout the course of the study.)

  • Participate in Research: Caregiver/Family Member Survey
  • business_finance_research.jpg

    My name is Richie Sapp. My twin brother, Mikey, has been attending the TERI day program for several years now. I am a third-year medical student (MS3) at Stanford School of Medicine where I am currently taking a research year to focus my efforts in medical education, specifically to improve patient care for individuals with disabilities. I am creating an elective course for medical students/PA students for Winter Quarter 2018/19 and I could use your help.

    Please consider completing this first survey and if your son/daughter would like to complete the second survey on their own, I would welcome that too.

    1) This survey is for parents/caregivers of individuals with disabilities. Caregiver/Family Member Survey, which will help me with what content to put together for the course. Please feel free to share the survey with anyone who might be interested in sharing their experiences. Here is the link: https://goo.gl/forms/FC0pVxymGi92OBq73

    2) Additionally, if you know anyone with a disability who would like to speak about their own experiences, there is a separate survey for individuals with disabilities. The link is below:

    https://goo.gl/forms/S2aJ7DuFOqhqgxl73

    Thank you so much for all your support!

    Please email me if you have any questions.

    Thank you,
    Richie Sapp
    ( rwsapp@stanford.edu)

  • Brain Imaging Studies for all Ages with or without Autism

  • The Brain Development Imaging Labs at San Diego State University are looking for individuals with diagnosed or suspected autism to participate in a brain imaging study. Participants would receive around $150 plus free cognitive testing and an MRI scan. Child participants would receive a free assessment summary and image of their brain as a bonus! We are looking to recruit from all ages, but we especially need adults, ages 40-65 years, to participate. If you know someone who might be a good fit for our study, please share this information with them. Thank you.

    At SDSU!!! To find out more, please call 619-594-0176 or email BDIL@SDSU.EDU.
    http://bdil.sdsu.edu/

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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