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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. September 06, 2018

In This Issue

Complications during pregnancy may contribute to autism risk

A Complicated Landscape: Parents' Perception of Stress, Control in Autism

What Does Autism Look Like in Adults?

SSI May Have Overpaid $380 Million To Beneficiaries

Disaster Planning Often Leaves Disabled People Behind

Family and Others Looking for Help!!!

Autism Speaks San Diego Walk 2018

Free Webinar: Learn how to get the MOST for your child through the Least Restrictive Environment (LRE)

Developmental DIR Autism Therapy in Your Home!

Include Autism's Casino Night September 13th!!!

Apply for NFAR's Teachers Grants Program - Due September 30th!

Introduction to Special Education

Therapeutic Approach to Growth

Positive Action Community Theatre Upcoming Workshops

NFAR Community Projects 2019 - Application due by September 30th!

Parents Helping Parents 2018-2019 in East County

NFAR Mom's Group - Wednesday, September 12th

NFAR Men's Group - Thursday, September 13th

Book Launch in Pt. Loma for "Radical Inclusion" and more!

Jeremiah's Ranch September Newsletter


 








  • Complications during pregnancy may contribute to autism risk

  • High blood pressure or abnormal bleeding during pregnancy, as well as complications such as cesarean delivery or preterm birth, may all increase the risk of autism, two new studies suggest1,2. And the more difficulties during pregnancy and delivery, the more severe the autism features in the child, according to one of the studies.

    The first study, published in Autism, suggests that siblings of autistic children experience many of the same complications.

    "We always investigate prenatal factors in autism and controls, but we do not really look at siblings," says lead investigator Susan Shur-Fen Gau, professor of psychiatry at National Taiwan University. The finding warrants a closer look at how an individual's genetic profile interacts with environmental triggers to shape autism risk, she says. Read on...

  • A Complicated Landscape: Parents' Perception of Stress, Control in Autism
  • A decade ago, Sarah S. Mire helped assess autism symptoms in children who came to Baylor College of Medicine in Texas for a research project. She got to know their families and appreciate the time they devoted to the Simons Simplex Collection (SSC), an autism study that recruited families at university centers throughout the United States and Canada.

    Like other families affected by autism,1-3 many of the parents she met experienced higher than average levels of stress. Some, she noticed, seemed to be coping well with every curveball, managing their child's autism symptoms, learning needs, speech or behavioral therapies, and medical appointments. They had a kind of resilience that seemed "unique to families on the spectrum," she recalled recently.

    "Parents are such critical figures in the lives of children," she said. She wanted to know more about parents' stress levels and their perceptions of autism, and how these affected the treatment and services their children received. Previous studies have found that parents' perceptions about autism may influence the types of treatments they seek for it.4,5 And stress can affect parents' ability to follow their children's behavior plans or implement autism interventions at home, according to other research. Read on...

  • What Does Autism Look Like in Adults?
  • You've always felt different, but didn't know why. An autism spectrum disorder (ASD) diagnosis can help shine a light on why certain things have always been difficult, while others came easily. If you think you might have ASD, watch this video.

    Autism spectrum disorder (ASD) is typically a lifelong condition.

    More severe forms of ASD are often diagnosed in the first two years of a child's life, but less severe forms may slip by undiagnosed into adulthood. Even late in life, a diagnosis can offer major benefits and relief.

    If you think you might have ASD, watch this video. Read on...

  • SSI May Have Overpaid $380 Million To Beneficiaries
  • Social Security may have overpaid in excess of $380 million to some 77,000 people receiving Supplemental Security Income, according to a government audit.

    A review from the Social Security Administration's Office of the Inspector General estimates that the agency failed to conduct so-called redeterminations for about 1.1 million beneficiaries for longer than 10 years due to budget issues.

    As a result, the audit found that many people getting SSI - which serves those with disabilities - may have received benefits they shouldn't have qualified for. Read on...

  • Disaster Planning Often Leaves Disabled People Behind
  • Disabled people, older adults, and parents of young children all have specific needs that aren't always well addressed in disaster planning-sometimes with horrific results.

    After months of criticism, Puerto Rico has finally acknowledged the truth death toll of Hurricane Maria-not less than 100 people, as originally stated, but closer to 1,400, though a Harvard study estimated that over 4,500 "excess deaths" occurred during and shortly after the storm. While many following the inadequate response to the storm are concerned by these numbers, the disability community is particularly worried, because though the government hasn't openly expressed it, many of these very preventable deaths were likely associated with disabilities.

    For one thing, almost ten percent of the deaths identified in the Harvard study were associated with "respiratory problems secondary to power outages," notes Marcie Roth, chief executive officer of the Partnership for Inclusive Disaster Strategies. That sounds much like a euphemism for deaths of people with respiratory conditions relying on BiPAP/CPAP, ventilators, nebulizers, and oxygen concentrators, Roth says. The elision of the disability community from conversations about what happened in Puerto Rico, though, is just a small part of a much larger problem. Read on...

  • Family and Others Looking for Help!!!


  • Seeking Educational Aid for First Grader at Private Catholic School
    Hours: 8:30-11:30, Monday thru Friday
    Location: Sacred Heart Parish School in Coronado
    Pay: $14 an hour

    We are seeking an educational aid for a spirited, loving first grader with ADHD to assist in maintaining attention and focus while completing school assignments. The ideal person would be very firm but kind. The child is currently medicated but still struggles with attention and focus to stay on task. Child also struggles with handwriting so assistance and help with that also required.The person would need to have good people skills and respect the classroom environment, working well with first grade teacher and her assistant with minimal guidance. Aid may be asked to assist with test-taking. The ideal candidate would be available August 22 start date (there is flexibility on this) Experience with spirited kids with ADHD or children with attention/focus and sensory integration issues would be very helpful! (There is some flexibility with hours.)

    Please text Christine at 858-405-7264 to set up a time to speak or email christinevantuyl@hotmail.com
    Thanks for your consideration!



    Hi we are a new family who is in the military and are moving to San Diego I wanted help with guidance on school system and ABA, speech and OT services. We will be living near Murphy Canyon.
    Thanks
    Leora leorakoyen@mail.adelphi.edu



    I'm looking for music classes for my 10 year old Autistic Son. I would like to go to the studio if it's close to where I live which is in Rancho Bernardo Area or Carmel Mountain Area.
    Thank you
    Tanya tanyamilani@yahoo.com



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Autism Speaks San Diego Walk 2018

  • Sunday, October 21 at 8 AM - 1 PM
    Liberty Station NTC Park
    2455 Cushing Rd., San Diego, California 92106


    Register FREE for the San Diego Walk: http://act.autismspeaks.org/sandiego

    Event includes local service provider resources, sponsor booths, Kids Zone, live entertainment and a beautiful 5k walk along NTC park waterfront. More details will be announced as the date approaches.

    Gates opens at 8:00am (early registration)
    General registration at 9:00am
    Opening Ceremonies 10:00am
    Walk start time 10:30am
    Event activities are open until 1pm
    Autism Speaks Walk Powered By Love

    Register as an individual walker or start a team!
    Teams will get to compete in friendly team competions and challenges leading up to the event. Teams who raise $2500 or more are eligible for Team Village. Individuals can qualify for a varity of gifts based on achieving fundraising milestones. Raise $150 earn the official 2018 Autism Speaks Walk shirt, exclusively designed by Tommy Hilfiger

    Event is FREE to register but fundraising is encouraged! Our walks are the major fundraising vehicle for Autism Speaks. Funds raised are critical to continue providing support to thousands of individuals locally, nationally and around the world.

  • Free Webinar: Learn how to get the MOST for your child through the Least Restrictive Environment (LRE)
  • Featuring Thomas Nelson, special education attorney

    The webinar will air on September 18th at 12:00 noon and will repeat on September 20th at 7:00 pm.

    Join us by registering at https://www.myspecialneedsconnection.com/sd-webinar

  • Developmental DIR Autism Therapy in Your Home!
  • Real Connections Child Development Institute
    Supporting and partnering with families of children on the autism spectrum through understanding, engagement and relationships.

    Developmental Play Therapy - 1:1 developmental therapy in your child's natural environment. Evidenced- based, emotional, cognitive and neurobiological therapy that assists your child in developing meaningful relationships.

    Parent Coaching & Support - Real-time training and education in your child's individual profile. Learn new ways to engage and connect, while focusing on communicative and cognitive/ social emotional development. Maximize your child's developmental growth through both daily interactions and parent-child intervention sessions.

    A "Whole Child" Program

    • Flexible Thinking
    • Problem Solving
    • Scripting
    • Perserveration
    • Meltdowns
    • Executive Function Skills
    • Regulation
    • Sensory Integration
    • Spatial Processing
    • Individualized Program
    Real Connections San Diego
    415 North Highway 101, Suite C
    Solana Beach, CA 92075
    619-840-0015 or 858-768-0313
    http://realconnectionsinstitute.com

  • Include Autism's Casino Night September 13th!!!
  • Join us for an exclusive night out in Downtown San Diego for a Casino Night benefiting Include Autism. This exciting event will be held at Meze Greek Fusion on Thursday, September 13th at 8PM, bringing together leaders in the hospitality and nightlife industries as well as community members from all over San Diego as they raise money for Include Autism and its programs. The evening will consist of casino games, the world's only Magician and Certified Sommelier Ben Silver, drinks, food, raffle prizes, and more! It's an event you won't want to miss!

    Tickets: casinonightsd.com

  • Apply for NFAR's Teachers Grants Program - Due September 30th!
  • Autism affects one in every 59 children in the United States and a growing number of students each year in classrooms across San Diego County.

    To help, NFAR established a Program in 2005 that awards funding to educators to support the specialized academic needs of their students with autism. These awards give educators a vehicle for funding technology, social skills training, developing effective communication skills for verbal and non-verbal students, as well as reducing sensory and behavioral issues that interfere with learning.

    The 2018/2019 NFAR Teachers' Applications are due September 30th.

    Sample grant applications, Guidelines and Restrictions are on the website.

    Apply or learn more!

  • Introduction to Special Education
  • For more info and/or to register please call 619-524-0916 or email Camille.Favor@usmc-mccs.org.
    http://www.mccsmcrd.com/exceptional-family-member-program/

  • Therapeutic Approach to Growth
  • Therapeutic Approach to Growth believes that every individual is unique and has the potential for significant growth. We assume and foster competence while honoring family values and priorities. Our holistic approach is built upon trusting, supportive relationships and collaboration between disciplines and families.

    We specializing in the development and implementation of individualized comprehensive programs utilizing Relationship Development Intervention (RDI), Occupational Therapy, Sensory Integration, Sensory Processing, Applied Behavior Analysis, Art Therapy, and Life Balance Yoga Therapy.

    Offering support in the San Diego, Carlsbad, Orange County, and the Inland Empire.

    In addition to supporting our clients directly, we offer guidance to parents, grandparents, therapists, teachers, siblings, school staff, babysitters etc.

    Therapeutic Approach to Growth
    http://tagforgrowth.com
    admin@tagforgrowth.com
    (858) 689-2027

  • Positive Action Community Theatre Upcoming Workshops
  • Positive Action Community Theatre (PACT) is a dynamic non-profit organization that offers improvisational theatre and performing arts workshops that teach life and social skills to teens and adults with autism and other special needs. Those most served by our programs are teens and young adults with high functioning autism (HFA)/Asperger's.

    Program Location
    Dance North County
    535 Encinitas Blvd.
    Suite #100
    Encinitas, CA 92024

    For all the info, click here! For questions, please contact 760-815-8152 or email info@pacthouse.org.

  • NFAR Community Projects 2019 - Application due by September 30th!
  • Autism affects one in every 59 children in the United States, and a growing number of families and their loved ones across San Diego County.

    To help, NFAR hosts the Race for Autism each year to raise funds to help support initiatives that are making a difference and creating unique opportunities for those with autism. Funding will be distributed based on the following criteria; Impact; Reach; Immediacy; and Relevance.

    APPLICATION DETAILS AND TIMELINE:

    • Applications are due by September 30, 2018
    • Awards will be announced on February 1, 2019
    • Awards range between $2,500 and $10,000
    • Proposed project should be a 3 - 12 month effort and start in 2019. (Certain types of projects may extend up to 18 months.)
    Guidelines and Restrictions are on the website. To apply or learn more.

  • Parents Helping Parents 2018-2019 in East County
  • The events are open to all special education families, not just those in those two districts.

    Mimi McGinty
    Director of Special Education
    Santee School District
    Phone: 619-258-2365

  • NFAR Mom's Group - Wednesday, September 12th
  • AUTISM MOM'S GROUP
    Wednesday, September 12, 2018 (please note this is the 2nd Wednesday in Sep.)
    6:30 - 8:30 pm
    Tio Leo's Mexican Restaurant
    3510 Valley Centre Dr.
    San Diego, CA 92130

    Dinner: Mexican Food (GF available)
    Dinner is provided


    Join us for the NFAR Mom's Group! It's an evening for Moms to come together in a fun and relaxed setting. The group will meet for dinner and guest speakers. It's an opportunity to share resources, experiences and enjoy being with other moms of individuals with autism.

    September Topic: Video Modeling

    Video modeling is an evidence based mode of teaching that uses video recording and display to provide a visual model of a targeted behavior or skill. 'An individual watches a video of a targeted behavior and then replicates it. During this presentation you will have an opportunity to learn; Overview of Video Modeling & Research, Video Modeling and Examples, Task Analysis of Target Skill, Creating the Video, Gathering Data (baseline & progress monitoring), and Putting it all together.

    Guest Speaker: Kim Brown BCBA, District Autism Specialist Encinitas Union School District

    Click here for all the info!!!

  • NFAR Men's Group - Thursday, September 13th
  • AUTISM MEN'S GROUP
    Thursday, Sep 13, 2018
    6:30 pm - 8:30 pm
    Filippi's Pizza Grotto
    5353 Kearny Villa Rd
    San Diego, CA 92123

    Dinner: Pizza, Salad.
    Dinner is provided


    The Men's Group is for dads, step dads, and granddads helping to raise a child with autism. We offer dinner, guest speakers and a chance to network with other men in a relaxed setting.

    September Topic: From Surviving to Thriving - Strategies to Reduce Stress, Beat Burnout and Create an Environment Where Everyone Thrives"

    We will discuss the importance of having a stress-management strategy, particularly for parents of children on the spectrum. We'll also look at the purpose of stress, some of it's benefits (yes, there are some!), as well as discuss tools that can be used in reducing stress and restoring calm.

    Guest Speaker: Nicole Diaz

    Click here for all the info!!!

  • Book Launch in Pt. Loma for "Radical Inclusion" and more!
  • My new book is ready to launch! As One-Track Mind was, Radical Inclusion: What I Learned About Risk, Humility, and Kindness from My Son with Autism is equal parts memoir and resource for community leaders, activists, educators, and parents. I am excited to invite you behind the scenes in this entertaining and insightful book that weaves together stories of making Reid's Talk Time podcast, innovative programs around the world for adults with disabilities, and iconic movie scenes exemplifying risk, humility, and kindness.

    Would you celebrate with me? I am participating in a Book Launch with a number of authors SATURDAY, SEPTEMBER 15th at Humphrey's Half Moon Inn from 6:30-9:30 PM. I will read an excerpt and pre-sell Radical Inclusion at this festive wine and cheese event with raffle prizes and live Latin jazz music. It's free to attend.

    Andrea Moriarty
    858-518-1418
    www.andreamoriarty.com

  • Jeremiah's Ranch September Newsletter
  • Click here for all the info about their upcoming events and news!!

  • ASD Mornings at theNAT
  • Social stories (in English and Spanish) for 7 museums in Balboa Park (The Nat, The Fleet, Museum of Photographic Arts, San Diego Museum of Art, Museum of Man, San Diego History Center, and Japanese Friendship Garden) are available online. These were created by young adults with autsim as part of the SPECTRUM Social Stories Project here at The Nat.

  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • San Diego Therapeutic Recreation Services Newsletter for Fall 2018
  • The City of San Diego Park & Recreation Therapeutic Recreation Services program provides sports, recreation, leisure and outreach services to people with physical, mental and emotional disabilities.

    Services include therapeutic recreation programs and adaptive sports opportunities. These address the special needs of individuals with disabilities who have difficulty accessing and participating in recreation opportunities offered to the general public.

    Fall Calendar

    Under the direction of Certified Therapeutic Recreation Specialists, activities and services are designed to maintain or improve the physical, cognitive and social functioning of those who have limitations. The target population is children and adults, ages 3 and up, with any type of disability.

    For additional questions about Therapeutic Recreation Services, please call 619-525-8247.

  • Accepting Applications for NFAR Tech's October Program

  • Are you ready to work but not finding that opportunity? Are you sitting at home despite a college degree? Then NFAR's vocational technical training program might be the right choice for you!

    NFAR Tech will be starting a new class in October.

    NFAR Tech is a comprehensive hands-on training program that teaches technical and employment skills. It prepares young adults with autism for entry level jobs in today's workplace as software testers and other vocations.

    If you are interested in learning more, visit our website, and/or contact us at 858-679-8800 if you have any questions.

  • 4th Annual Captain Conference on Supporting Inclusion
  • Saturday, October 27 at 8:30 AM - 3 PM
    Liberty Station Conference Center
    2600 Laning Rd, San Diego, California 92106
    $15 registration in advance - $30 at the door


    Learn about the research and practical guidelines for using evidence-based practices to promote inclusion throughout the lifespan.

    Breakout sessions will include:
    • Visual Supports for community settings
    • Social Skills Overview
    • Reinforcement and ABI: Easy Modifications
    • SUCCESS program
    • Peer Mediated Supports and Interventions
    • And more...
    Register at https://autismsocietysandiego.rallybound.org/4th-annual-captain-conference/Donate/Tickets

  • Autism Spectrum Disorder (ASD) "Fever Effect" Pilot Study Enrollment Announced

  • Click here to view the flyer. For more info and to enroll please contact info@atmstudy.com

    'This study is really interesting. So many times I have heard of kids who have great days just as they are coming down with a cold. Other times kids get cranky. This device can safely raise body temperature and maybe help some people. But it has to be looked at carefully, which is why we are doing this controlled pilot study. Please let us know if you want to try it!'

    Joshua D Feder, MD
    Child and Family Psychiatry

  • Brain Imaging Studies for all Ages with or without Autism

  • At SDSU!!! To find out more, please call 619-594-0176 or email BDIL@SDSU.EDU.

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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