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Empowering Through Information and the Fostering of Connections
Love. Acceptance. Intervention. Civil Rights. December 28, 2018

In This Issue

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Colombian cluster of fragile X may reveal insights into 'premutation'

Sex differences in brain hint at roots of 'camouflaging' in autism

Unusual sensory responses in infancy may hint at autism

The 'Kit' We Created to Help Children With Autism Cultivate Friendships

Family and Others Looking for Help!!!

No Wait for RDI at Family Guidance

Bubbly Brunch with TV Stars Christina Sanz and Steven Clark

Positive Action Community Theatre (PACT) presents Children's Theatre Workshops!

Be a HERO for 2019! Family Friendly Pricing ENDS 12/31/18

Cortica Care: Comprehensive Autism Treatment

Lil' Athletes Soccer

Therapeutic Approach to Growth Offering Relationship Development Intervention (RDI) & More!

The TERI Players Present...Cirque Unique

Autistic Adult Social Group

ATPF Teen Time Event - Tour a US NAVY Ship

Adult Group for Individuals with Asperger-Like Thinking

Basic Education for Students with Disabilities

An Introduction to Applied Behavior Analysis in Poway

Congratulations NFAR Teacher Grant Awardees!


 

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THIS MONTH'S SPONSORS






  • Colombian cluster of fragile X may reveal insights into 'premutation'
  • Nidia Quintero's cheeks and outstretched hands quiver incessantly. For the past few years, her husband has poured her morning coffee to keep her from spilling it. Her medical history is dotted with other serious symptoms. As a child, she had frequent seizures and headaches. At age 35, she had her uterus removed after several miscarriages.

    Quintero, now in her mid-50s, is a member of a large extended family that comprises the world's largest cluster of people with mutations that cause fragile X syndrome. This rare genetic condition is often accompanied by intellectual disability, seizures and autism1. Read on...

  • Sex differences in brain hint at roots of 'camouflaging' in autism
  • Autistic women's activity in a 'social' brain region tracks with the extent to which they mask their autism, according to a new study1.

    Their activity in this and another social brain region when they reflect on themselves or others resembles that of their typical peers. Men with autism, by contrast, show less activity in these regions than typical men do.

    The new findings reinforce the idea that autism manifests differently in women than it does in men.

    "Maybe the idea of a hypoactivated social brain doesn't apply universally to everyone on the spectrum," says co-lead investigator Meng-Chuan Lai, assistant professor of psychiatry at the University of Toronto in Canada. Read on...

  • Unusual sensory responses in infancy may hint at autism
  • Some children diagnosed with autism by age 2 show unusual responses to sights, sounds and textures as infants, according to a new study1.

    For example, the infants may cover their ears in response to ordinary conversation or shrink from being touched; they may also be slow to react to pain or changes in their environment. Their unusual reactions become more pronounced over the second year of life and tend to co-occur with repetitive behaviors.

    "Babies who develop autism have these differences from late infancy onward," says lead investigator Jason Wolff, assistant professor of educational psychiatry at the University of Minnesota in Minneapolis. Read on...

  • The 'Kit' We Created to Help Children With Autism Cultivate Friendships
  • When it comes to parenting a child on the autism spectrum, I always wished that there was a book with all the answers - a roadmap to help my son grow and thrive. But each child with autism is unique, so there are no "one size fits all" solutions to make sure I am meeting his needs.

    I may not know what to do at any given time, but I must trust I have the strength within me to figure it out and, sometimes, fight for his services and support team.

    And if the right "thing" doesn't exist? I must find the courage to create the solutions myself because if I don't do it, who will? I must step way beyond my comfort zone and take action. Read on...

  • Family and Others Looking for Help!!!


  • We hired an advocate this summer for our middle schooler, but feel that it is a lot of money for what we are getting. We just would like someone who would answer questions we can have once in a while, but in an immediate way because sometimes it's urgent...does anyone know of someone/somewhere we can get those kind of services? Thank you!! sween2503@hotmail.com



    My 26 yo son is looking for a room to rent near Miramar or Mesa Junior College.
    He is high functioning ASD, quiet, no drinking or drugs. Does not drive so needs to be near public transportation. Ideal living situation would be with 1 or 2 similar young adults. Thank you! Nancyrech2011@gmail.com 858-837-2355



    Hi any advice on adaptive pe.....there trying to take away the rooms at my son's middle school to give to the drama club. What can I do as a parent? delatorreangela@gmail.com



    I'm looking for a part time communication partner (CP) for my teenage son who uses supportive typing to communicate. CP must have English as a first language. Must have a working knowledge of high school academic curriculum. Must be familiar with software such as Word and PowerPoint. Must be eligible to work in the United States. Must have current LiveScan. Experience with Facilitated Communication preferred.
    Please email me at Shellyandotto@gmail.com if interested or want more details.



    Hi Everyone,
    I have 10 years old nonverbal Autistic son. I will be Home schooling him but I am having hard time with Curriculum. I am looking for something ABA based, to teach him daily life skills etc. He is/ was not able to learn anything Academic.we live in La Mesa CA Thanks. pardeepktung@gmail.com



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • No Wait for RDI at Family Guidance
  • Relationship Development Intervention (RDI®)

    Our primary approach for treatment of autism spectrum is a developmental program called Relationship Development Intervention (RDI®). RDI® is a unique treatment approach that empowers parents to guide their child to succeed in our dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their guides.

    Why RDI®?
    Foundations of the adult mind are developed in the first years of life through the "Guiding Relationship". From the middle of the first year of life, hour-by-hour, day-by-day, in every culture on earth, children interact with parents and other important adults in deceptively simple encounters, with a very serious underlying agenda; constructing the architecture of the child's mind and brain. Click here for all the info about RDI®!!!

    The Family Guidance and Therapy Center
    Locations in Point Loma and Mira Mesa
    619-600-0683
    https://familyguidanceandtherapy.com

  • Bubbly Brunch with TV Stars Christina Sanz and Steven Clark
  • Join us for a Bubbly Brunch with Born This Way!
    Spend an inspirational morning with cast members from Born This Way. Mingle, munch, and enjoy as we thank our volunteers and supporters and celebrate another year of friendship together.

    Sunday, January 27th, 2019
    11:00am - 1:00pm
    16934 Chabad Way, Poway, CA 92064
    Dress code is dressy casual.
    Click here for all the info and to purchase tickets!!!

  • Positive Action Community Theatre (PACT) presents Children's Theatre Workshops!
  • Register now for PACT's children's theatre workshop series, offered for elementary aged children of all abilities on Saturday afternoons from 2:00 to 3:00 p.m. This 8-week series begins January 26 and concludes March 23. Located at Dance North County in Encinitas, workshops will include improvisational theatre activities designed to improve confidence, cooperation, and creativity. It will be led by PACT Artistic Director Sandy Redmon, and by Jacob Redmon and Jovyn Anderson.

    Tuition is $100 for the 8-week series, with scholarships available. Contact Kathryn Campion at PACT for more information or to register: 760-815-8512, info@pacthouse.org, www.pacthouse.org. PACT is a non-profit organization established in 2008. Its mission is to empower individuals with unique needs and create community through the performing arts. Join us!

  • Be a HERO for 2019! Family Friendly Pricing ENDS 12/31/18
  • On Saturday, April 6, 2019, we are celebrating the 15th annual San Diego Race for Autism Superhero 5K in Balboa Park.

    This family friendly event attracts thousands of local SUPERHEROES, big and small, to Balboa Park each year and directly supports children with autism and their families in San Diego. To date, the Race has funded more than 900 community programs and classrooms.

    Family friendly pricing is good thru Dec 31st.

    Sign Up Today and be a HERO for those with autism, Race for Autism 2019! https://www.raceforautism.org

  • Cortica Care: Comprehensive Autism Treatment
  • Comprehensive autism treatment. Built on neuroscience. Delivered with compassion.

    The Cortica Care Model is the culmination of Dr. Suzanne Goh's research experience and clinical practice. This innovative approach combines optimal biomedical treatment with the most effective strategies for advancing cognition, communication, and behavior. Through the program, children achieve more meaningful social interaction, greater capacity for self-regulation, enhanced cognitive function, and improved overall health across all body systems. Over months and years, the treatment program evolves to match a child's new skills and abilities, making possible meaningful progress toward independent living, social relationships, occupation, and recreation.

    The Cortica Care Model:

    • Neurophysiology
    • Family and Home
    • Biochemistry
    • Cognition and Behavior
    • Sensorimotor Integration
    • Communication
    Together, we clarify the complex, celebrate extraordinary efforts, and witness moments of brilliance as our children grow new skills and abilities. Many of our services are covered by medical insurance plans. Contact us for all the info!!!

    Cortica Care
    7090 Miratech Drive
    San Diego, CA 92121
    858-304-6440
    http://www.corticacare.com

  • Lil' Athletes Soccer
  • Who: Children 4 to 10 with ASD
    Where: La Mesa
    Structured, basic skills training program to support kids with social and behavioral challenges, to build self -confidence, and have fun!

    Reduced Fees and Scholarships Available!!!
    Contact Family Wellness Center at 858-634-8300 or email fwc@centerforchildren.org. https://www.centerforchildren.org

  • Therapeutic Approach to Growth Offering Relationship Development Intervention (RDI) & More!
  • Therapeutic Approach to Growth believes that every individual is unique and has the potential for significant growth. We assume and foster competence while honoring family values and priorities. Our holistic approach is built upon trusting, supportive relationships and collaboration between disciplines and families.

    We specializing in the development and implementation of individualized comprehensive programs utilizing Relationship Development Intervention (RDI), Occupational Therapy, Sensory Integration, Sensory Processing, Applied Behavior Analysis, Art Therapy, and Life Balance Yoga Therapy.

    Offering support in the San Diego, Carlsbad, Orange County, and the Inland Empire.

    In addition to supporting our clients directly, we offer guidance to parents, grandparents, therapists, teachers, siblings, school staff, babysitters etc.

    Therapeutic Approach to Growth
    http://tagforgrowth.com
    admin@tagforgrowth.com
    (858) 689-2027

  • The TERI Players Present...Cirque Unique
  • Join us for Cirque Unique

    Last year you were spell-bound by the TERI Players awesome performance of Monster Story Time II The Sequel!

    Once again, the TERI Players will be holding their family-friendly Performance. This year you can witness the TERI Players as they perform Cirque Unique!

    The TERI Players are a group of talented actors and musicians with special needs complemented by the talented performing arts staff at TERI to form a theatre troupe like you've never seen!

    Fri, January 11, 2019
    7:00 PM - 8:30 PM
    Star Theatre
    402 North Coast Highway
    Oceanside, CA 92054
    Cost $10 to $100
    Click here for all the info and to purchase tickets!!!

  • Autistic Adult Social Group
  • Hosted by Autism Society San Diego
    Saturday, January 5, 2019 at 6 PM - 8 PM
    Autism Society San Diego Office
    4699 Murphy Canyon Rd, San Diego, California 92123


    Join us for our Autistic Adult Social Group! We will meet at our office at the United Way Building in San Diego. We will have a separate space for caregivers and support people to meet as well.

    This group is a place for autistic adults to come together for support and understanding. Make new friends, share questions and concerns, and get support from your peers, in a non judgmental and accepting atmosphere. This group is a open to all adults with autism as well as any support people that you require to participate successfully. We look forward to seeing you!

    https://www.facebook.com/events/355817565154481/

  • ATPF Teen Time Event - Tour a US NAVY Ship
  • Hosted by Autism Tree Project Foundation
    Saturday, January 5, 2019 at 11 AM - 2 PM
    Autism Tree Project Foundation Office
    2845 Nimitz Blvd, San Diego, California 92106


    Join our ATPF Teen Time Program for a private tour of a US NAVY Ship. The tour will provide a walk through of an active warship showing off weapons systems used during war, how the ship is navigated and what happens when Marines come onboard for deployment. There will be a sandwich bar, chips and water provided and a questions and answer session at the end of the tour. This tour is designed for teens/young adults ages 13+years old. There will be 3 chaperones to give the tour. This event will max out at 15 teens.

    We will also meet at ATPF and carpool over to the ship together!

    To sign up for this event, please call 619-222-4465 or email Lisa@autismtreeproject.org

    https://www.facebook.com/events/2009288399161536/

  • Adult Group for Individuals with Asperger-Like Thinking
  • San Diego Center for Children
    Family Wellness Center
    680 Fletcher Pkwy #202
    El Cajon, CA 92020
    Please call for all the info: (858) 634-8300
    https://www.centerforchildren.org

  • Basic Education for Students with Disabilities
  • My name is Fred Schmitz. I teach the Basic Education Class (DSPS) at the SDCCD North City Campus. The class is a computer lab for students with disabilities. We utilize educational software to help students improve their basic academic skills. Each student works at their own ability level on subjects that they choose to study. I have students of all ability levels and ages range from 18 to 70. The class schedule is Monday - Thursday 1:00 - 3:30 and the class is free. We are flexible and can accommodate students that are unable to stay until 3:30. I would encourage anyone that might be interested in this type of class to contact me at: fschmitz@sdccd.edu

    Spring Flyer Coming Soon!!!!

  • An Introduction to Applied Behavior Analysis in Poway
  • No registration required!!!

  • Congratulations NFAR Teacher Grant Awardees!
  • On Nov. 13, NFAR awarded 59 educators with funding for the 2018-19 school year, helping nearly 1,100 students and bringing our total Teachers Grants awarded over the past years to 759.

    Educators awarded were from across 15 different school districts and 5 non-public schools.

    THANK YOU to all the educators that applied for funding for their students with autism. We appreciate the work that you do!

    To learn more about the Teachers Grants awarded, click here.

  • ASD Mornings at theNAT
  • Social stories (in English and Spanish) for 7 museums in Balboa Park (The Nat, The Fleet, Museum of Photographic Arts, San Diego Museum of Art, Museum of Man, San Diego History Center, and Japanese Friendship Garden) are available online. These were created by young adults with autsim as part of the SPECTRUM Social Stories Project here at The Nat.

  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • City of San Diego Park & Recreation Therapeutic Recreation Services Program

  • The City of San Diego Park & Recreation Therapeutic Recreation Services program provides sports, recreation, leisure and outreach services to people with physical, mental and emotional disabilities.

    Services include therapeutic recreation programs and adaptive sports opportunities. These address the special needs of individuals with disabilities who have difficulty accessing and participating in recreation opportunities offered to the general public.

    Under the direction of Certified Therapeutic Recreation Specialists, activities and services are designed to maintain or improve the physical, cognitive and social functioning of those who have limitations. The target population is children and adults, ages 3 and up, with any type of disability.

    For additional questions about Therapeutic Recreation Services, please call 619-525-8247.

    Click here to view their 2018-2019 newsletter and calendar of events!!!

  • "Autism Through the Lifespan" Monthly Parent Support and Information Meetings

  • October 2018 - May 2019
    PLNU Graduate Education
    4007 Camino Del Rio South - Fourth Floor
    San Diego, CA 92108


    Please join other parents, caregivers and professionals at the following monthly informational and support group meetings in Mission Valley. These meetings will discuss the various aspects of autism through the lifespan. Each meeting will feature an expert speaker and an ASA parent mentor. This is a time for you to meet other parents, ask questions and network.
    The meetings are free and open to all. See the flyer for all the info!!!

  • Participate in Research!!! Can a Safe 'Fever' Help Autism Syptoms? Spanish Speakers Welcome!!!
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    Can a Safe 'Fever' Help AUTISM Symptoms?

    Una 'Fiebre' Para Disminuir los Sintomas de AUTISMO? 

    Pilot Study Enrollment


    This pilot study will enroll 12 families with ASD children ages 2-17 years old in a controlled study, in the San Diego and Los Angeles areas. We are testing a dry heat therapy from an FDA-cleared medical device with simulates the effect of a low-grade fever by non-invasively infusing heat into the circulatory system. The Fielding Graduate University IRB approved study is entitiled: "The Fever Effect: Do kids with autism do better when they use a device to warm their blood? Effects of six-week AVACEN Treatment Method on Autism Spectrum Disorder".

    If you are interested in participating in this pilot study please contact Frances Poteet at info@atmstudy.com and provide your phone number, email address, zip code and best time to reach you so that we can contact you. If you are not selected as part of this pilot study, you may be offered an opportunity to participate in a larger study of the device at a later date.

    Participants who complete the entire study will receive a $200 Amazon gift card. Enrolling now! Limited openings available!

    We can offer services in English and Spanish (all the way from the Orientation throughout the course of the study.)

  • Participate in Research: Caregiver/Family Member Survey
  • business_finance_research.jpg

    My name is Richie Sapp. My twin brother, Mikey, has been attending the TERI day program for several years now. I am a third-year medical student (MS3) at Stanford School of Medicine where I am currently taking a research year to focus my efforts in medical education, specifically to improve patient care for individuals with disabilities. I am creating an elective course for medical students/PA students for Winter Quarter 2018/19 and I could use your help.

    Please consider completing this first survey and if your son/daughter would like to complete the second survey on their own, I would welcome that too.

    1) This survey is for parents/caregivers of individuals with disabilities. Caregiver/Family Member Survey, which will help me with what content to put together for the course. Please feel free to share the survey with anyone who might be interested in sharing their experiences. Here is the link: https://goo.gl/forms/FC0pVxymGi92OBq73

    2) Additionally, if you know anyone with a disability who would like to speak about their own experiences, there is a separate survey for individuals with disabilities. The link is below:

    https://goo.gl/forms/S2aJ7DuFOqhqgxl73

    Thank you so much for all your support!

    Please email me if you have any questions.

    Thank you,
    Richie Sapp
    ( rwsapp@stanford.edu)

  • Brain Imaging Studies for all Ages with or without Autism

  • The Brain Development Imaging Labs at San Diego State University are looking for individuals with diagnosed or suspected autism to participate in a brain imaging study. Participants would receive around $150 plus free cognitive testing and an MRI scan. Child participants would receive a free assessment summary and image of their brain as a bonus! We are looking to recruit from all ages, but we especially need adults, ages 40-65 years, to participate. If you know someone who might be a good fit for our study, please share this information with them. Thank you.

    At SDSU!!! To find out more, please call 619-594-0176 or email BDIL@SDSU.EDU.
    http://bdil.sdsu.edu/

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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