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A Note from Cait
Over the past few weeks, we’ve been talking with Patient and Family Advisory Council (PFAC) members from several health systems. We know the invaluable service these councils provide, and weren't surprised to learn that many PFACs have played a significant role in bringing OpenNotes to their institutions. We share the experience at UCHealth in Colorado below.
We’re also excited to share work published this week in the Journal of Medical Internet Research (JMIR) shedding light on what patients value about accessing their visit notes. I encourage you to read the article (linked below) and add to the discussion on Twitter, Facebook, LinkedIn or our movement hub, a new page on the OpenNotes website with materials created to help patients ask for their notes and share their experiences with others.
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Patients Out Front!
Bella Wong is a grateful double lung transplant patient and a committed member of UCHealth's PFAC. She says, “Whatever is going to help the next person within their journey to help them get better and make it an easier process, I’m going to do it.”
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Meet the Investigator: Macda's upcoming research looks at note sharing and vulnerable populations.
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Newest OpenNotes Team Member, Liz Salmi Blogs for The Beryl Institute
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OpenNotes: Doctors, Patients and Caregivers on the Same Page
After dating me for only 18 months, my now husband became my health care partner. I was 29. He was 31.
In mid-2008, I suffered a massive seizure, landed in the ER, and a scan revealed I had a mass in my brain. Brett suddenly found himself in love with a 29-year-old gal with brain cancer. Read more.
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Now You Can See More!
Yale Health, serving students, faculty, staff and family members at Yale University, is the most recent health system to implement OpenNotes.
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OpenNotes Is Partnering with Citizen Advocacy Center (CAC)
The Citizen Advocacy Center provides training and support for public members and for the health oversight boards on which they serve. Learn more here.
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OpenNotes Reaches 16,038,000!
Please join us in welcoming 8 health systems to the movement.
Send them a note, or post to their Facebook or Twitter.
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“The patient is activated and ready in a very different way," Joann Elmore, MD, University of Washington. Listen to the
Podcast
here.
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Upcoming Webinars
OpenNotes is Hiring
We're in search of a research assistant to join our team. Details are here.
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