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Update: Gabby Giffords 
 
Gabby Giffords
 

 Read about Gabby's skydiving jump!

 

What's your approach to your Aphasia?

 

Personal Note from the Editor:
What's your approach to your aphasia?    Have you accepted your limitations  or are you working every day on your speech and  your writing?

 

A recent newsletter from The Aphasia Center contemplated the "4 reasons that your doctor may tell you there is no hope" for your aphasia recovery.  Dr Lori Bartels-Tobin, the CEO  at The Aphasia Center , an intensive aphasia program located in St Petersburg, discussed why doctors may say that: 

 

            1/ Your doctor forms an opinion about you and your recovery potential during a very short visit.

 

            2/ Your doctors and other medical professionals may have a different view of progress and quality of life.

 

            3/ Medical professionals are not necessarily up on the latest aphasia research.

 

           4/ Some medical professionals still believe that aphasia recovery is limited.

 

I have first-hand experience for comment # 4.  When I had my stroke in October 2010,  my neurologist and speech language pathologist told me and my family  that I should not expect to get  any better.  They both restated the comment that aphasia recovery is limited, that if you're not better with the first 6 to 9 months, then there is no hope for recovery

 

By working with Bill Connors and Aphasiatoolbox, I know better.

 

I worked with Bill from August 2011  through September 2012. I'm now working as an Aphasia Practice Coach with other people with aphasia who are travelling their own pathway to recovery. 

 

We have seen research which shows that an aggressive approach  to practice and therapy yields  greater results.  We know that neuroplasticity works.

  

Where do you want to be  with your recovery?

What is Wordle?
 
Wordle is an app for generating "word clouds" from text that you provide. 
 
You can tweak your clouds with different fonts, layouts, and color schemes. The images you create with Wordle are yours to use however you like. You can print them out, or save them to the Wordle gallery.
 

 

The following is an example of a wordle that we created to share with aphasiatoolbox newsletter readers:
 

Patience, Listening and Communicating with People with Aphasia 

 

 

 

The RVA Aphasia group, a stroke support group in Virginia, created this 18 minute video discussing Patience, Listening and Communicating.


The video helps people better understand what it's like to have aphasia and how best to communicate with someone who has it.

 
Patience, Listening and Communicating with Aphasia Patients
Patience, Listening and Communicating with Aphasia Patients
 

  

SLP Corner
 

 

 

 
Are you looking for tips on how to successfully facilitate a stroke support group?

The National Stroke Association offers three webinars in its "How to Build a Stroke Support Group" series: 
 
Webinar 3:  Facilitating a Stroke Support Group 

 

These stroke support group webinars are available for viewing on the NSA website. 

 

  

Caregiver Corner
 
Aphasiatoolbox just found a great article on self-care for caregivers,  in Stroke Connection Magazine.
 
The article is called "7 Practical Ways to find time for Self-Care ."  
Motivation  
 
 
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January 31, 2014
"Finally, when finding words is hard, finding help is easy . . . with BCAT."
In this edition
Greetings! 
 
This is Sharon Rennhack, the  chief  editor for the aphasiatoolbox newsletter.  
 

In this month's edition,  we're reporting on the results of the November 2013  Survey.  

 

We found some interesting things including:

 

> Who's reading  the Aphasiatoolbox newsletter? 

 

>  What do people with aphasia think about their recovery?

 

> What concerns do caregivers have? 

 

>  What do SLPs want?

 

> Read the section - November 2013 Survey Results  - Who's reading Aphasiatoolbox?  and November 2013 Survey Results - Tabulation.

 

We hope you enjoy this month's newsletter.

 

Sharon Rennhack

Chief Editor 
Aphasiatoolbox 
November 2013 Survey Results - Who's reading Aphasiatoolbox?

 

Editor's Notes:
This section reviews Questions 1 through 5.

 

1.  What is your interest with aphasia and aphasiatoolbox?  (Select one)

 

> I am a Speech Language Pathologist.        

64%    

  

>  I am a person with aphasia or a person recovering  from aphasia.      

19%                

 

> I am a caregiver or a friend of a person with aphasia.     

 14%     

 

>Other/No Responses                                                                   2%      

  

2. What did you find most useful in the 2013 newsletters ?   (You can select more than one)

 

> I read the news section about  aphasia.

SLP      PWA       CARE:     

63%      79%          68%

 

> I used the free protocols and materials.  

SLP    PWA    CARE :

49%    31%      27%

 

> I read the  viewpoints from Bill Connors and Editor's notes.

SLP    PWA  CARE :

36%   42%     40%

 

> I  viewed the informative videos.

SLP    PWA    CARE :  

34%    32%     47%

 

3. What do you want to read more of in 2014?  (You can select more than one)

 

> I want to  read about new and novel treatments for aphasia and related disorders. 

SLP      PWA       CARE:     

84%      53%         80%

 

> I want to read more about tools, materials and software applications to help with aphasia recovery.

SLP      PWA       CARE:     

82%      80%         93%

 

> I want to read personal accounts of people's journeys with aphasia and related  disorders, especially those who have done well.

SLP      PWA       CARE:    

25%      63%         60%

 

> I want to see more interviews and videos.

SLP      PWA       CARE:     

29%     31%          20%

 

4. Would you like us to share with you the results of our survey?

 

No                   33.9%

Yes                 64.1%

 

5.  Data is omitted from tabulation. 

 
November 2013 Survey Results - Tabulation

 

Editor's Notes:
Our review of the November newsletter survey results show that people with aphasia have hope and determination for their recovery.   
 
Here's our top three results: 
 
#1 - People with Aphasia and Caregivers have hope and determination for recovery. 
 
#2  - The average number of hours per treatment session is 1 to 3 hours; the average number of hours for daily practice is 1 hour. 
 
#3 - There appears to be a disconnect in what caregivers and people with aphasia say "would most likely help to improve your aphasia".  PWA say more practice with a coach and more training for coaches would help them the most. Caregivers opt for more individual therapy with an SLP. 
 
The survey results also indicate that  people with aphasia  AND caregivers do not know what to do to continue recovery. 
 
Our goal for the newsletter this year is to encourage people with aphasia to become aggressive with their own recovery and  to show them how to accomplish that. 

 

>      Don't accept your limitations.

 

>   Ask for additional  work and guidance on how  to practice from your SLP.

 

> Be smart with your practice. At Aphasiatoolbox, we suggest that you practice for at least 2 to 3 hours a day.

 

For more results, see the tabulated Survey results! 

 

 

Speech Language Pathologists

 

Caregivers    

News about Aphasiatoolbox

 

>  New ASR Exercises

MODULE:   Semantic Cognition

EXERCISES:     Time Concepts

Exercise: Time Concepts: 1
Exercise: Time Concepts: 2
Exercise: Time Concepts: Helping Verbs

This Aphasia Sight Reader exercise helps to develop the concept of time for the person with aphasia, and helps to identify  tenses.
 
Time is a concept which is related to our perception of reality. There are three times: past, present and future. Tense is a grammatical category which is marked by verb inflection and expresses when an event or action happens in the flow of time. 
 
The following images show  examples from the exercise - Time Concepts 1: 
 
 





The Aphasia Center of Innovative Treatment, Inc | | bill@aphasiatoolbox.com | http://www.aphasiatoolbox.com
800 Vinial Street, B408
Pittsburgh, PA 15212

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