Stroke Walk 2018
Saturday, September 8, 2018
- Theis Park, 4800 Rockhill Rd, KCMO
- On-Site Registration 8-9:30 am
- Walk Begins 9:30 am
Join us for a fun morning of music, breakfast, and a walk in the park. Fun for the whole family. Walkers of all abilities are welcome.
For more information click on the name below:
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Sponsors
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Volunteers
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Registration
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If you are unable to join us and would like to make a donation, click here!
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Healthcare Professionals Conference
"Stroke Care - Expand Your Knowledge"
Wednesday, August 29, 2018
7:30 am to 4:30 pm
This conference will address areas related to medical/rehabilitation care, research and community services across the continuum in working with individuals following a stroke.
Registration in the amount of $99 per attendee is required prior to Friday, August 24th, 2018. Click
here for online registration.
Click
here for the conference brochure with all the details.
This conference will be held at:
Lockton Company
444 W. 47th Street
Kansas City, MO 64112
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Young Stroke Dilemma:
How Can I Be The Parent I Was?
"So much has changed. The stroke took away my confidence; I don't look the same; I don't sound the same; I can't do the same things. How can I be a parent to my children again?"
~37 year old stroke survivor and mother
Many of the young people who experience stroke are asking themselves these and other questions as they try to reclaim their lives after a stroke. They express frustration and impatience with the slow nature of their recovery. They watch their spouses take on heavy burdens of care. And they experience the hesitancy of their children to interact with them. It hurts to be a young parent who has had a stroke.
Stroke is usually considered an event that happens to older people. There are about 800,000 strokes in the US annually, with 25% of those occurring in people under the age of 65. Alarmingly, almost 200,000 people must face disruption of their work and family life as well as facing income and financial instability. Some of these survivors have families with children who must adjust to having a parent who is disabled.
The American Stroke Foundation launched a Stroke Survivor Navigation Program in July of 2018. Since that time, 61% of referrals to the program are people with a stroke who are under the age of 65. Most of these clients are concerned about returning to work, returning to their family roles and resuming normal activities.
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Stroke Education Series
The American Stroke Foundation and The University of Kansas Health System partner to provide a stroke education speaker series as part of the ASF Next Step Program.
Wednesday, August 1, 11 am - noon
Dietary Measures to Reduce Your Stroke Risk
Amy Huelle, RD
Classes meet at:
Sylvester Powell Jr. Community Center, Room B
6200 Martway St, Mission, KS
The Stroke Education Series is free and open to the public. Click
here to reserve your space today!
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Meet A Next Step Participant
The American Stroke Foundation Next Step Program is a wellness program to help people who have had a stroke continue to improve and regain independence in daily living skills.
Meet Tom
by Katie Zimmerman, OT student
Tom currently lives in Blue Springs, MO. He joined the Navy after graduation from high school and took classes through Tulsa University while he served and gained his degree in
mechanical engineering. He came back to Tulsa, OK, where he was from, for a 30 day leave and decided to stop in at a drive-in food establishment. Tom met a young lady named Donna working at the drive-in. Tom then asked this beautiful young lady to go to the supper club that evening with him. Within that 30 day leave, Tom knew he "wanted to keep her". Tom married Donna during his 30 day leave. They have been together for a wonderful 63 years. Tom not only was a mechanical engineer but also a pastor for his church in Lawrence, Cornerstone Baptist church. Tom and his wife have four children, three boys and one daughter. Tom enjoys spending time with his wonderful grandchildren.
Tom had his stroke in June of 2017. Tom has been attending the American Stroke Foundation (ASF) since November of 2017. Tom explained his favorite part of ASF is being able to have assistance with gaining his strength back and working on regaining his ability to walk. Tom stated he has gained back a lot of his strength, his voice, and his ability to complete activities independently since he had his stroke. Tom is driven to work hard each day at ASF and is proud of everything he has accomplished. Tom stated it depends on someone's drive and hard work to be able to regain your independence and your life. He and his son come to ASF on Tuesdays and Thursdays at the Blue Springs location and work with the OTs to reach his goals he is still working to accomplish. Tom would like to be able to return to driving and is still working towards this goal as well as walking independently and with confidence.
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 Young Stroke Dilemma
(continued)
According to Delanie Stephenson, an internet blogger, "No one had prepared me for the emotional effects of stroke... No one prepared me for PBA (pseudobulbar affect)... Mommy was so confusing to [my children]. When they get home from school, they never know if they'll find laughing-her-head-off Mommy, crying-inconsolably Mommy or angry Mommy."
Another writer, Jamie, says, "I was unable to care for the children alone when I got out of the hospital. My children still had to go to full-time daycare while my husband was at work. I couldn't cook, walk, type or pay bills, grocery shop or do the laundry."
So, how does one reclaim the role of parent in a family changed by stroke? Here are some suggestions from the Ontario Stroke System publication "Parenting after Stroke."
- Communicate. Give children a chance to express their feelings and concerns. Be open, sensitive and honest about the effects of stroke.
- Be approachable. Make time for your children. Don't let the stroke set the agenda.
- Maintain routines within the family. Make fun a part of the routine.
- Pace yourself to avoid burnout with your recovery and with your parenting.
- Remember to let children be children. They have their own issues with growing up. Don't ask them to be an adult just yet.
- Make your children part of your recovery team. Help them understand what has happened. This is an opportunity to teach them how to handle a crisis and an emergency. It is also a chance for them to learn how to avoid a stroke themselves. After all, they now have a family history of stroke, one of the risk factors for stroke.
- Seek out ways to cope as a family. Share what needs to be done and plan as a family how to cope with it. Children are very intuitive and can be great problem solvers. Empower them to solve some of the problems you face.
- Get help from others when you need it. Learn to ask for help. Many people in your circle of family and friends are willing help if asked. Don't be shy about asking another parent to provide transportation or to do some shopping. Don't be shy about asking for personal help for yourself.
- Let your health care team (doctors, nurses, therapists, case managers, etc.) know what your concerns are. They may put you in touch with a program that can help.
- Find a stroke support group and attend more than once. You may find others who have met the challenge of reclaiming parenting. Even stroke survivors over 65 can help with this topic if you bring it up. After all, they have a lot of life experience to draw upon!
- Be kind to yourself as you move through your recovery. "Parenting is an adventure and a lifetime commitment to surprises and challenges, achievements and doubts," according to the Ontario article. Parenting is not something that you get right every time. Learn to love and forgive yourself as much as you love and forgive your children.
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by Jane Henderson, Program Coordinator
Stroke Survivor Navigation Program
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Stroke Walk 2017 Pictures
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ASF Locations
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Business Office
6405 Metcalf Ave, Ste. 214
Overland Park, KS 66202
913-649-1776
ASF Next Step Programs
913-649-1776
Sylvester Powell Jr.
Community Center
6200 Martway St
Mission, KS 66202
Monday/Wednesday/Friday
Blue Springs Family YMCA
1300 Adams Dairy Parkway
Blue Springs, MO 64014
Tuesday/Thursday
Cleaver Family YMCA
7000 Troost Avenue
Kansas City, MO 64131
Monday/Wednesday
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Contact Us
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American Stroke Foundation
913-649-1776
Executive Director
Program Director
Next Step Program Coordinator
Director of Marketing
Stroke Survivor Navigation Program Coordinator
Next Step
Program Coordinator
Next Step
Program Coordinator
Mission Facility Coordinator
Administrative Assistant
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Amazon Smile
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Don't forget that every time you shop on Amazon.com, use AmazonSmile. Amazon will donate 0.5% of the purchase price on all eligible items to the American Stroke Foundation when you choose ASF as your charitable organization! For more information, go to smile.amazon.com.
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Donate a Vehicle
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We can accept any vehicle, any condition! Insurance Auto Auctions (IAA) processes all donations and provides tax receipts. The donation process is easy and completely free to donors. Call 1-800-269-6814 or click here to start the process online.
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A Lasting Legacy
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You can make sure the ongoing and future needs of individuals who have survived a stroke are met by including the American Stroke Foundation in your will or estate plans.
This might include a bequest, life insurance policy, or trust arrangement. Consult your attorney or financial
adviser
on how you can make a planned gift.
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ASF Board of Directors
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Chair
Sara Baker
Vice-Chair
Janice Sandt
Secretary
Mary Jo Morrow
Treasurer
Betsy Rosetti Brown
Marques Mosby
Kathy Parker
Kimberly Poecker, DO
Karina Shreefer
Rakesh Vardey, MD
Advisory Board
Lyde Doston
Bob Frazier
Micki Harrison
Spence Heddens
Steve Israelite
David Marshall
Marilyn Rymer, MD
Robbie Small
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