March 2019
Dear Children's Heart Foundation Families and Donors,

On behalf of The Children's Heart Foundation, thank you for your help in making Heart Month an impactful month for The Children's Heart Foundation. Throughout February, many successful events and fundraisers took place across the country, all helping to raise funds for our critical mission of funding the most promising congenital heart defect (CHD) research.

CHF was proud to have representation at the 2019 CHD Legislative Conference in Washington D.C., which took place March 4th and 5th, where we met with members of Congress about the need for research and data collection to improve understanding of congenital heart disease across all ages to improve care and save lives. Our CHF representatives had successful meetings and were glad to have a seat at the table.

We're looking forward to the start of our 2019 Congenital Heart Walk series, which begins in less than a month, and are excited to see you all as we walk for CHD research. Our vision is a world in which everyone born with a CHD has the chance to live a long, healthy life, and that eventually, CHDs will be eradicated altogether. With your help, we are making great progress toward that goal! Thank you for your continued support. Working together, we will fulfill our critical mission.

Sincerely,
Barbara Newhouse
Chief Executive Officer
Congenital Heart Walk Season Begins Next Month!
Our 2019  Congenital Heart Walk  season kicks off April 7th! We’re looking forward to seeing all of you for these exciting and updated events which will include entertainers, research remarks, and more! Across the series, more than $98,000 has already been raised for critical congenital heart defect (CHD) research in support of CHF’s mission, thanks to the hard work and generosity of our walkers and donors!

The 2019 Congenital Heart Walk series will bring together over 10,000 walkers, hundreds of teams and thousands of donors in the fight against CHDs. Visit  www.WalkforCHDResearch.org  to get underway as a fundraising walker, team captain, volunteer, sponsor, or donor at one of our 21 walks across the country! Wherever you are, there’s a walk for you – you can fundraise and earn incentives at our Virtual Walk !

Check out our 2019 fundraising incentives here ! After you’ve viewed our incentives, download our 15 Fantastic Fundraisers and our Team Captain Success Guide to support your fundraising efforts! Happy walking and fundraising, and thank you for Placing Children at the Heart of Research ! Please email us with questions or to volunteer - WalkforCHDResearch@ChildrensHeartFoundation.org .
The Children's Heart Foundation Rings Nasdaq Stock Market Opening Bell
On February 19th, volunteers and supporters of The Children’s Heart Foundation, along with their heart warriors, visited the Nasdaq MarketSite in Times Square to ring the Nasdaq Stock Market Opening Bell! CHF enjoyed its largest global stage ever, including the debut of our updated logo.

Danielle Visvader Pradas, President of The Children’s Heart Foundation New York Chapter, shared why The Children's Heart Foundation and its mission to fund congenital heart defect (CHD) research are so important to her and her family and then rang the Opening Bell. We want to thank Nasdaq for this amazing opportunity to spread awareness about CHDs and the mission of CHF, especially as we welcome expanded support from corporations and other community members for this critical cause.
CHF Call for Research Proposals is Now Open
CHF’s 2019 Call for Research Proposals is now open! With the financial support your efforts make, CHF seeks to fund life-saving, life-changing CHD research in clinical cardiology, basic science, population science, and advancement of surgical/interventional techniques, including, but not limited to the following areas:  

  • Genetics
  • Biochemistry
  • Pharmacology
  • Devices and procedural research (cardiac catheterization and surgery)
  • Neurodevelopmental and functional outcomes
  • Quality and policy regarding delivery of care, coverage and access
  • Maternal environment and modifiable disease impact on fetuses with CHD
  • Fetal diagnosis and intervention
  • Long-term care of adults with CHDs

Investigators should submit Research Funding Applications at  ChildrensHeartFoundation.submittable.com with a deadline of Friday, June 7, 2019 at 5:00 pm CT.
Congratulations to the Following Events for their Successes!
Graeme’s Run
The 4th annual Graeme’s Run, held February 9th in Katy, Texas, was the biggest ever, raising $93,000 for The Children’s Heart Foundation and Hayden’s House of Healing (all sponsor and registration proceeds benefited CHF)! Stephanie McDaniel, who leads Graeme’s Superheroes and organizes the event in memory of the son she and her husband lost to a CHD, shared,

“It was chilly day, but the community came out to show a tremendous amount of support. We had almost 1,500 people register for the event this year! There were some great activities for people of all ages, including bands, bounce houses, a trampoline, face painters, balloon animal artists, free food donated by local restaurants and businesses, and more. Because of all our participants, donors, and sponsors, we were able to raise a record amount of money. In fact, the $93,000 raised this year exceeded last year's record by about 50%! When we first had the idea of having this event, we never imagined being able to help raise this much money to fund valuable CHD research and support grieving families. We can't begin to thank everyone that volunteered, participated, or sponsored! It is truly amazing and humbling to see a community come together to support our family, our little angel, and all of the heart babies around the world. Graeme was a blessing to our family, and we are so proud that he is now such a blessing to so many heart families. We love getting his story out into the world. Thank you all again for not only making this event possible, but for making it such a resounding success.”
Hops for Hearts
On February 13th, the Hickory Room at Wolf's Ridge Brewing hosted generous and engaged Columbus-area supporters at our 2019 Ohio Hops for Hearts event. The evening allowed supporters to mix, mingle, and meet new heart families and advocates in support of CHF! Four researchers from OSU Davis H&LRI and Nationwide Children’s Hospital shared remarks on CHD progress and advancements being made in Columbus, and the strong partnerships between pediatric and adult CHD specialists there. The event raised $13,000 for CHD research thanks to our amazing supporters, committee members and volunteers!
Hearts at Play
The Illinois Chapter held their annual Hearts at Play event on February 16th and the Museum of Science and Industry in Chicago. Hearts at Play is a very special event because it brings local heart families, neighbors, friends, sponsors, and medical professionals together for a night of fun, exploration, and lasting memories - all to raise awareness and funds for CHD research. This year, 500 supporters attended the event, including special guests Costumers with a Cause, Manny the Frenchi - our favorite Philathropup, and White Sox mascot South Paw, who all contributed to the excitement of the evening. With ticket sales, sponsorships, raffles and silent auction, the event raised over $50,000! The event continues to grow each year, thanks to the outstanding volunteers and committee who help organize this wonderful family benefit.
Gainesville Walk for CHF
The 2nd annual Gainesville Walk for The Children’s Heart Foundation, hosted by Gators for CHF, a student group at the University of Florida, raised $7,600 to support congenital heart defect research. Held February 23rd at Flavet Field on the university’s campus, the event united over 100 CHF supporters. Speakers included Courtney Catani – mom to a 1-year-old heart warrior, Dr. Jennifer Co Vu - Director, Fetal Cardiac Program at UF Health Congenital Heart Center, Kristen Vicknair – President of the CHF Georgia Chapter, and Martha Hauber – CHF’s National Board Chair. Thank you to everyone who supported this wonderful event!
Upcoming Events Benefiting CHF
March 16: Trivia for Hearts
St. Louis, MO

Folsom, CA

Los Angeles, CA

Mansfield, TX

Boston, MA

Lawrenceville, GA

Hershey, PA

Philadelphia, PA

Kings Park, NY
The Children's Heart Foundation
(847) 634-6474