Patient Perspectives in Vestibular Schwannoma Surveillance
Washington University School of Medicine in St. Louis invites you to participate in their research study Patient Perspectives in Vestibular Schwannoma Surveillance. The researchers want to interview patients who are either actively undergoing observation or underwent observation before ultimately receiving treatment for their vestibular schwannoma.
Eligible participants will complete one screening survey, one follow up survey and one phone interview. The researchers hope that in conducting these interviews they can not only gain insight into the important factors in this decision making process, but also help guide future research for patients considering whether to undergo observation for their vestibular schwannoma. You can find more information here.
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In our continued efforts to support patients throughout their AN journeys, the ANA is launching a program to learn more about the care coordinator experience. We’d certainly appreciate your participation!
We're inviting patients and caregivers to complete a brief survey. We're interested in learning about how a resource like a care coordinator helped you, what your experience was like, and if there are additional, complementary resources you feel could also provide benefits to patients.
We very much appreciate your participation in helping us fulfill the mission of the ANA!
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Upcoming Virtual Support Group Meetings |
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You don't need to be a resident of a particular area to participate – all are invited to attend these interactive opportunities.
To register or for more information, click on the event links below. Space is limited, register now.
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San Francisco/Oakland, CA Support Group
5:30 p.m. PT
Update on Audiologic Management of Acoustic Neuroma
New York City Support Group
11:00 a.m. ET
Caring, Sharing, Networking and Support
Albany/Mid-Hudson, NY Support Group
10:00 a.m. ET
Caring, Sharing, Networking and Support
Houston, TX Support Group
1:30 p.m. CT
Vestibular Therapy in AN Patients
*Meeting is full*
Cincinnati, OH Support Group
7:00 p.m. ET
The Retrosigmoid Surgical Approach to Treat Acoustic Neuromas
Caregiver Support Group
7:30 p.m. ET
Caring, Sharing, Networking and Support
Headache Support Group for Post-Treatment Patients
1:00 p.m. CT
Post-Treatment Headaches and Management Strategies: A Discussion With Agnes Garino, ANA Volunteer
*Meeting is full*
Philadelphia, PA Support Group
3:00 p.m. ET
Caring, Sharing, Networking and Support
Nashville, TN Support Group
5:30 p.m. CT
Caring, Sharing, Networking and Support
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Support Group for Newly Diagnosed Patients
7:00 p.m. ET
Caring, Sharing, Networking and Support
St. Louis, MO Support Group
1:00 p.m. CT
Caring, Sharing, Networking and Support
Seattle/Tacoma Support Group
1:00 p.m. PT
Options for Facial Paralysis after Acoustic Neuroma Surgery
Roanoke, VA Support Group
7:00 p.m. ET
Caring, Sharing, Networking and Support
State of Michigan Support Group
7:00 p.m. ET
Caring, Sharing, Networking and Support
Sacramento, CA Support Group
1:00 p.m. PT
Caring, Sharing, Networking and Support
Cincinnati, OH Support Group
7:00 p.m. ET
Facial Rehabilitation Therapy
Young Adult Support Group
7:00 p.m. CT
Caring, Sharing, Networking and Support
Rhode Island (SE New England) Support Group
3:00 p.m. ET
Caring, Sharing, Networking and Support
Washington, DC Support Group
10:00 a.m. ET
Caring, Sharing, Networking and Support
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The Acoustic Neuroma Association would like to thank UC Health for partnering with us as a Platinum sponsor. With a comprehensive program that includes specialists in Neurotology, Otology, Neurosurgery, Radiation Oncology and more, UC Health offers acoustic neuroma patients customized treatment plans using a team approach. They are driven to deliver leading-edge treatments and world-class care with kindness, compassion and efficiency. We are grateful for their ongoing partnership and support.
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Privacy and Security
The Acoustic Neuroma Association operates a secure data network with our security periodically reviewed and enhanced as necessary. Only authorized ANA personnel have access to the information you provide. The ANA does not endorse any commercial product, physician, surgeon, medical procedure, medical institution or its staff.
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