We present the 2023 Annual Report, the first report from the Foundation.

We are pleased to announce that our first Annual Report is now available on our website. Transparency is one value fundamental to us, and we want to ensure that all our efforts and achievements are visible and traceable.

You can view the activity reports, accounts, and financial statements for 2023 in the Transparency section of our website. Additionally, we invite everyone interested to join our commitment to transparency by collaborating with us.

Annual Repport 2023

Fundraising Events



This summer is the perfect time to find ideas and activities to actively support our mission. The more people join, move, and get involved with our organization, the more effort, energy, visibility, and funds we'll gather in our race against Usher 1B. Your participation is crucial!

For more information on how to collaborate, visit the Ush Supporters section on our website.

We are organizing several events to raise funds and increase awareness about Usher. We would love to have your support. There are many ways to get involved, with varying levels of commitment and dedication. Here are two ways you can contribute, get involved!



Join & help in an Existing Event

In September, we will celebrate our first event of the month, Usher Syndrome Awareness Day and Vestibular System Week. These are two excellent opportunities to mobilize the community and raise awareness about Usher syndrome. Mark it on your calendar and join us!

Host Your Own Event

Have a creative idea for a fundraising event? Want to organize one in your community? We are here to support you with resources and guidance to make your event a success. Reach out to us and let’s make it happen together!



Contact us!



By joining forces, we can make a significant impact and drive forward our mission to find a cure for Usher Syndrome Type 1B. Your involvement not only helps raise funds but also increases awareness and brings us closer to our goal.

Together, we can make a difference.

Join us today and be part of the change!

For more information, visit the Ush Supporters section on our website.

And for those of you who are already members...