Dear Monogenic Diabetes Registry Community,

We hope you and your families are doing well! Your continued participation in the Monogenic Diabetes Registry is greatly appreciated. Whether it’s completing an annual follow-up survey, updating your contact information, or referring other family members with diabetes, your involvement is truly the fuel for our studies.


We hope you enjoy this issue of the Monogenic Diabetes Newsletter.

2022 Monogenic Diabetes Family Forum


In July, we hosted the Monogenic Diabetes Family Forum. Through educational sessions and one-on-one physician sessions, attendees learned more about how to identify, manage, and advocate for monogenic forms of diabetes.

Were you unable to attend?

View event recordings here.

Monogenic Diabetes Participant Portal


This summer we launched our new Participant Portal! The Monogenic Diabetes Participant Portal is a convenient way for people to access and complete surveys, view previously completed surveys, and upload documents for the study team to see. If you are interested in learning more about the Portal, you can email:

New Monogenic Diabetes Website


Our website is getting a brand new look! These improvements will make it easier for you to view vital information about monogenic diabetes and our current research.

Check out the new website here.

Visit Our Website


KNCJ11/ABCC8 Webinar November 29th


Join us on Tuesday November 29th from

7 – 8 pm CST to hear from members of our care team about topics related to living with KCNJ11/ABCC8 monogenic diabetes.

Event information can be found here.

Registry by the Numbers

Over 2,000 families with over 1,200 confirmed Monogenic Diabetes diagnoses are currently enrolled, making this the largest Monogenic Diabetes Registry in the United States. Our Registry participants make the research we do possible – so thank you to all who participate.

If you or someone you know may have monogenic diabetes and is not currently enrolled in the Registry, they can contact our team at

Learn More Here

Let's Get Social

One of the best ways to keep up with the Kovler Diabetes Center is to connect with us on social media.  If you haven’t already, follow us on Facebook, Instagram and Twitter for up-to-date information on events, education and more!