November 2025 PKD e-News

Welcome to the November 2025 PKD e-News from the PKD Foundation of Canada! This month we have information on a PKD research study you might be eligible for, some upcoming French-language webinars, understanding the connection between PKD and PLD, and more!

What did this year's Walk to END PKD feel like? Maybe you walked with family, maybe you cheered from the sidelines, or maybe you met someone who understood your PKD story in a way that caught you off guard.

However your Walk to END PKD or PKD Picnic went, your experience matters. We are already planning for next year, and your feedback helps shape the events.

If you have 2 minutes, we would love to hear what worked well and what could be even better.

Did you know your investments can help people affected by PKD?

Many people give to charity through monthly gifts or one-time donations, but gifts of securities can make an even bigger impact. It's an option that some donors never realize they have, yet it can support vital PKD programs or research in a meaningful and tax-smart way.

Through the CanadaHelps website, you can donate securities from your investment portfolio with a simple online process.

If you are curious, or thinking about giving before the year ends, you can explore how it works and decide if it is right for you.

The MAPLE study is looking for Canadians with ADPKD to help test a possible treatment.

If you’re between 25 and 65 and live in or near Ontario or Quebec, this could be your chance to support real change.

Not sure if the study is right for you? Talk to your doctor about your eligibility for the clinical trial. If you have questions about the study, post your questions on My PKD and we’ll get answers directly from the GSK study team.

What's new in PKD research? Our live feed on My PKD is updated often, so you can stay close to the latest discoveries, stories and breakthroughs.

Simultaneous Liver-Kidney transplant – considerations and outcomes

Aging cells may play a key role in PKD – and offer a new way to treat it

Blocking a key enzyme may help slow cyst growth in PKD

Ready for something en français? We have three French webinars coming up, starting next week, with helpful sessions on medications, nutrition and the new KDIGO ADPKD guideline.

Got a question about PKD care? Our My PKD forum is open for francophones who want to talk about medications, nutrition or the new KDIGO ADPKD guideline.

Ask your questions, we will get the answers.

Did you know your liver can be part of the PKD story too? Many people are surprised to learn how PLD connects to PKD.

Curious about what this means for you? Read this month's kidney nutrition blog.

Ever wonder if genetic testing could help your family? Our new webinar recording explains when testing is useful for PKD, and what it can and cannot tell you.

Curious how Jinarc / tolvaptan works in real life for ADPKD patients? Our new patient forum recording explains how tolvaptan helps, who benefits most, and what to expect if you are considering treatment.

Also listen to ADPKD patient Erika Williams' personal experience with tolvaptan.

Did you know that you can easily watch the videos of our past learning events through My PKD?

Go to the Events section, click on "Past", then click on the event you want to watch.

You can easily find the video link within the event listing.

What if you could replay every moment from this year’s PKD Summit?

Seven rich sessions - including family planning, pregnancy, exercise and emergency readiness are coming soon to YouTube!

Need a place to breathe a little?

Our next Late-Stage PKD Mind Matters meeting is coming soon and offers a gentle space for patients and caregivers to connect and feel understood.

Tue 18 Nov 2025 @ 12 noon EST

Looking for a calmer moment in a hard season?

Our December late-stage PKD peer support meeting with therapist Joy Pekar offers a warm space to talk, listen and feel understood.

Ever wonder what sparks a new adventure? ADPKD patient Eric Hampel, who climbed Kilimanjaro in 2024, is taking on the Three Peaks Challenge in 2026. His story is pure fuel.

What does healing look like in real life? This new CDTRP webinar shares powerful stories and medical insight for African, Caribbean and Black communities affected by transplant care.

22 Nov 2025 @ 12 noon EST

Working for a cure,

Your friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.

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