November 2015 NEWSLETTER
Serving Northern California from Fresno to Monterey to the Oregon border
In This Issue
Website Quick Links
2015 Gala Sponsors

Green Charitable Foundation
Remick Family Foundation


Edward Chang M.D.
- Keeney  Family
Youker Consulting Group
Epilepsy Center of Excellence

Bronte Epilepsy Research Foundation
Sande Schlumberger & Roxane Schlumberger Hume
Barbara Suskind &
Lowell Richards
Richard Thalheimer
Brad and Rebekah Triebsch

Jones Family Vineyards

  Donate Used Goods &
Shop Savers
Berkeley, Dublin, Vacaville

D onations benefit the 
Epilepsy Foundation of Northern California and  are
tax deductible.
#DareTo Educate
Free Training Available

In the event of a seizure, 
will your friends, family or colleagues know what to do?
  • 60 min presentation on basic Seizure First Aid
  • Audiences include: School Personnel, Law Enforcement, First Responders, Service Providers, Corporations, Students, Families
Thank You
2015 Stroll Sponsors



Epilepsy Center of Excellence


presented by 

SATURDAY, November 21, 2015

The FAIRMONT Hotel, San Francisco
Thank you for your support!
Honored Guest: Daniel Lowenstein, M.D.
Innovation Award:  Tony Coelho
Flame Award: Samuel Ciricillo, M.D.
Volunteers of the Year: 
Max & Heather Berry, Brenda Porter, M.D. 

The Gala celebrates our epilepsy community, our heroes, our past wins, and our accomplishments--and your commitment to put an end to epilepsy.

National Epilepsy Awareness Month 
#DareTo Educate 

Help Spread Awareness!
Across the country many individuals and groups get creative and share their respect for epilepsy awareness by wearing purple or lavender. Some wear the color in their hair, others wear ribbons, bracelets, and still others get very creative by wearing colored statements on tee-shirts proclaiming their passion for victory over seizures and epilepsy! The point is to make some noise in any creative way that will attract attention of the general public in order to increase awareness, educate those in need, and promote acceptance of those who are a part of the epilepsy community. Wear your purple!
Giving Tuesday
#DareTo Give

During the Thanksgiving season, there is a day to give thanks, a day to shop the stores, a day to shop online, and a day to give back. Many brave the crowds for post-Thanksgiving shopping. 

Kick off the giving season by joining the nationwide movement to make a gift on #GivingTuesday! Your support will help provide free epilepsy education and services and to direct resources to 140,000 people living with epilepsy in Northern California. 
Research Opportunity
Human Epilepsy Project (HEP)

The Human Epilepsy Project is an international team of over 300 doctors, researchers, healthcare workers and patients working together at 27 hospitals to study the biomarkers of new-onset focal epilepsy. Together HEP is working toward the day when patients can immediately get appropriate treatment that cures their seizures.

The doctors of HEP study pictures of the brain and look for molecules and genes to help understand how patients respond to treatments and become seizure-free. As a result of this research, future patients with epilepsy will be able to receive an individualized treatment plan, resulting in a more immediate improvement or cure for their condition. Information gathered from the studies may also aid the development of medicines that will prevent epilepsy.

Daniel Lowenstein, MD, at the University of California, San Francisco School of Medicine and EFNC Advisor to the Board of Directors, is one of the main study doctors of the HEP.

The Human Epilepsy Project is looking for patients who: 
  • Have a history of focal epilepsy
  • Have had at least two confirmed spontaneous seizures at least 24 hours apart in the past 12 months
  • Began epilepsy medicine within the past 4 months
If you think you might qualify for the study, please read For Patients to find out more.
Medi-Cal Appeals
Two Million Californians
Ask Emily is a biweekly column by Emily Bazar of the California Healthcare Foundation (CHCF) Center for Health Reporting, answering questions about the Affordable Care Act. Read her columns here.

"Ben Fallstead, 28, was diagnosed several years ago with babesiosis, a tick-borne disease that left him exhausted, wracked with fevers and chronic joint pain and unable to hold a job.

After going through several antibiotics, his specialist prescribed one that brought him some relief.

"I was just getting to the point where I felt semi-normal," he says.

But early last year, his managed care Medi-Cal plan told him it would not refill the medication, saying that it doesn't support the long-term use of antibiotics, he says.

Since then, the Lake County man has been fighting his plan's decision, waiting months for judges who aren't medical experts to determine his medical fate.

Fallstead is among roughly 2 million Medi-Cal recipients who must use a different medical appeals process than most others.
That process is managed through the Community Organized Health Systems (COHS).  Continue to

There are currently six COHS operating in 22 counties.  They are: 
  • CalOptima (Orange County);
  • CenCal Health (Santa Barbara and San Luis Obispo Counties);
  • Central California Alliance for Health (Santa Cruz, Monterey, and Merced Counties); 
  • Gold Coast Health Plan (Ventura County); 
  • Health Plan of San Mateo (San Mateo County); and
  • Partnership HealthPlan of California (Del Norte, Humboldt, Lake, Lassen, Marin, Mendocino, Modoc, Napa, Shasta, Siskiyou, Solano, Sonoma, Trinity, and Yolo Counties)